Lynayah

Anyone out there have a recipe for a protein shake that would be gluten/dairy/soy free?

I'm thinking of ordering egg white powder and coconut milk powder from Barry Farms. I want something shelf stable so I can keep it in my locker at work and just add water and maybe some fruit. I'd like to keep it low carb as I sometimes have issues with low blood sugar and yeast. I have tried truvia and didn't have an obvious reaction.

Thanks for helping me out on this and if it works you should all just sell your Wendy's stock as I'll cut my chili runs down to about once a week!

How about making a smoothie with gluten-free almond milk? You'd probably have to make it at home and put it in a Thermos . . . OR, how about taking goat's milk dry milk powder with you? Are you able to handle goat's milk? Meyenberg makes a gluten-free goat milk powder. It has 8 grams of protein per reconstituted cup.

Perhaps it is the corn that is bothering you, not gluten contamination?

Food for Life makes brown rice based tortillas.

Good point, tarnalberry. I thought that, too . . . but I kept experimenting, and I am happy to post that I am fine with organic, non-GMO corn. I am also fine with organic, non-GMO polenta, cornmeal, etc. I also do well with Corn Thins (they are also organic, non-GMO).

So, maybe in addition to gluten, I also have a sensitivity to genetically modified corn. Tarnalberry, thank you SO MUCH for sparking my realization of this possibility! I wonder if people who have reactions to corn have them because they are eating genetically modified corn, and their bodies cannot handle it. So many of us become sensitive to other foods--it might be true?

Has anyone else here found they can eat organic, non-GMO corn but not genetically modified corn? I'd love to know! (For those new to non-GMO: If a product isn't marked as being non-GMO, it is most probably is genetically modified--especially if manufactured in the United States.)

As memory serves, Bob's Red Mill masa is also non-GMO, which is why I'm excited to try it.

I NEED MY CORN TORTILLAS!

I'm so happy for this thread! Thank you to Joy Joy for starting it.

Hey everyone--just an update (I'm super excited)--after deciding to avoid Arrowhead Mills, because they use a shared facility and because people in other posts seem to have trouble with them, I saw Rancho Gordo mentioned on a Gluten-Free Girl post about beans.

Open Original Shared Link

They sell gourmet, heirloom beans, so they're definitely more expensive than other dried beans, but I'm not gonna make a fuss if I can be sure they're gluten free. At ~$5/lb (dry weight), and $8 flat shipping, it's still a lot of food-per-dollar. Double checking with the company (this is how paranoid I am, these days), I emailed:

I placed an order--hopefully they're good!

TZU: Thank you for this post. I'm wondering how your order went -- were you happy with the beans? I'm probably ordering some this week.

My hunger level went up when I did the gluten challenge, too. AND my hunger level was out of control many, many years back when I was overweight and eating A LOT of heavily processed gluten foods, every day.

For me, my best years, hunger-wise, were when I was losing weight and after I lost weight. During that time, I ate mostly fruit, vegetables, meat, legumes and many servings of whole grains each day (which of course included wheat, barley, rye). I ate a low-fat, high fiber diet. On days when I ate meat, it was lean meat only, and the portions were moderate. Mostly, I ate legumes, eggs, dary and soy for protein. I also used to drink a lot of smoothies made from whey.

(Now I'm watching soy, dairy and eggs as they seem to be giving me grief, too.)

So, kristianne75, you might be right about the grains--especially if they are healthy, whole grains, giving a different sense of fullness and satisfaction.

Protein plays an important part, too. I miss the low-fat options of eggs, yogurt, soy, etc. How I used to love a veggie burger on wheat bread! And it was FILLING.

Of course, exercise is important, too. If I exercise, I'm not as falsly-hungry as I am on days when I do not exercise.

I am still trying to find a low-fat, high fiber gluten-free balance of foods that leaves me as satisfied as I used to be back then. It has been a challenge so far.

Thank goodness, I've still managed to keep off most of what I lost back in the early 90's. I lost over 100 pounds.

This gluten thing caused me to gain 15. I've been able to maintain the gain and not gain more . . . but I haven't been able to lose those darn pounds!

Since I was at the top of my BMI range before I gained it, I am now at the lower end of being overweight, and it's driving me CRAZY.

So far, the low-fat foods that seem to satisfy me most are potatoes, beans and Corn Thins Multi-grain (love these with fat-free refried beans on top). On days when I stick to these, I feel lighter. Problem is, I get tired of eating the same thing, so I eat differently the next day and, whammo, my satisfaction level goes down.

I'm going to find that balance! I'm on a quest!

Mission Corn Tortilla's are gluten free.. They even say so on the bag!

Do they still say it on the bag? I read that the statement no longer appears.

"Gluten-free" still appear on the tortilla chips at COSTCO -- they are made by Mission. That, I know, because I just bought some.

Unfortunately, I reacted to them.

I'm okay with corn products only if they are not procesed in a plant that also processes wheat.

I'm going to try Bob's Red Mill gluten-free masa. Regular, store bought masa has given me problems so far, alas. Has anyone tried Bob's Masa?

Just throwing this out there--do you use artificial sweeteners in the morning? I ask because I developed headaches (not typical for me) and through process of elimination I discovered it was Splenda that was causing them.

It could be another sensitivity showing up, sometimes that can happen when you get the gluten out of the picture. The timing of your headaches suggest something you are eating for breakfast?

Splenda is gluten-free, by the way....I'm simply intolerant to it.

Patti: Is headache your only symptom from Splenda, or do you have lower GI symptoms as well? Thanks for any info!

Wow, it took some digging but I found exactly what I was expecting to find. Arcadia is owned by Anawah Inc which shares boardmembers and has "collaborated" with Monsanto on GMO programs since 2005. Basically no one does GMO work in the U.S. without Monsanto's involvement and blessing these days. So basically we're talking about Monsanto here; they're behind it through a veil of company names.

Do I trust anything Monsanto has a hand in? No, never, they're to blame for the destruction of an American way of life and for the modification without our knowledge of the very foods we eat.

But above and beyond that one of the biggest problems organic farmers using non GMO seeds have is cross pollination. Just because they have planted non GMO corn seeds doesn't mean their neighbors GMO plants can't and frequently do pollinate their organic corn plants resulting in GMO hybrids. So if Farmer A plants this new "safe" wheat and his neighbor Farmer B plants regular old Monsanto GMO high gluten wheat, Farmer A is going to wind up with a mixed bag of wheat only he's now able to label is as "safe".

Bravo! GREAT research.

I'm right there with you. I remember reading years ago about how scientists were trying to cross-pollinate wheat with corn to make a heartier corn plant. I was terrified, but haven't heard anything else about that.

I wonder why the scientific community is so quick to come up with complicated fixes rather than try to find out WHY celiac disease is 4x more common now than it was 50 years ago. Doesn't that tell you something is wrong with the growing industry of processed foods? But I guess that would upset too many people in that multi-billion dollar industry.

Have you seen the documentary Food, Inc.?

It is also possible that your headaches may not be gluten-related. I hope your doctor gives you the attention you deserve!

However, if it is a reaction to gluten: Think carefully about what you do in the morning before the headache begins.

Have you checked your toothpaste?

I'm glad to see you changed lotion. For me, I was using hand lotion that contained gluten, then doing things like putting something in my mouth with my fingers.

Oh yes, I totally understand how you feel. It can be very frustrating trying to figure it all out.

PS: Apparently, some folks have issues with canola oil. There is a thread about it here, if you are interested:

https://www.celiac.com/gluten-free/index.php?showtopic=61018

It is apparently pretty common - from: Open Original Shared Link

"Q: I feel hungry all the time. Is that normal?

Yes, it is very common. Your body is making up for the time it wasn't fully absorbing foods. Hunger levels tend to normalize within the first months after eliminating gluten and beginning a well balanced diet of gluten-free foods."

I know it is true because my hunger levels definitely went up -- very frustrating. It also doesn't make sense -- you'd think that once you finally start absorbing nutrients, your body would get satisfied more easily and crave LESS food, not more! Where's the justice?

Hello

I'm new to this so hope this is the correct forum for this kind of question. Apologies if not!

I have been gluten free for quite a while and so have many good recepies for things to make food more interesting, however one thing that I really miss is Mexican Food, especially Fajitas!

Although there are corn tortilas that you can buy, these still contain wheat flour and so are useless.

I wonder if anyone knows where you can buy gluten free soft tortilla wraps of if anyone has a recipe to make plain ones?

I would really appreciate it!

Many thanks

Joy Joy

Joy Joy:

I have not tried them, but members of my Gluten-Intolerance group say that French Meadow Bakery has the best gluten free tortillas around. Their gluten-free tortilla is This product is casein-Free, Gluten-Free, Gluten-Free, Lactose Free, Peanut Free.

If you Google French Meadow Bakery, you'll find the link to their webpage. I've had their gluten-free brownies (sold on their web page -- I had them at Disney World), and they are excellent.

While we're on the subject: Does anyone know of a good ABSOLUTELY GLUTEN-FREE comercially produced corn tortilla?

Thank you for posting this interesting article. I found it fascinating. I also found it very disturbing. Did anyone else?

I'm not sure more genetically modified food is what the world, and especially the gluten-free community, needs right now.

To replace one egg:

1 tablespoon ground flaxseeds

3 tablespoons water (or other liquid)

I've had good luck with the Ener-G Egg Replacer as well. For baking, frying: Canola oil is also good. Canola is the one to use if you do not want your oil to smoke too quickly.

For saute: The Julia Child combo of one part butter to two parts olive oil is delicious . . . if you can have butter.

And if you CAN have butter: Old fashioned buttercream frosting is a combination of butter, powered sugar with whatever flavoring you want, such as vanilla -- if you look, there are recipies out there that do not use egg. Marth Stewart has one. I haven't tried it, but here it is:

Martha Stewart's

Instant Buttercream

1 cup (2 sticks) unsalted butter at room temp

2 jars (7.5 oz each) marshmallow cream

2/3 cup cocoa powder

2/3 cup semisweet choc chips, melted and cooled(see my note, below)

1 Tbsp vanilla extract

In bowl beat butter and marshmallow cream till fluffy. Beat in the rest of the ingredients PLUS 1 Tbsp water. If buttercream is too thin you can refrigerate it 5 minutes before using.

Chocolate chips: Enjoy Life has a soy gluten, trans-fat free chocolate chip out there that is delicious -- better than "other" semi-sweet chips, in my opinion. They would work in this recipe.

Marshmallow Fluff is gluten free.

I know nobody has been on this post lately but I'm hoping someone can help me out with drinks on vacation?? nobody seems to kno! I am going away to an all inclusive and have no idea what i can have? like all the mixed frozen drinks are prob a bit off limits.. i'll ask if i can read the labels.. i'm sooo happy malibu is gluten free that makes me very excited as that is my fave! what about blue hawaiians tho?? anybody know if those are safe??

Talk to a bar manager -- let he/she know you will get very sick if you have even the smallest bit of gluten . . . and ask what they recommend.

For me: Wine, basic martini, rum and Diet Coke -- these always work.

For killing germs, I think all we've got is some multipurpose windex or something. But gluten isn't a germ, right? It cannot be killed! So mostly we focus on SCRUBBING with rough sponges and dish soap. We've got one sponge for the first cleaning, then we use a different sponge for the next two passes, hoping to pick up most of the gluten on the first pass and not spread it around again with the contaminated sponge. I'm not sure if it's the best way, but that's what we thought up. We're still fine-tuning it. Suggestions welcome.

Happy Valentines! =O Funny enough, we're spending today cleaning again.

For us, we use a dishwasher that has a sanitizing cycle. Even with that, we use a Brillo pad for any ceramic or stainless steel cookware for anything that has had anything gluten in it -- before it goes into the dishwasher.

Does anyone know if there is a hotline where you can call/text to ask if a food contains gluten? Something like CHA CHA, or KGB? Often i don't know if certain foods contain gluten, or if certain companies put gluten in their products. It would be nice to be able to call a hotline, or text someone reliable to find out quickly.

University of Chicago Celiac Center has a hotline, although it may be more for health related questions than for food. Still, it is a good resource.

They are very friendly there. It may take a day or so to get a return call. Here is what they have posted on their site:

"The University of Chicago Celiac Disease Center's Information Hotline is the only one of its kind in the nation.

We are standing by to answer your questions about Celiac Disease: symptoms, diagnosis, treatment and follow up care. We are here to help.

Our telephone number is 773-702-7593"

We do our best to answer every call, however, should you reach our voicemail, please leave a message. All calls will be returned.

This is great! My husband really got a kick out of it, because he knows how it feels to try to follow those rules (but in his head, not on paper). Thank you for sharing this!

Question: What method do you/he use to sanitize?

Thanks -- happy Valentines Day!

Here in the midwest, many of Wal-Mart's frozen and canned veggies used to read "gluten-free." Then it changed.

I remember one week buying frozen vegetables that said gluten-free, and then a couple weeks later, noticing the labels had changed and the wheat statement had been added.

Probably in order to keep up with having the lowest prices, they change plants, sometimes frequently. When I shop there, I check every can or bag, and I do it even if I am purchasing multiples from the same spot -- sometimes new gets mixed in with old.

I am very sensitive, and I use it without issue. Just used some last night!

Dx'd with Fibro 2 years ago. Blood tests were negative for celiac. Positive results with diet.

I went gluten-free the week before Christmas. My brain fog was gone immediately and shortly thereafter the exhaustion and joint pain went away as well. I felt great and thought I was on the right path. This last week it seems like all the symptoms have returned. My legs have been killing me and my head feels foggy again. The last two days the fatigue has returned.

I've been really careful and can't figure out where I'm getting the gluten. I haven't changed my makeup or shampoo yet. Is it possible that they didn't bother me at first but now I'm getting more sensitive to any gluten?

I feel horrible again and now I'm depressed because I thought I found the answer. I've been to scared to do a full blown gluten challenge and now that I'm feeling bad I'm not sure I could base the negative results on gluten.

I'm trying to remove white sugar from my diet-could I be going through withdrawals from the sugar addiction?

I don't know what to do next? Any thoughts or helpful ideas??

Gluten is everywhere, and it takes some time to get to the other side of it. You are not alone.

When I get glutened, my pain is much the same as yours -- horrible.

I'm still in the processes, trying to figure it all out.

Things as simple as using a face cream that has gluten without knowing it, and then touching something with your fingers that goes into your mouth (for me it was a piece of banana), or putting your hands into your mouth (for me it was licking a finger to help turn a page), can cause a reaction.

For weeks, I was using the same can opener as my family -- wrong!

Licking an envelope can really cause damage (you probably already know this), but so can handling the glued area of an envelope and not washing your hands.

The list goes on and on and on, including a pet eating food with gluten . . . who then licks you.

Bottom line is to check everything. I know you know this already, and I knew it, too, but even though I knew it, it is amazing how easily things can happen.

At my work, we have a toaster in the kitchen. CRUMBS ARE EVERYWHERE. When I make something for myself, I clean the counter then put paper towel down on my work space.

This week, I watched as a co-worker moved my silverware off of the paper towel and onto the counter so she could make space for herself -- she didn't realize, of course, what she was doing.

If I had not been right there, I never would have known, and if I had gotten glutened, I would have blamed it on what I ate or goodness knows what else.

My favorite story to date: I was working a fundraiser, cutting pie for a bake sale table. I was careful to put on surgical gloves to keep myself gluten free. As a dear friend left the fundraiser, she blew me a kiss . . . and -- you guessed it -- I blew her a kiss back. GLUTENED!!!!! Augh.

It's CRAZY out there trying to manage it all. Really nuts, especially for those of us who are very sensitive. Hang in there.

Debbie: Since you don't know what kind of healing you'll have yet, federal social security is probably not an option - it's for permanent disability and you don't know what is permanent and what isn't yet.

I'd seek more state assistance, which would be through your county Job and Family Services. Sit down with a caseworker and lay it all out on the line: $200 is not enough. There's a lot of help if you have a child. Have you looked into BVR - the Bureau of Vocational Rehabilitation? There's also a lot of tax money out there aimed at helping people return to work - but based on their physical abilities. At the BVR, they'll do assessments based on what your abilities are now and try to match you up with current jobs or provide training for jobs that fit your abilities. (For example, if a construction worker hurts his back, the BVR may help that worker get training in computer repair work. I've known people with Multiple Sclerosis work with the BVR to see what options are out there if their MS interferes in their ability to do the work they were originally trained to do.)

These programs are out there in order to get USED. So do some knocking on some office doors and find out who can help you. That's what they're there for!

- Stacy

Stacy,

You ROCK! You must be an HR professional -- if not, you should be. GREAT info. I am enjoying reading your posts. Keep up the good work.

Best,

Lyn

I had to give up cat sitting for a friend because the cat was making me sick whenever she licked me.

It was even harder to leave a relationship because of the gluttening from kissing.

As much as we love our SO they can make us deathly sick. He didn't wash his hands or brush his teeth before establishing contact. I was sick for 6 weeks after. He met me after work so his clothes were contaminated as well.

I withdrew from friends and relatives, then signed up for various support groups on the net, until my immune system improved. Loved ones can communicate with me via a prominent social group. I'm educating them while still maintaining a safe distance from contaminants. Even a hug will do me in.

It is definitely a crazy life we lead. Most people think we are paranoid. What's interesting is that this is hereditary. Those same people are suffering from allergies and food sensitivities, and they are living in denial.

Hopefully, they will learn something from us, and one day thank us for educating them about GI/Celiac Disease/Autoimmune diseases.

Clothes an issue -- that is interesting! Did he work in a bakery or restaurant?

At 1 in 100 its kind of strange that prominant people have not been diagnosed.

Excellent point, Archie_P.

Whenever I watch the Food Network, I always wonder which celebrity chef will be the first to be diagnosed with it . . . or if maybe one or two already have been diagnosed but are living in denial or aren't talking about it. Whoever steps up first will be my hero--Food Network or otherwise (although a celebrity chef would be perfect).

In the meantime, I cling to the belief that everything happens for a reason . . . and when the time is right, the perfect celebrity will appear -- just as with Michael J. Fox.

And then . . . so long, fad; hello, fact.

No. There is no essential nutrient that is missing from a properly balanced gluten-free diet. The gluten-free diet is not dangerous.

Especially considering that man was made to eat a gluten-free diet.

Thank you for posting this, psawyer.