BlessedMommy

Oops, I meant my daughter's new doctor, not her new daughter. Lol

It's good to be able to put all the info together for the visit with my daughter's new daughter. I feel strongly that my daughter needs to do a gluten trial and get properly diagnosed (with whatever she has, whether that be celiac or something else) and it's good to be prepared with information for any of her symptoms.

Anybody tried these? How do you like them?

Open Original Shared Link

A good friend on mine (IH) just brought this Newsletter article from the Vitiligo Support International website to my attention.  It talks about research that DOES link Vitiligo with Celiac Disease.

 

Open Original Shared Link.

 

I stand corrected and grateful for her sending this to me 

 

Colleen

Thank you for sharing this. 

I go to church potlucks and bring my own food. Yesterday, I brought my own food and in addition, snagged a few pickles from the potluck line to throw on my gluten free burger before anybody else had a chance to CC them. Everybody there is pretty much used to me bringing my own food by now.

I came up with a new catch phrase to use to explain why I don't often eat stuff prepared by others. "You know, life is too short to spend time interrogating my friends over their ingredients or preparation methods and worrying about feeling ill the next day. I'd rather bring my own food so that I can relax and enjoy spending time with my friends without worries."

Hi BlessedMommy,

 

I've done a lot of research on it because I have it.  I have read no connection linking it to Celiac.  It is Autoimmune in nature.  The immune system destroys brown pigment in the skin.  It is associated with three other Autoimmune Conditions.

 

Hyperthyroid Disease

Addison's Disease

Pernicious Anemia

 

Hope this helps.

 

Colleen

Thanks for sharing Colleen! It is good to be aware of what other AI conditions might pop up.

The last thing I remember reading said that vitiligo and celiac do share genetic markers. But having one doesn't guarantee that you have to other, just are at greater risk statistically. Plus there is more than one type of vitiligo.

What do you mean? Does that mean if you have vitiligo, then you also have the genetics for celiac?

My oldest has vitiligo and we will be pursuing a more firm diagnosis for her gluten issues, so I'm trying to make sense of this. Thanks for any info that you can share!

Does anybody have any good solid research that shows whether there's a connection between celiac and vitiligo or not? And is it considered a symptom of celiac? Or not really?

WOW without Wheat, Okemos, MI.

Hahahahaha. I normally don't read this thread because I don't believe there is such a thing as a restaurant that can serve both gluten and gluten-free foods. But then I started thinking that it might be worthwhile to track down any restaurants that are 100% gluten free, and then plan a vacation around them. Could you imagine - eating out for lunch and dinner every day!?!?

Totally! That would be a lot of fun to not have to worry at all!

OP, is your family vegetarian? I remember in my pre-gluten-free days, making gluten (seitan) "steaks." Vital gluten flour is a common vegetarian staple so that's the first thing that I thought of when you said that your dad brought home a bag of wheat gluten.

Can I suggest a rice cooker? That has been such a helpful tool for me! They not only make rice, but also other grains like millet, quinoa, and gluten-free oatmeal, and they are portable, easy to use, and fast.

One favorite of mine is Spanish rice with pinto beans. It cooks up so fast and is yummy!

I'm sorry that you're going through this and I hope that you find a solution that works and that keeps you sane and healthy. 

How is the KitchenAid model different from the others?  

I need to start saving up for a KitchenAid. I'll bet that it would help with gluten free baking a lot! My hubby has been pretty good about getting me tons of kitchen stuff, he considers kitchen tools to be important. 

Yep, in fact my farm that I get it from warned people that there would probably be a bit of dirt and a stray bug here and there.

I would suggest seeing if you could arrange a biopsy. Also, you said that he tested negative on the Ttg. Did he have the other tests as well? Sometimes one test will show celiac and the others won't.

Is there any current research on stroke risk, particularly for those who have a history of stroke or TIA? I'd like to read up more on it and I didn't find as much info as I wanted. 

Also would love to hear from celiacs/NCGI who have a history of neurological symptoms, stroke, or TIA on how you're doing.

Did you rule out celiac totally before going gluten free? 

I'm not a DX'ed celiac, but I don't consider myself NCGS either, because I had such severe problems that I had to halt the gluten trial and thus couldn't even do the bloodwork. Since I haven't ruled celiac out, I simply live like a celiac until proven otherwise.

If science comes up with a better testing method that doesn't involve risking hospitalization and disability (my problems with gluten are partly neurological), then maybe I'll get to test for celiac eventually. If I do and for some reason find out that I don't really have celiac, then I'll still be okay healthwise since I was careful with my diet. But since the reverse obviously doesn't apply, I prefer to just assume that I have to be careful. 

I also don't think that you have to feel like an intruder on the celiac forums, I basically consider them to be a place for anyone who's had serious medical problems from gluten consumption.

I'm going to be running a 5 mile run on 4th of July. I'm beginning to think about good safe snacks to pack for after the race. They have great fresh fruit options at the race, but I'd like to have something more than just fruit.

Anybody have any good tried and true running snack suggestions?

Yep, I made a gluten-free lasagna for my SIL's informal wedding reception last fall too! My lasagna was also vegan, so it covered those guests that were vegan as well, in one fell swoop. We had several people that shared our lasagna.

I also made a gluten-free/vegan cake for the dessert table as well. She was appreciative to me for donating food and I got safe food, so it was a win/win situation for everyone.

Ooh, how do you like the Kitchenaid? I don't have a stand mixer right now, but I'm thinking about it.

It sounds like you already have your answer--gluten quite obviously causes you misery. If you are fully convinced in your mind that you have a serious issue and decide to never, ever cheat, that's half the battle won right there.

 I really don't have that many people in my life who care that much whether I have celiac or not. People generally know that I was in the ER from gluten issues and that I'm quite strict in my diet. My inlaws are so supportive of my diet, that with their own money, they bought a separate brand new grill for use only on gluten free food.

Really as adults, there's not many times when a diagnosis is indispensable.

The one time where being in the hospital was an issue (when I was in there with my son after his broken leg) nobody made us present proof of celiac to order off the gluten-free menu.    I don't commit crimes, so I'm not planning on testing out whether prison offers gluten-free food or not.  

I plan on taking my girls to a weekend mother daughter retreat this year and we're just going to bring our own food. No way would I trust the cafeteria there to make anything gluten-free.

I'll be the first person to say that if you can get a DX, then do it, but you can function without one. Clean out your house from all cross contamination, let your family members know that you are strictly gluten-free, and make BYOF (bring your own food) your motto. Treat things just like a celiac and if a restaurant doesn't have a good gluten-free option, don't eat there. Save your business for the places that you know can do gluten-free food right.

You can do it!

Good luck!

One of our dear friends is getting married this upcoming Sunday. They are in college still and don't have a lot of money, so the reception is very informal and definitely not catered. (I think that some folks are cooking for them and donating the food to help them keep the cost down)

I called the bride's mom (one of my closest friends) and asked about bringing my own gluten free lasagna (they are having a lasagna reception) and mentioned that I'd be happy to share it with any other guests who were gluten free. My friend was thrilled and thanked me for it! She said that there was another gluten free guest coming and that they would let him know that there would be something for him. 

So, in informal weddings, something like this can work!

Wow, glad that you got a definitive answer!

I avoid Splenda.

Oh and the salad spinner is great for washing other fruits and veggies too. I used it for washing my blueberries and blackberries this morning.