ktb
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Hi GFinDC no endoscopy at this stage. Our visit with the gastro was yesterday. He was extremely happy with her coeliac serology (all levels less than 1). At this stage he has asked for repeat abdominal ultrasound and repeat of blood - esp thyroid (incl antibodies). Even though bowel habits haven’t changed we are trialing osmotic laxative and trying t...
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Hi Kate333, My medical advice will always be from the medical practitioners or with the practitioners permission. Reaching out in this forum is a means of speaking with other people that may or may not have experienced similar issues. As a parent with a sick child I want to be 'doing' something to find answers and ideas. I actually have a medical...
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Thanks Posterboy for taking the time to reply. I will have a read of those links they look interesting. Thank you again I really appreciate it.
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PUD - peptic ulcer disease (commonly caused by H. Pylori infection). We are keeping a strict eye on her diet at present (with regards to gluten) however not cutting other things out until we see the specialist. Will certainly keep your suggestions in mind. Thank you
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I think the GP wanted to trial the PPI originally as a lot of her sypmtoms to point towards GORD (or PUD - however breathe test since then was negative). Given that there was no response, the trial of increased dose until specialist visit is really just to test if there is any response to reducing acid. I certainly don't want her on high dose PPI long term...
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Hi Again Knitty kitty Thanks again. Thanks for the suggestion, I will wait until we see her gastroenterologist before changing anything. Its hard to watch her so uncomfortable and I think I just want to fix it, but yes your suggestion to wait is a good one. We were lucky enough to get an appointment with her GI specialist for the 11th - this was the...
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GFinDC reacted to a post in a topic:
gluten-free diet for ten years - negative serology - constant epigastric discomfort and nausea among other things
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Hi cyclinglady thank you for taking the time to reply. My gut feeling (pardon the pun) is that it is active celiac disease too. I wondered about the use of the serology as an indicator of gluten-free diet success so that’s certainly something to keep in mind. my daughter keeps telling me it feels different to coeliac pain but perhaps it is just presenting d...
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Thanks for your reply knitty kitty. Wow I had not thought of vitamin deficiency and the fact that they are not added to gluten-free foods like their non gluten-free equivalents. Your experience sounds awful! It certainly fits as a possibility - while she eats veges daily and doesn’t have a huge amount of processed foods especially recently - a vitamin deficiency w...
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Thanks for taking the time to reply GFinDC. We are fairly certain that her diet is not contaminated (but still it’s always a possibility). I guess the thing that puzzles us is that her bowel movements have not changed at all over the 6-8 weeks this has been happening and even closely watching what she eats has made not improvement in her symptoms. Gosh I...
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Hi - my daughter was diagnosed with celiac disease at the age of three and has followed a gluten-free diet ever since. She is now 14. Recently she has been having epigastric discomfort and we thought she may have had a little gluten and just watched and waited however it’s now several weeks and she now also has constant nausea, feel shaky and fatigued. L...