BlessedMommy

Also, due to the small amount of information that is actually available on NCGS, we don't really know what long term health ramifications there are from NCGS people eating small amounts of gluten. 

It's tough, but if you know that they can't prepare safe food, I would stick to providing your own food. Either that, or stand in their kitchen and supervise them while they make it.

Just explain to them that you get so sick from small amounts that you just can't take the chance.

I don't see why people get so annoyed. Would they be annoyed at a diabetic who eats a low sugar diet for medical reasons?

I am so, so sorry for the pain that your family has been through. It does sound like celiac could be a possibility for them. I hope that you get a definitive answer soon. 

Very true. I guess that I'm sort of "thinking out loud" through these issues. 

My kids do have state insurance, so on the next visit I will be talking to their doctor about the specific issues that I'm concerned about, in regards to their diet.

I suspect that I'll need to print out some information and take it with me, to show him.

Oh bummer, it has dairy in it.

Well, I might have to do some baking and make my own.

Oh my goodness, that looks so yummy! Is that a new product? Have you seen it in stores yet?

A test like that would be great for my kids. I wonder what year they will come out with it? Any projected dates?

Would a test like that definitively DX celiac without a biopsy?

Does anybody know of any unsweetened non-dairy gluten free carob chips? That's a product that seems to be somewhat difficult to find. Also, does anybody know of any commercially available gluten free fig newtons? I really miss fig bars!

So, I've been thinking, what is the chance that they will ever come up with a celiac test that doesn't require any gluten exposure at all? Is that absolutely impossible?

It seems like the current tests essentially measure how much damage gluten does to you.

How would the mechanism of such a test even work, if they were able to come up with one?

Do you have a recipe for the pancakes, Jamie?

I've started buying him Fage Greek yogurt. He loves it and it's certified gluten-free.

My husband tends to have blood sugar issues and so requires protein with breakfast. Can anybody help me brainstorm good vegetarian options that won't compromise my gluten free house? He is lacto-ovo vegetarian, so milk and eggs are fine.

Butler soy curls are also good.

Franklin Farms veggie burgers are also gluten free and dairy free. 

Have you tried Beyond Meat chicken free strips or Gardein veggie ground beef crumbles? Both of those options are gluten free.

I'm also ovo vegetarian because of dairy not agreeing with me. That's interesting to run into another gluten-free ovo vegetarian, they are not very common!

Here's one that I haven't tried but would like to: Open Original Shared Link

I have tried this one and I like it fairly well:

Gluten Free Seitan

• 1/2 bean flour
• 1/2 rice flour
• 1/4 tapioca starch
• 1/4 cup nutritional yeast
• 1 tsp salt
• 1 tsp Paprika 
• 1 tsp Cumin
• Dash of black pepper
• 1 tsp onion powder
• 1/3 cup water or stock
• 1/4 cup. Ketchup or tomato paste
• 2 tbsp dairy free margarine
• 2 tbsp Braggs

Combine all ingredients until well mixed. Shape into a log and wrap with parchment paper. Wrap the parchment paper log in aluminum foil. Put in steamer and steam for 1 hour and 15 minutes. Turn off the steamer and let it sit in the steamer for 5 minutes. Remove from the steamer and let it sit for another 20 minutes and then either serve or refrigerate.

It is essential to use a good steamer for this recipe. I use a nice deep one with a lid.

I'm curious, are you a vegetarian?

I personally am a gluten-free ovo vegetarian.

I noticed your username. Have you tried any of the gluten free "seitan" recipes out there?

^Yes, exactly!

Yeah, I don't get the whole gluten and weight thing myself.

My theory is if someone lost weight by cutting down on gluten or going gluten-free that it was because they cut down on processed foods and sugars and ate more fruits, veggies, lean protein, etc. not necessarily because gluten itself had that much to do with it.

One side effect of going gluten-free is that I can never eat the cake or cookies at potluck dinner. LOL!

I only wish that celiac testing were more accessible, cheaper, and available to all had concerns about gluten. (and that it didn't involve suffering through a gluten challenge if you had already cut down or stopped gluten due to doctors not being able to figure out your problem) 

I think that the root of people going gluten-free without a DX has to do with the difficulty of getting one in the first place.

1) The testing can run up to several thousands of dollars out of pocket. Many, if not most, people can't afford that without insurance.

2) Doctors will often refuse to test you for it in the first place, especially if your symptoms aren't classical.

3) If you've already gone off gluten, you may have shut the door to DX, especially if you have extremely severe reactions to reintroducing gluten.

I'll be very interested to see whether science decides that NCGI exists or not. Maybe it doesn't exist and celiac is a lot more common than we think.

Ditto, I don't use certified dried beans either. 

If you use a waffle iron, you would need a new one, since a waffle iron is pretty well impossible to clean out. Colanders should also be replaced.

I'm fortunate in that I caught my gluten issues relatively early. I believe that they were triggered during my 1st pregnancy when I was 23. I started cutting out wheat a couple of years later and after my TIA and hospitalization in 2010 (so age 27) it was gluten free for life for me.

I feel like my overall health has improved a lot. I'm still working on some issues, but definitely feel much better now than I did in my early 20's!

Be sure to use rice that sticks together well. I use Lundberg Farms sushi rice for my sushi.