BlessedMommy

I mix my own gluten-free flour blend. 1 cup sorghum flour, 1 cup potato starch, 1/2 cup almond flour, and 1 tsp xanthan gum. 

It looks like Quorn is working on becoming celiac safe in the future, though, based on this statement from their website:

"Some of our products, including Quorn meat free, soy free Pieces and Quorn meat free, soy free Fillets do not include any gluten-containing ingredients in their recipes. However, these products are manufactured in a factory which handles gluten-containing ingredients and, therefore, there is a small risk of gluten cross-contamination. We therefore label on packaging that these products contain traces of wheat. We have completed a comprehensive evaluation of our controls to ensure that we avoid cross-contamination and are working through final verification that will lead to us being able to positively state that these and other products are gluten free. We will update you as soon as we are in this position."

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Quorn does not make any products that are safe for celiacs at this time unfortunately. There are one or two of their products that contain no deliberately added gluten ingredients, but when the majority of their other products have gluten, cross contamination is a possibility. Quorn does not market any of their products as gluten free or make any gluten free claims at this time.

There are some celiac safe meat analogs though.

Beyond Meat products are delicious and are certified gluten free! Open Original Shared Link

Sophie's Kitchen makes a line of vegan "seafood" that is made in a dedicated gluten-free facility. We really like their little cans of mock tuna!

They are pricey, so mostly we eat veggies, fruits, beans, gluten free grains, etc. but it's nice to have a treat once in awhile. 

I love Bionaturae too, it's the best one that I've ever had. I wish that it wasn't so expensive! I might throw a couple of bags of it on my Vitacost subscription though.

Not Ronzoni, but has anybody tried the Barilla gluten free brand? I'm seeing that there's an option to subscribe to them on Amazon and the price is pretty good.

I would say that I got there last year. Due to help from this forum, I eliminated some of the sneaky trace gluten from my kitchen and other areas, and I'm sure that helped.

I'm at 5 years gluten free now and I feel really good. 

How many biopsy samples did they take?

How did your endoscopy go?

Do you have access to good frozen fruit in your area? That can be a good substitute for fresh, especially for expensive out of season fruits. 

I'm hoping for a clear answer for you. You've been through so much trying to figure things out! Keep us posted!

Kissing your husband after he's eaten gluten can definitely gluten you. If my husband eats gluten, he knows that means he has to brush his teeth before kissing.

I'm careful with the little kids too. I give them their goodnight kiss on their forehead instead of their cheeks if they've eaten gluten recently.

If you can't be tested but have serious issues with gluten, then you need to stay 100% gluten free including cross contamination. Being 95% gluten free won't help you if you have undiagnosed celiac. 

I cannot go back to eating gluten either (serious neurological problems from gluten, 3 months of gluten would likely cause a stroke) and so I just go through life assuming I'm probably celiac and planning my diet to that end. I don't use shared toasters, old waffle irons, old wooden spoons, old baking pans, etc. I got rid of my old pans, etc. and cleaned my kitchen out. If my children eat bread on occasion at home, I try to plan it at a time when I can give them a bath afterwards and change their clothes. At restaurants, the plan is to wash hands and faces after eating.

If I'm preparing a gluteny meal for others (like when I'm babysitting my friend's kids), I make my meal in segregation and eat it first, so that I don't have to worry about serving the kids their tortillas while I'm eating my gluten free food. I eat out sparingly and usually only at places that have a formal gluten free program for their food or for food that's hard to mess up in the first place. (like a baked potato still in it's foil or a smoothie)

It's hard but doable.

And you know what the great thing is? Ever since I really became strict on my diet, my remaining pesky symptoms that I assumed I was stuck with for life, started to dissipate. I have an anxiety disorder and I have seen probably about 80% improvement on that.

You can do it!

You can also purchase dehydrated veggies off of Amazon. I buy them to have them on hand for making soup.

What about the Thai Kitchen ramen noodles? You could take those out of the package and put them in a cup and add boiling water. 

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Anybody have any favorite tried and true go to snacks that you pack in your purse?

I've slacked lately on stocking my car kit and I'm thinking that I need to pack a little more in my purse. I ordered some Hellman's mayo packets in bulk and plan to keep some in my purse with a can of gluten-free vegan tuna, some gluten-free crackers, and a KIND bar. Then I have something fast, even if I don't get around to restocking my box for the car.

Tom's of Maine's products are all gluten free.

I just read the labels to make sure that there are no gluten ingredients.

If possible, I buy stuff that is labelled gluten free. 

Yep, what kareng said!

No need to make life any more difficult than it has to be!

I have to stay gluten free, because eating gluten for testing could be fatal for me(due to the nature of my symptoms), so I've been gluten free for 5 years now. It'd be interesting to know if I had celiac disease, but I can't even imagine eating gluten for 2-3 months straight. I had a TIA while on gluten for only 10 days, so I'm guessing that a full blown stroke could be in the works, if I did a full length gluten trial.

Most people who know me well understand my situation and know that cheating isn't an option and it's gotten easier with time. As far as doctors, I cannot afford to go to them anyway. I may eventually do bloodwork to check my nutrient levels, though.

I use this brand and my kitty loves it. 

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I've read the label and there are no wheat or barley grasses in it.

If eating gluten-free makes you feel better, that is what you should do.

I agree. If you've exhausted all testing options to no avail, then it's fine to follow a strict gluten free diet, if that's what works to keep you a symptom free member of society. Nobody needs their doctor's permission to go gluten free.

I know that it's hard to think of going back to eating gluten for the sake of the test. But you haven't been gluten free for very long, so now is the best time to do it. And an official diagnosis is so valuable!

I use this brand of grain cat food and there's no wheat or barley grass in it. My kitty loves it! I was using their Green Pea and Salmon formula for awhile and now for variety's sake, I switched it up and ordered my cat their Green Pea and Duck formula.

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Plus, I have the convenience of getting it shipped to my door every month. The grain free cat food in the stores around here is much more expensive than online.