camprunner
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Thanks for the responses! While my daughter is not gluten free, she isn't getting a ton of it either. We don't have a lot of breads in the house for my sake. Sometimes, my husband will cook with gluten for the three of them and I'll have a substitute that kind of goes with what they are having but it happens less and less. So I don't know if the tests will be that much better for her.
I have thought about doing Enterolabs complete panel but already have negative results, I'm not sure it would be worth it with the negative blood tests.
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Background:
I was tested for Celiac Disease a year ago at my request. Honestly, I don't know how valid the results are. I had been on a gluten free diet for almost a month and a half but off for about 10 days before the test. But I was a little leary of eating gluten at that point and so not consuming it everyday and certainly not in heavy amounts. I have Hashimotos and upon going on a gluten free diet, those antibodies decreased a significant amount. My husband says we are not going to try the blood test again because he can't take 3-6 weeks of me gluten loading and I'm not sure I can either.
I have been on a gluten free diet now for the most part for 3 months and see a huge difference. My brainfog is gone , I have energy, less moodswings, less acne, and I suddenly get extremely painful constipation when I eat gluten that I didn't notice before. However I wasn't regular before going gluten free either; just wasn't in pain and therefore did not care. I have always had eczema and haven't noticed any at all since I have been on a gluten free diet but we have also made other changes in the last few years that are supposed to help such as a water softener, etc. My mother and brother show a lot of the symptoms of Celiac disease including constant D, lactose intolerance, and ADHD symptoms (brother is on an insane amount of medication for this). My dad shows a lot of the neurological signs of Gluten Intolerance and is lactose intolerant. He goes off of gluten when eating at home and is back on when eating at restaurants and can tell a huge difference though he just thinks is because grains of any kind are bad for EVERYBODY. In addition, autoimmune diseases have occurred on both sides of the family including RA, Lupus, a rare autoimmune liver disease, myasthenia gravis, chronic blood clotting, chronic bronchitis (was told autoimmunie related), etc.
When my youngest daughter was a baby, the doctor wanted to test for IGA Deficiency because she was very small (from birth and still is) and got sick frequently. After doing research, I couldn't see where knowing would make a difference and declined. She had some things as a baby that made us think about the possibility of being Celiac but appears fine now.
So, I am probably going to get the gene test done by enterolab to test for non Celiac Gluten Intolerance just for peace of mind.
So... if a person is IGA deficienty, are their IGA levels just a flat zero or could it be very low?
My blood results were:
Tissue Transglutaminase Ab, IgA 0.1 Normal <7 U/ml
Gliadin Peptide Ab, IgG 2.9 Normal < 7 U/ml
Gliadin Peptide Ab, IgA .5 Normal < 7 U/ml
I have a great doctor who I'm sure would have looked into IgA deficiency if she thought it was a possibility but I just thought I'd check since you guys seem to know so much.
Thanks in advance.
More Sensitive Now?
in Coping with Celiac Disease
Posted
I thought I was gluten free for most of the past 3 months and saw massive amounts of improvement with every complaint I've ever had. The first thing I noticed was that after a month on the diet, I started eating cliff bars. After a few weeks, I realized this was the cause of my brain fog and haven't had any since. Recently, I've started not feeling my best (constipation, extreme fatigue, muscle aches, etc). For the two days, I've been having salsa on my eggs and I've been feeling bad again particularly with constipation. The thing is, I did feel better from the beginning of the diet and I've been eating this salsa the entire time with a two week or so break before this reaction. I'm going to call tomorrow and find out the gluten content (tomato paste and natural flavoring) but is it possible that I'm getting more and more sensitive? I mean literally this morning, I ate the salsa (on eggs) got a tummy ache after suffering all day yesterday with painful constipation.
As far as I know, I'm only gluten intolerant (self-dx) rather than Celiac.