beksmom
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For some reason i have become bloated, and only able to have a bowel movement every four plus days ?? Prior to being on gluten free diet (since Dec 2009) I was the most regular human in the world, my b m were faithfully every morning. Any suggestions or advice?
Thanks for any and all input,
beksmom
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I just want to thank all my friends hee on this forum for throwing out your advice and giving me some directions to try. I love you all and will be keeping you posted as tests are done.
God Bless!
Beksmom
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That is a good point i will ask my doctor to run a panel on food allergies since i've totally changed to 100 percent gluten free maybe i am over exposing myself to an ingredient that i now am allergic to. Who Knows ? But it certainly wont hurt. If you come up with any other thoughts please let me know.. Have you ever heard of anyone with airborne issues ? Or is that a far fetched possibility? They also said they cant do skin testing for airborne allergies until this episode ends, otherwise i can stop breathing right now, its too dangerous during the flare up.
Once again , thank you soooooo much for giving me some directions to go in and giving me hope,
Beksmom
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I live in Mt Shasta, CA Its Northern California about 2hours from the Oregon border. I was thinking airborne because i have been gluten free since December and i'm thinking maybe now that i'm not ingesting wheat maybe my body doesn't have it in my system to resist it in the air??? i really don't know i'm just starting to get scared nothing has changed in my home enviroment and have not changed soaps or cleaners?
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Why do you think of air borne wheat? Where is it coming from? Any thoughts from the doc's on what is causing the allergic type reaction? Not doubting you, just trying to help you investigate.
Also, if you dont't mind - where do you live ? And is it city, suburb, country?
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It is Saturday June12, 2010. I have been in and out of the hospital for four days with severe hives and back to back anaflactic reactions. Ive been put on high doses of prendisone, benedryl, my potassium is low so they put me on klor- con 10 mg. ive had to use an epi pen once already and theyve had to give me it twice at the hospital. Being that i have taken all wheat out of my diet can this be a new serious problem to be resolved due to airborne wheat grass. anyone please help/advise.
thank you
beksmom
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What is cc? And was your abdomen severly tender?
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I was in a health food store last week and asked if they had a gluten free section. The employee actually handed me a list of all of the products that they claimed to be gluten free. As i explored these products i discovered that 90 percent of them had printed on there ingredients that they were made in a place that also has wheat, and that they could be cross contaminated. I actually went to the store manager to inform them that they should not include these items on the gluten-free food item list that they hand out. He laughed at me and said that,that would mean they didn't carry hardly any gluten free products and took my information too lightly. It saddens me to see these type of stores with a lack of understanding pf the importance of the true definition "Gluten Free".
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I have celiac spru, PLEASE HELP. After eating a quarter of a nestle crunch ice cream bar yesterday afternoon and am still having problems tonight form it. I am VERY bloated and my intestines hurt to the point that just touching my skin hurts. Is this normal and if so how long am i to be like this? I was informed it contains barley malt, MAJOR OOOOPS ! I'm still learning. Hopefully someone can give me some comfort.
Thank you
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I want to thank you for you response. It gives me confidence that i am doing the right thing . My son has an appointment this Friday with a surgeon for consultation for the biopsies . Do you have any advice as to what i should say if he tries to say its not necessary at this time. I really feel i want to be on the safe side and not allow him to get to the stage that i"m at now. It has been a month so far on the strict diet and i'm still unable to gain a pound, they are going to re check my weight in two months, and my vitamin D is still depleated.
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A couple weeks later... I'll reiterate, YES
I'd suggest an endoscopy also, just to be 100% sure.
I didn't show ANY symptoms when I was 19, but was tested because it runs in my family and my sister was just diagnosed. It took a few years, but my symptoms finally showed. In the mean time, my body was not healthy and I was promoting cancer. I'd get him adjusted to the gluten free diet now rather than waiting until he is in bad shape and has symptoms.
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Since you don't know what kind of healing you'll have yet, federal social security is probably not an option - it's for permanent disability and you don't know what is permanent and what isn't yet.
I'd seek more state assistance, which would be through your county Job and Family Services. Sit down with a caseworker and lay it all out on the line: $200 is not enough. There's a lot of help if you have a child. Have you looked into BVR - the Bureau of Vocational Rehabilitation? There's also a lot of tax money out there aimed at helping people return to work - but based on their physical abilities. At the BVR, they'll do assessments based on what your abilities are now and try to match you up with current jobs or provide training for jobs that fit your abilities. (For example, if a construction worker hurts his back, the BVR may help that worker get training in computer repair work. I've known people with Multiple Sclerosis work with the BVR to see what options are out there if their MS interferes in their ability to do the work they were originally trained to do.)
These programs are out there in order to get USED. So do some knocking on some office doors and find out who can help you. That's what they're there for!
- Stacy
Thank you for the advice . I will look into BVR for sure. Hopefully they can help. : )
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Thank you for posting this -- I hope your question will receive many replies. I'll be watching! I have an interest in this from an HR perspective as well as a personal one.
From a HR perspective I would just like to ay that I hope more and more people become aware and educated re: Celiac Disease. This is a manageable disease, however the other complications that come along because of it are not always manageable. I'm finding this to cause alot of changes in my life, my families life, and of course my working abilities. It is very frustrating to say the least. My boss is begging me to come back asap however my health hasent improved to that ability yet. I want to work but physically cant yet. I feel like im having to choose between health/and employment. Hopefully this post will open more people up to the real life challenges that are being dealt with.
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Although celiac's may be the cause of your problems, it sounds like the osteopenia and osteoporosis (among other things) cause your pain and compromise your ability to work. If you see an orthopedic or pain management physician for those conditions, ask them how they would fill out paperwork from Social Security asking if, in their opinion, you can work any job. Social Security sends forms to any medical person you've seen asking them if, in their opinion, you can sit for long periods, stand for long periods, concentrate for long periods, etc. Another question to consider is - now that you've been finally accurately diagnosed, will the gluten-free diet slowly start to reverse any of this or not? What are your physicians telling you? What would they say to Social Security? Would they say you'll be 'cured' in 9 months? If so, you won't be eligible. If they'll say that, unfortunately, too much damage is done, you may be eligible.
You'll get your best answers from your doctors and from Social Security. Some people abuse the system, some people are eligible but get denied. Attorneys sometimes help, as long as you're prepared to share your money with the attorney.
I am waiting for approval for medi-.cal and will for sure go to an orthopedic at that time. My primary dr. doesnt seem to be very educated on the entire Celiac disease and the Gastro seemed to be very busy but hopefully my 1 month follow up since biopsies with him will go better.
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Although celiac's may be the cause of your problems, it sounds like the osteopenia and osteoporosis (among other things) cause your pain and compromise your ability to work. If you see an orthopedic or pain management physician for those conditions, ask them how they would fill out paperwork from Social Security asking if, in their opinion, you can work any job. Social Security sends forms to any medical person you've seen asking them if, in their opinion, you can sit for long periods, stand for long periods, concentrate for long periods, etc. Another question to consider is - now that you've been finally accurately diagnosed, will the gluten-free diet slowly start to reverse any of this or not? What are your physicians telling you? What would they say to Social Security? Would they say you'll be 'cured' in 9 months? If so, you won't be eligible. If they'll say that, unfortunately, too much damage is done, you may be eligible.
You'll get your best answers from your doctors and from Social Security. Some people abuse the system, some people are eligible but get denied. Attorneys sometimes help, as long as you're prepared to share your money with the attorney.
I actually want and desire to go back to work. I enjoyed my job very much. I,m just a little concerned and trying to do some research. The gastro that did the biopsies said my vili's are severly damaged and are not sure but hoping being gluten free might reverse at least some of the damage. " I hope ! " And my doctor said there is no reversing bone damage and that the best they can do is at least slow down the progression. My major stress is my finances du to the fact i became a single parent 9 months ago and disability is only giving me 200. every two weeks. OUCH !!!
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Stacy, I apparently have been Celiac for my lifetime just constantly misdiagnosed. They removed my ovaries a yr ago saying i must have chronic ovarian pain and am on hormone replacement now. I have lost over 23 pounds, I have osteopenia in my spine, osteoporosis in my lumbar, my hips are shrinking and thinnned out. My vitamin d is depleated, I've gone through six ferritin infusions because i had a count of 7 when normal range is 100-500.And am also malnourished. I have sleeping problems due to chronic back and hip pain. I cant stand long enough to cook a decent dinner without bbeing in severe back pain for the rest of the evening. I cant sit for too long before i have to start constantly reposition my self. Please give me some advice, And I have been on reg disability for 2 months. Thank you for anything you can help with. Debbie
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So at what degree of being Celiac is a person considered to be disabled ? Or not ?
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My 13 yr old sons labs came back low positive but he has no symptoms should he still go on a gluten diet??
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Always read the labels on everything. Some manufacturers change ingredients quite frequently, and their labels should reflect this. A product may be gluten-free one week, but not the next. It just all depends. Getting used to what to avoid is the first step. Sounds like you're headed in the right direction
TANKS FOR THE TIP FREEATLAST I APPRECIATE ALL THE HELP i CAN GET.
:)p
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The gluten is in wheat, rye, and barley. Lots of soy products have gluten in them, though, like most soy sauces. So the doctor may have misspoke, but it's a reminder to check those ingredients lists on everything. It's probably worth a phone call to confirm if soy was tested for separately for some reason.
Thank you Neroli you are probably right because i don't think i'm allergic to soy so it was a reminder that some soy foods have gluten in them.
Do you Know which soys have gluten, or just need to read, read, read ? ha ha Also is soybean the sameas soy? Please don't laugh but i'm just getting a little causious. Debbie
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I'm a little confused. . My gastro dr said NO Gluten,Wheat,Soy,or Barley. Are these all celiac no no's or is it just gluten. I have noticed in the gluten free mall that some of the foods contain soy in the ingredients. Please help me on these ingredients are any of them or not ?
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My 13 yr old sons doctor told me today that his lab work came back showing celiac "mild" and that he feels he is boarderline ? Should he have the biopsies done? and should I put him the gluten-free diet no matter how those results come out? I am a newly diagnosed celiac with severe damage to my vili. I have had to get six infusions of ferritin to bring level back into a low normal range. My vitamin D is depleated, and am also malnurished. Also dealing with osteopenia. Any direction help for my son would be appreciated.
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Im a mother of three boys and two have the boys already been lab tested for celiac since i have it. My youngest 13, tested boarderline and my 17 yr old, tested negative.
Two questions :
1. Since my youngest one tested negative does that mean he will never have celiac, or should he be tested anually?
2. Can someone give me a chart showing me the numbers for : normarl-boarderline-positive-severe . I have an appointment with our family doctor in two days and he doesnt seem to be very educated on this disease so if i get the numbers it would help me going into this appt.
Thanks for everyones help : ) BEKSMOM
Bloating & Bowel Issues
in Related Issues & Disorders
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please let me know how your results come back. I'm really curious and all info might help m,e when i see my doctor again. I do have regular bowel movements again every morning but am still very bloated and dealing with gas!!
thanks
beksmom