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avery's mom

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  1. Hi, I'm new to this site and have read and read and read many posts. My DD was born prematurely and had a few issues when born. She was only preemie formula for a few months and then found had horrible diareha and switched to soy formula which worked great. We kept her on soy milk when she turned 1 for a few months until she was tested by an allergist who insisted she was not allergic to milk and her pedi said it was ok to put her back on milk. We did that. But, when she was 18 months old and got a bad UTI and as a standard, i guess, was tested for kidney reflux , which she did have. But, on the xrays they also saw severe constipation. We never knew - she had BM's everday and never seemed in pain. Starting then we saw a gastro. We put her on Kondremul for quite a few months and had follow-up x-rays to show she wasn't constipated - we would slowly back off the kondremul and go on our marry way until it started back up again in a month or sow. She did did very well potting training at 2 1/2 , but by 3 1/2 she started having 5-6 accidents a day. seeing a uroligst and gastro - saying that she was having bladder spasms caused by the constipation. so...we've been on a med to help with bladder spasms, miralax for a few months....the meds have helped, she now only has 1 or no accidents in a day. but....my question is: could this be celiacs? the doc's don't seemed concerned about WHAT is causing the bladder spasms or the constipation - all they seem to care about is that it's better now. I don't want her on the med forever and i want to find out what's causing and fix THAT. she was tested for celiacs at age 2 and again at age 4 - both negative. Any thoughts about what to do next? I would appreciate any insight.

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