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BlessedMommy

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BlessedMommy last won the day on March 28 2015

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  1. I'm sorry that you're still having issues, that has got to be hard!

     

    As far as the diagnosis stuff, I think that you are most likely celiac. You have a daughter with celiac and you have severe symptoms when you consume gluten. 15 years of being gluten light is a long time and I'm guessing that the gluten challenge probably wasn't long enough and that the celiac tests were false negatives.

     

    It is probably wise though to rule out any other issues, so it doesn't hurt to keep on looking at other possibilities.

  2. I'm planning to take my girls on a Mother-Daughter retreat this year, in October. I've talked to the camp about special dietary needs and they have no problem with people bringing their own food. 

     

    My girls will most likely be just eating their cafeteria food. What are good gluten-free choices that travel well and are easy to fix, that I could carry along and eat while my girls eat the cafe food? 

  3. Seems pretty clear that it's celiac, assuming that he had improvement on the gluten-free diet. (unless they think that he has Crohn's or there's some other good explanation for the high Ttg?)

     

    I honestly don't get why the biopsy is the gold standard for celiac. It is essentially telling you, "Until you are damaged enough, we won't say that you have celiac. So go on your gluten eating way and when you're sick enough, we'll give you our medical endorsement to eat gluten-free."  :wacko:

     

    What did Dr. Fasiano say? Seems like with the above factors, he would DX your son for sure.

     

    Did his Ttg come down on the gluten-free diet?

  4. I'm so glad that you're making the switch to gluten free based on your blood test results. Good for you! I'm disheartened at doctors who send patients on their gluten eating way (or give a "gluten intolerant" diagnosis based on blood but then tell them that they can do a less careful version of the gluten-free diet) based on negative biopsy results.

  5. Yep, we don't want anybody else to go through this with the same person, that's for sure. It's probably taken us between 8-10 hours of hard labor to document this person's scamming. In the end, Paypal will most likely cover our loss through their seller protection program and the scammer will most likely keep the phone and run. I would be very, very surprised if it got sent back in the same condition.

     

    Does anybody know if you can get local law enforcement involved in fraud like this or do they consider it petty theft and don't really bother with it?

  6. So, I often hit a grocery store quickly when I need to eat on the go because I prefer to limit eating out.

     

    However, often I find that it's a challenge to quickly put together a balanced assortment of ready to eat foods when stopping at a grocery store. Probably my additional food restrictions don't make it any easier.

     

    Like tonight, I ran into Aldi's and after much deliberation, ended up with some exotic veggie chips, a pack of hummus and some organic apples to eat on the go.

     

    Does anybody have any favorite go to foods that they get at a grocery store when out and about?

  7. Do you instruct restaurant staff each and every time about proper handling of your food to avoid CC? Or do you waive the speech in some circumstances? What about restaurants that have an extensive gluten free program and a dedicated prep space and have been certified by the GIG? Do you still ask for special handling of your food each time?

     

    What about items (like smoothies or Wendy's frosties) that aren't likely to get CC'ed in the first place?

     

     

  8. I just spoke with Ebay customer service. I provided them with detailed information documenting the false information and discrepancies that I found during my own search. They are now opening an investigation and starting a process to permanently ban this person from Ebay.

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