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amberlynn

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About Me

I'm a Mom to two boys. My oldest was diagnosed with Autism in Jan 09. He has gone through many food allergies in his short 4 years - currently he is allergic to dairy, and he has a really bad soy intolerance (its GI and Behavioral reactions). He has outgrown peanuts, eggs, corn, wheat, and oats. My youngest son got away with only a few minor 'inconvience' allergies, lol. He's mildly allergic to sunflower seeds, safflower oil, and cinnamon. He's only 2 so here's hoping he'll outgrow them soon!

I realized that I had some food intolerances as early as college - I could not drink milk without spending the day stuck in my room. It was awful. But, I dealt, and just didn't drink milk. It wasn't until I was breastfeeding my older son that I realized what I was eating was making HIM sick, and I started on an elimination diet, removing all of the top 8 from my diet. Eventually, we figured out he was anaphylactic to dairy, took him to an allergist who said he didn't have any problems with wheat, and I added it back to my diet...

Needless to say, I went from feeling great, to feeling like crap again. It wasn't until I asked my doctor about being exhausted all the time last year that I started to make some connection. He recommended going back on the eliminatin diet, but I was not up to it at that time - we were just in the process of learning about my son's autism. And we were flat broke, lol - not easy to change up your budget!

So, this year I went back, complaining again of being tired (falling asleep at work!), general achiness, nausea, and just feeling junky all the time. Labs came back completely normal again, and he said "Go back on the diet". So I did, and here I am!

I am feeling good again, I seem to be able to have a clear, concise thought pattern again, lol ;). The 'allergy fog' I was feeling has lifted. I also discovered an egg intolerance (GI only). So, this has been a fun path!

I never thought that food would be an enemy for me, that I would have to bend to my will... I'm used to it for my son, but for me, this is a whole new ball game!

  1. Yeah, that's what I thought. I told her this as well, but she seems to think that the test should show something - and the endoscopy will pick up something if my intestines haven't healed (which it sounds like they haven't). I avoid soy for the most part, most meals are dairy free. I haven't noticed any worsening symptoms depending on whether I eat dairy...
  2. So after a bad 'flare up' of something last month, I called the doc and told him. I've had issues on and off for years with my BM's, but this was exceedingly bad. He sent me back to the GI (last time I went was 3 years ago - they wanted to do a colonscopy then, but couldn't tell me if it was safe while BF, and it didn't seem a big deal then). Saw a new...
  3. I'm having an upper and lower endocopy on Wednesday, so we can feel nervous together! I've heard it isn't so bad, as everyone has stated - but I'm still nervous . Mine is coming after years of issues, and I finally found someone to listen to me! A nurse practioner at a GI's office - and she thinks its possibly IBS, probably Celiac's and/or Crohn...
  4. amberlynn

    ARCHIVED What A Let Down

    I would call them and let them know that you did wind up with a rash. My friend's little boy had a similar problem, with 'cockroach' on the SPT. They had her measure the size of the rash and took that as a reaction.
  5. Yeah, I've been reacting severely to even the tracest amounts of gluten. The reaction is ridiculous, lol. But, yes, you could have developed a dairy problem as well. I, personally, am having a sudden severe issue with egg of all things. I've always had a little trouble with them, but now I can't eat eggs (unless they're baked into something, go figure...
  6. amberlynn

    ARCHIVED What A Let Down

    Allergy testing is not always accurate. It really only gives the chance that a reaction may happen. There is a small amount of people that allergy testing does not work for at all (something like 5% of people). Skin prick testing is more accurate, but not the end all be all. For some, it works fantastically, for others, not so much. We have a 3 year...
  7. My doc gave me (forgive me spelling!) Meloxicam? It's an anti-inflammatory. It worked yesterday, thankfully! Today I woke up mostly pain free. I was glutened a week ago today. I have zero interest in taking liver and body damaging pills for forever and a day! I'm just so tired of being in pain and tired. I know that I can't just take a pill and be...
  8. Is that possible? I know that autoimmune diseases can run together (though I am not diagnosed Celiac, I maintain that I'm highly allergic b/c I do suffer BADLY with even the slightest cross contamination!). And 2 co-workers want me to get tested for RA. I have not been tested for ANYTHING. I'm getting really frustrated with the lack of concern... because...
  9. My son gets hives (and swelling, etc) from dairy. He's considered anaphylactic to dairy, and we carry benadryl and epipens. I occasionally get hives if I get gluten. Sometimes from sulfites - doc put me on Imitrex, which is a sulfate drug for migraines - and I wound up with some major problems breathing!
  10. I made this, but subbed all purpose flour, tapioca flour and some sorghum, plus aded a little xanthan gum to keep it together. It turned out great! Nice and spongy, springy! Glad to have something quick to make, cause I am so tired of making a loaf of bread twice a week!!
  11. OK, here's what I did... I really got to start writing this stuff down, lol. Measured 1 1/2 cups bob's gluten-free ap flour, added tapioca flour to make 2 fulls cups (all together, so 1/2 a cup of Tapioca) 1 package of yeast, 1/2 tsp of xanthan gum, 3 T of sugar, combine all in a large bowl. Add warm water and 1 tsp of salt. Beat with an electric...
  12. I swear, my best cooking guide is my old Better Home & Garden's cookbook I got for my wedding! I pulled it out today, and made bagels! It took me nearly 2 hours, but they rose, and they baked, and they actually tasted good! Now I want to make some 'kid' friendly ones, different flavors, etc. It was labor intensive, but easy at the same time. ...
  13. I love your story! So glad you figured out the cause of your family's problem. I just discovered in October that both I and my 4 year old son have a gluten allergy. I'm 75% sure my Mom also has a problem, and relatively sure my Dad has a problem as well. My symptoms were so vague, and seemingly unconnected. Severe nausea, joint and muscle pain, allergy...
  14. Ha Ha! The sad thing is, he asked for help - and the lady handed him the tartar sauce! WtH? Whatever... Yeah, I made chocolate waffles with some cocoa I had in the cabinent. Put some peanut butter on them, and they were super yummy and filling! As far as dinner goes... I'm still at a loss. Hubby will have to improvise .
  15. So, I've got no money to get to the store, so I need to make something with what I Have on hand. I've got no yeast, of course, except one packet that I'm pretty sure is nasty bad, lol! I found it hidden under some stuff in the cabinent - and there's no way I'm using it (it doesn't feel grainy, it feels mushy). So, I've got Sorghum, Tapioca, Garbanzo...
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