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It is hard to deal with someone when they are angry. But remember that this mom is probably overwhelmed. She may be reacting to her child's stress at not being able to eat what her friends are eating. I'm an adult and provide my own food, but still sometimes get frustrated with having to bring my own food. I don't expect others to provide food for me, but it just reminds me of the stress of having to think about everything I have to put in my mouth when everyone else is able to eat whatever they want and I can't. My church has been wonderful and has gotten gluten free bread for me for communion and put it in a little plastic bag for me so that I can participate without having to feel more different by bringing it myself. They just keep a bag of gluten-free bread in the freezer and take a slice out every Sunday we have communion. They didn't do this for me but the other day at work they had a staff meeting where they had apples and string cheese where usually they have bagels and cream cheese. It was so exciting for me to be able to participate. It would be thoughtful to do something as easy as single serving things that are gluten free like string cheese so she can participate and might make the mom feel like someone understands/cares about the stress she is feeling. 

This isn't from any blood testing. I know I need to get that done. This is from effects on my body: insomnia, digestive trouble, muscle and joint pain, irritability, trouble concentrating. I'm guessing that I'm going to need to do a diet record. I know I should go to the doctor to get blood tests done, but I HATE going to the doctor as a kid we only went to the doc when we were really really sick. I had a gi doc when I got diagnosed, and then went to grad school, and now am working full time. I haven't gotten another GI doc as I now live in another part of the country. I should probably get my blood work done. 

Thank you for the answer. 

I'm not trying to over think it. I'm just trying to figure out where there is gluten getting into my body. It is definitely getting in and I have gone over again and again to try and find ingredients that might contain gluten, but everything is coming back clean. So trying to find other ways it might be sneaking in. And my kitchen is just me cooking and my kitties. I have transferred my cats to grain free food to get rid of that gluten floating around after the last cat food went from wheat free to adding wheat to their cat food. I haven't tried any new soaps or anything either. So I'm just searching

I use Immodium too. I use the liquid when able to because I feel like it calms my stomach faster than the tablet and it is tolerable taste wise. And I hate swallowing pills. 

Hi.

I was wondering about labeling laws in the US. I was wondering if products that are processed in the same facilities or on the same lines as products that contain wheat are required to be labeled as such. I was looking at dried fruit the other day and was glad I looked at the ingredient list because even though it didn't have wheat in it, it did say that it was processed on shared lines. Are they required to do this? Or was this just a nice company. I was really surprise as really all I thought it would have had as ingredients was some preservatives and the fruit. I hope this question makes sense. Thanks. 

I've been having recurrent nightmares about not having anything that I can eat. My dream is that I'm in college (I haven't been in undergrad for almost 10 years, but am thinking about going back to grad school). I wasn't diagnosed with celiac in college (though I'm pretty sure I've had it since child hood). The food is all buffet style and in my dream every food item has gluten. I can't convince the cooks that I need gluten free food and get them to prepare it for me. In some of the dreams they say I need paperwork from a doctor saying I need gluten free food. But for some reason I can't get a hold of the paperwork to give them. In other dreams there is no one to talk to. I end up not having anything to eat for days. Yes this wouldn't happen in real life, but my dreams have no logic. I've had similar dreams in the past that I've visited my parents and there hasn't been any gluten free food for me to eat, but nothing this consistently. I've had multiple dreams a week for the past couple weeks. Other dreams i've had is been me realizing I've eaten something with gluten in it after i've eaten it. But again only sometimes. 

I had two doosies in the last couple of weeks, both from work. I had a colleague ask me if I could eat fruit salad (only had fruit in it, no toppings). Another situation: I had a supervisor (who has a MA) ask me if I could have white bread because she wasn't sure if it had wheat in it. 

My worst symptoms aren't the digestive ones (though those do suck) they are my ones related to depression and anxiety and insomnia that happen when I get glutened. As the others have said, they can make these symptoms worse.

Thank you everyone for your support. It helps to know that other people don't think I'm over sensitive. That has always been used to minimize how I'm feeling. It makes it hard to know if I'm over reacting. I hate having at share computers at work. Because I drive so much for work, I don't actually have my own computer at work, instead  it is a number of shared computers. Before I realized I was getting glutened when eating at the computers, it was really annoying.   I hate this all. I will have to figure this out. I have told them before about the teasing about my name, but every time they introduce a bunch of us to anyone new, they bring it up again. And then the celiac stuff whenever food comes up. Which sucks now because we are having a meeting once a week at dinner time.

It seems to me in the last couple weeks there have been multiple times when gluten free  has been made a joke of by friiends and/or co-workers. It really makes me angry when this happens. That people seem to think it is somethng that it is okay to make jokes about it. it doesn't seem like people would make fun of other illnesses. But it is okay to make fun of things related to my celiac. This isn't helped by the fact that people on my team at work also think it is funny to make fun of my name given that it starts with a different letter than anyone elses. so it is more than just one thing. People seem  to think I'm too sensitive when i get upset when they make jokes about it. Am I too sensitive about people making jokes about Celiac? Why is it considered okay to make jokes about this when it isn't okay to make jokes about other diseases? I was bullied for years growing up so I know that impacts how I react to this, but it doesn't seem like it is taken seriously. I know that people use gluten free as a fad diet, but It doesn't seem likek that should make it okay to make jokes about it. Especially when they are making the jokes about my eating in particular.

Please be gentle with any replies. I'm feeling sad and lonely.

I'm so glad you are home now. That sounds like an awful experience. I am terrified of having to go to the hospital and being admitted at some point. I don't have anyone who lives near me who understands what it means to be gluten free. I have friends, but no significant other and I live alone. I better stay healthy and not end up in the hospital.

I am outside my regular reaction  time. So I'm going to assume that the processing got rid of the gluten. The bag that I had only said that the syrup was made from wheat (didn't give corn as an option.) But I feel like I got safe by  the skin of my teeth. A good reminder to always check labels.

It was mini rollos. I was half asleep and didn't realize they were mini until after I started eating them. Thanks for all your help.

Yes I wish it was just me worrying over nothing. When it tasted weird I checked the label. It said it had wheat. I forgot the first rule always check the label. I was half asleep and still had 2 more hours of work. I didn't realize these went the regular size until I started eating them. Please don't yell at me. I am kicking myself enough already.

I'm waiting to get sick. I accidentily ate something with gluten tonight. I forgot to check. The full size candy was gluten free, but not the minis. So Ii guess I will be able to check my exact reaction time. I hate gluten!!!!!!!!!!! I was so exhausted when this happened and it is just going to get  worse before it gets better. Anything I should do between now and then to make this better?

Thanks everyone. I have trouble being assertive. I know that I am a people pleaser which makes this harder. I don't want to make other people uncomfrotable. This is the first time I've actually had someone specifically say it makkes them uncomfortable, but it was all my work colleagues could talk about every time we went  out to eat. I think I've got my work colleagues to become comfortable with us going  out somewhere to eat without me being able to eat (often last minute things). I really can't eat at the restaurant that has the gluten freem menu as I get glutened every time. I am going to try to bring food with me when things are planned before hand. One time at a training I had a chocolate meal bar. Someone mentioned it and I said: well I get to eat chcolate for my lunch and you only get a sandwitch.

I don't want to depress you, but my symptoms can last 3-4 months if I actually eat something with gluten in it rather than just something that is cross contaminated. Last time I ate something I was able to identify as having gluten as an ingredient (after being told it was gluten free) I had digestive problems for a month  or so and emotional problems for 3-4 months. The time before that (though I never figured out where that one came from) I had digestive and emotional problems for 3 months. It depends on the person how long it lasts and what symptoms develop. I hope you are feeling better soon.

I need some advice on how to deal with social issues with friends. So a little history. I've never been easy with social situations. I've always had social anxiety and depression  (which the worst of it was probably secondary to celiac anyway.)  When I was in school I really couldn't do much socially because I had absolutely no spare money even to do things like pay for gas or bus fare in college. Then worked 90+ hrs per week between undergrad and graduate school. I got diagonsed 2 months before I left for graduate school in a new part of the country. I was really trying to figure this all  out during graduate school. I had to confront a couple of friends because they were leaving me out of things because i wouldn't be able to eat with them. They accepted that I  wanted to be involved even if I  couldn't eat.

Now I've graduated and making friends at work. I haven't found a restaurant that hasn't glutened me. So right now It is just easier  for me to not eat and just get something for me to eat when I am out with friends. But one of my friends made a comment that she finds these meals "very uncomfortable". I'm perfectly comfortable just having something to drink while others eat. I personally would feel more awkward bringing my own food ( and sometimes these things aren't planned - eg. last time we went out) to a restaurant. I know there may be times when I have to do that because I'm traveling or some such or doing a work meal. How do I  deal with her being uncomfortable? I'm not uncomfortable. I know it isn't my job to deal with my friend's emotions. But how should I respond? There are a few restaurants around that have gluten free menus, but I still end up getting sick so don't want to just go and eat there as I still get glutened. Plus I don't want to limit my friends' eating to places w/ gluten free menus. I know that I could try and get a salad and eat that, but that makes me feel worse than just getting something to drink as then i'm paying for  something that I don't even really want. Don't get me wrong, I love salad but having to eat that when people are able to eat full meals makes me feel more alone. I don't know why that is, but the salad makes me feel like  I'm settling. And a drink makes me feel like I'm making my choice.

I need advice. How do I talk about this with my friend? How do I manage this with group meals out? I hate that so much  of our social activity has to do with food. I try to do things that don't surround food, but we all work so much for our jobs that a quick meal out is pretty much what we have time for.

Thanks.

I would suggest getting a gluten free dog food for  your dog. I know that when the cat food I feed my cats changed their formula and had gluten in it I started geting gllutened and had to figure out where it came from. Even though you aren't eating the dog food, if your dog likes to lick you or you pet it, you have the chance for cross contamination or from handeling  the food.  Talk to your vet about a good food. Don't get rid of the dog. But find something that works.

Thank you so much.

The University of Chicago Celiac Center's materials are great. They have several PDFs explaining different issues associated with the gluten free diet and celiac disease. I actually suggested to them that they do one specifically on cross contamination a while back, but I'm not sure if they have yet or not. Here's a link to the existing materials: Open Original Shared Link and these are specifically for medical professionals: Open Original Shared Link

I was wondering if there are any pamphlets or educational materials that people know of from reputable sources (ie not blog posts as those can be seen as opinion and not fact not that a lot of them aren't wonderful) about the dangers of cross contamination when cooking. I'm trying to educate my therapist on how careful I have to be as she doesn't understand the limits it puts on my ability to eat what other people make due to the risk of cross contamination. Thanks.

Thanks. I hadn't even thought about trying to take the bag  back. I got it at petco so hopefully they will take it back even though I already opened it. Yeah, one of my kitties is a little piggy too, the other one is really skinny.

 

 

I feed my cat Blue Buffalo's Freedom Indoor.  Their Freedom line is all grain-free. Basically the ingredients are the same as their regular cat food, but it has potatoes as the carb source instead of barley.  The ingredient list looks the same otherwise.  I fed her blue buffalo indoor before switching, switched to gluten-free food for her because she eats like a little piggy, haha.

 

Open Original Shared Link

 

Also, Petsmart and Petco both have satisfaction guarantees, if you don't like the product you can bring it back for a refund.  You may be able to do the same at the store you bought the last bag of food at, so I would definitely check.

Hello. I'm not sure if this is the right forum, so please move it if necessary.

So Hills Science Diet just changed their food formulation for their cat food and it is no longer gluten free (dry foood). I could not figure out what it was that was getting me until I was goiing back over what was new in my home. I bought a new bag of cat food. So I was wondering what dry food other people use for their cats. I know there is a grain free type of cat food, I have been using it when I give them wet food, but it was really expensive and I was hoping that people had others that they use for dry food. I'm hoping not to have to read every package of dry food at the pet store. Plus it sucks that I just spent a bunch of money on a small bag of kitten food and a huge bag of cat food.  And I feel awful. Last night i couldn't figure out why it felt like I had guten caused insomnia, and now I have the rest of the symptoms. Bah!  Thx.

Note: It is the adult indoor cat food and kitten food that were no longer glulten free. Apparently they have some other formulas that are still guten free. But any suggestions would be helpful.

I am interested. I would be able to make the on line chat as long as it isn't when I'm working (which is way too many hours.)

Thanks everyone. My family has a long history of being verbally/emotionally abusive towards me. So it just continues the family pastime.