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captaincrab55

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by captaincrab55

  1. captaincrab55
    I know this isn't an IBS Forum, but it looks like they may have cracked the code on treating it. They think the new discovery may make it possible to treat other autoimmune diseases. Even if they develop a treatment I think I would continue eating strict gluten-free, but it may allow me to eat out gluten-free without the fear of being glutened. That would...
  2. captaincrab55
    Bonnaz, IMO it sounds like you have many foolish family members and friends! There may well be a chance that your mom may have celiac disease. Keep reminding yourself that Celiac Disease isn't an Allergy that may go away with further exposure! You may need to consider finding new friends that also have celiac disease. There are groups that get together...
  3. captaincrab55
    Hi Sammy, Welcome aboard. I hate to tell you this, but Celiac is genetic. Somewhere back in the family line someone had it. It was common for it to go undiagnosed years back. My Mom was never diagnosed with it, but suffered with many of the same symptoms I had when I was finally diagnosed at age 56. Silent Celiac may be in your family. I'm sure others...
  4. captaincrab55
    iceicebritney, I read where you were referred to John's Hopkins. If you live in that area/suburb and still have the rash, I can give you my Dermatologist's name(https://www.brderm.com/dr-robinson.html I se Dr Robinson, who diagnosed me with dermatitis herpetiformis/celiac disease 2 weeks after my first visit)
  5. captaincrab55
    I had to show that I was diagnosed with dermatitis herpetiformis in order to get my health insurance to cover gluten-free brand name drugs instead of generic drugs that weren't gluten-free! drugs that weren't gluten-free
  6. captaincrab55
    glucel. There's a lot of cost, including liability issues when a manufacture labels a product gluten free to be sold in the USA.
  7. captaincrab55
    Hi Kazbo, I had an Apprentice that was self diagnosed with Celiac. I couldn't convince him to get diagnosed by a Doctor, He did something dumb and got locked up. They refused to feed him gluten free foods, because he wasn't diagnosed by a Doctor!
  8. captaincrab55
    Here's a link: https://www.google.com/search?q=iodine+test+on+skin+for+dermatitis+herpetiformis&sca_esv=050a7531cb22c9f5&sxsrf=ADLYWIJQ1BNQe2y8HwcyMffU60tFc5SaFw%3A1724083366655&ei=pmzDZvPgJ_b7wbkPla-p2Ao&oq=iodine+test+on+skin+for+derma&gs_lp=Egxnd3Mtd2l6LXNlcnAiHWlvZGluZSB0ZXN0IG9uIHNraW4gZm9yIGRlcm1hKgIIBTIFECEYoAEyBRAhGKABMgUQIRigATIFECEYoAEyBRAhGJ...
  9. captaincrab55
    IMHO, you may have the wrong Dermatologist! I was tested for it on my first visit to a different Dermatologist. In two weeks my dermatitis herpetiformis biopsy came back positive and he sent me for a blood lab that also came back positive. You could try the Iodine test with a bandaid.
  10. captaincrab55
    Ginger38, Do you have Dermatitis Herpetiformis(dermatitis herpetiformis)?
  11. captaincrab55
    Eldene, I found this group back in 2009 when my 4th Dermatologist in 30 years diagnosed me with dermatitis herpetiformis 2 weeks after my first visit. This group taught me how to read labels and understand the evils that lurk within. I still visit this group to check on whether medications contain gluten and other updates, as well as chiming in here or...
  12. captaincrab55
    Welcome LadyofLove, Unfortunately dairy is a curse to some of us, including me. I was diagnosed in 09 and still can't tolerate dairy. Late last year I did a test with Everywell( https://www.everlywell.com/) and dairy came up as a No No, but cheddar cheese came up as ok. I've tried it moderately several times with positive results. I will pick and choose...
  13. captaincrab55
    Here's a general reply to a simple search that includes Celiac Disease: People also ask What is Club fingers a symptom of? Clubbed fingers is a symptom of disease, often of the heart or lungs which cause chronically low blood levels of oxygen. Diseases which cause malabsorption, such as cystic fibrosis or celiac disease can also cause clubbing...
  14. captaincrab55
    Hi EmmaR, Did the Doctor check your Thyroid?
  15. captaincrab55
    Rita06, I hope you're on to something, but meanwhile I suggest you get properly diagnosed!
  16. captaincrab55
    Welcome Cluelesslycontaminated, I suffered with hives and tummy pain from an infant to age 56 as well as pimples that started when I was 12 that were quite often symmetrical in nature. In a period of 30 year I went to 4 different Dermatologist. The last one tested me for Dermatitis Herpetiformis(DH) on the first visit. Two weeks later the test came back...
  17. captaincrab55
    The topic of Gluten in Toothpaste should come up in the search function, as it was discussed quite a few times. I stick with Tom's Toothpaste, because it's Gluten Free!
  18. captaincrab55
    IMO, First, You need a strict gluten-free diet, Second, You need to visit a Hematologists to study your low blood count. Third, You need a General Practitioner that understands Celiac Disease. Just as important, Don't forget to visit your GI Doctor. Good Luck
  19. captaincrab55
    Hi JD, I have DH and just skin contact with gluten can cause a DH rash on my body. Not everyone is that sensitive.
  20. captaincrab55
    Bobby123, First, did the gluten-free diet improve your life? Next it would help to know a little about your daily diet. I was use to eating as much as I could and never gaining weight, but I had to learn to cut back after being diagnosed. Fourteen years later and I often feel hungry after eating. When I eat balanced meals, my energy level is usually...
  21. captaincrab55
    Sneaker, What kind of inflammation?
  22. captaincrab55
    Raquel 2021, This link may help: https://www.nhs.uk/conditions/vitamin-b12-or-folate-deficiency-anaemia/symptoms/
  23. captaincrab55
    Raquel 2021, Has your Vitamin B-12 been checked lately? Eve the low end of the safe level can be an issue for some of us. I found that out last Friday.
  24. captaincrab55
    There was a time that I avoided vinegar, but I found out that I could use distilled unflavored vinegar. I hope this works for you.
  25. captaincrab55
    FYI, Heinz Ketchup is safe for me, but Hunts Ketchup sets off my Dermatitis Herpetiformis. Distilled flavored vinegar may be a problem if the flavoring contains gluten. Many of your questions have already been answered here. You just need to use the site search function for most of your questions .
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