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lbsteenwyk

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    I am a registered dietitian who works extensively with celiac patients. I'm heavily involved with 3 support groups, one adult group that I direct, another that I serve as nutrition advisor for, and the local chapter of R.O.C.K. My father has DH and my 4 year old daughter has CD, diagnosed by symptomatic improvement on the GF diet.
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  • TinaMarie

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  1. KayJay:

    Are you feeling any better? You are taking Zofran, which is a pretty good anti-nausea med. If it's not working for you, you should let your doctor know, the dose may be able to be adjusted.

    Also, get ginger root, dried ginger or ginger tincture. These will be much more effective than gingerale. Doses for nausea are:

    - 250 mg of dried giner 4 x day OR

    - 1 tsp fresh ginger root boiled in 1-2 cups of water and taken as a tea up to 4 x day - you can sweeten it as needed. OR

    - 1.5 - 3.0 mL of ginger tincture by mouth up to 4 x day.

    You should be able to get any of these at a health food store.

    You could also try Vitamin B6, it has been shown in studies to be about as effective as ginger. The dose is 10-25mg 3 times a day.

    I hope some of this helps and you feel better soon. :)

  2. Angie:

    I've been using Betty Hagman's Bread Recipe - I think you can find it in the recipe section of this website. You need a bread machine to make it, because the dough is very thin. I've made a couple of changes to the recipe which I think make it better:

    1) use buttermilk instead of the 1 cup milk plus 1 tsp vinegar (make sure your brand of buttermilk doesn't have any modified starch)

    2) I add 1/3 cup ground flax seed.

    If your boys want "white" bread you can leave out the flax seed, but honestly, it gives the bread a much better taste. My 3 yo daughter loves this bread and she is a pretty picky eater!

    Good Luck :rolleyes:

  3. Thank you, everyone for your responses. I will cut out the oats for good. I am sad, because she loves oatmeal and is such a picky eater. She has been asking for a bowl of oatmeal all week; fortunately I've been able to distract her with something else. Does anyone know if Oats purchased in Europe or the UK are less likely to be contaminated? I've read that somewhere.

    My father has DH, but my daughter's rash does not look like his, maybe because it is not severe enough. My father suffered for 15 years before going gluten free and having a miraculous recovery. He still can't get a definitive dx of celiac disease though. The doctor's in his small rural town don't seem to know what they are doing. He had both skin and GI biopsies that were negative, but I honestly don't think the docs knew how to read the results. He's elected to stay gluten free, regardless, b/c he has obvious reactions whenever he's exposed to gluten.

    Does anyone know where I can find a list of gluten free soaps, shampoos, etc. Maybe there is already something on this website, I haven't looked.

    Again, thanks for your responses.

    Laurie

  4. Hello: I am new here. I have enjoyed reading everyone's posts and am learning a lot.

    My 3 yo daughter has been gluten free for 9 months. I have been letting her have oatmeal, which she loves, because I read several research articles saying that oats seem to be okay in celiac kids diets. Now I am wondering if she is getting contaminated oats. She doesn't have any GI symptoms, but she has been developing a itchy rash over the past several months. Her ped says it is eczema and gave her Elidel (sp) cream use. Her rash is bilateral on backs of knees, inside elbows, stomach, shoulders, and especially bad on her bottom. She never had skin problems before, her celiac symptoms were GI related. I did take her off oats for a while and the rash seemed to improve, but almost immediately after I gave her a bowl of oatmeal, she got worse again. I have a hard time getting the medicine on her, so it's hard to tell if it is helping. I have 2 questions: 1) how do other parents feel about allowing oats in your child's diet; do you feel they cause symptoms? 2) has anyone else had a child who also had a similar rash and did you feel it was related to the celiac disease?

    Thanks for your input. :)

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