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kareng

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by kareng

  1. kareng
    Wow! I was a smart ass 7 years ago! And look how young I looked! ? skin is porous to a point- obviously not everything can pass thru all the layers of the skin. And gluten proteins are too large for that. People with Celiac are not a “ gluten allergy”. I know many people use that term, but it’s not exactly true.
  2. kareng
    That’s a good idea! It works for getting your car into the dealer for an oil change, too! ?
  3. kareng
    I have never had a problem with McCormick spices. I have no idea what you used to test them or if you used it properly.
  4. kareng
    I didn’t mean you were a child - I just meant maybe that would be enough to diagnose you like they do with kids.
  5. kareng
    So,... the blood tests were positive? By a lot or a little? Sometimes, with children, they will diagnose based on a high Celiac blood test, physical response to a gluten-free diet and a blood re- test that drops significantly,
  6. kareng
    Yes and no. They can also be from other things. I hope the doctor tested the basics - thyroid, B12, iron, CBC, etc. my point is- a refersl to a dietician, for help with a gluten-free diet, is a bit premature. Suggesting you go gluten-free ,before you are tested for Celiac, is irresponsible of that doctor . If you have a great response to the...
  7. kareng
    Sure. Celiac is possible. You need to remain on a gluten containing diet to be tested for it. A dietician can’t test you for it. Any doctor can order the basic Celiac panel blood tests.
  8. kareng
    In the US, for food to be labeled gluten-free , it must be below 20 ppm. Many are tested at 10 ppm or less.. That does not mean they actually contain any gluten. Less than 20 ppm is considered safe for Celiacs. I am sorry, I do not have time right now to explain this. I know it has been explained many times in this forum. Maybe you could find the explanation...
  9. kareng
    But that does not govern restaurants.
  10. kareng
    What country do you live in ? The government doesn’t test any restaurants in the US
  11. kareng
    Like gluten-free said - that is not a test to see if you have Celiac. It’s usually not done by itself- so maybe the rest of the test panel hasn’t been posted yet?
  12. kareng
    Sounds like you are allergic to wheat or something in those restaurants on top of your Celiac. Celiac is not an allergy, so anaphylaxis is not part of Celiac. I hope you can get an epi pen.
  13. kareng
    I have never seen gluten in OJ. Some companies lawyers have told them, that unless they test a product, they cannot print gluten-free on the package. I have seen companies that will put gluten-free on something like OJ and not test it. They don’t legally have to test it if it has no gluten ingredients or reasonable chance of accidental gluten. Why n...
  14. kareng
    I moved this here as it didn’t belong on someone else ‘s topic. To make a new topic, go to the main forum page that shows all the different groupings for topics. One way to do that is to go to the top right with the 3 lines - click and choose “ forums”. Then go down to the correct section - for this you would chose the technical board issue section. Click ...
  15. kareng
    I am glad you were able to get your tests closer to home. Let us k own how it goes.
  16. kareng
    My experience has been that people who think they have no “ Celiac symptoms” actually do. They might not be Gut related. Or they realize that some things they thought were normal, digestive-wise, have gotten better. Not all Celiac issues are gut related https://celiac.org/about-celiac-disease/symptoms-of-celiac-disease/
  17. kareng
    Cross reactive coffee - your body thinking coffee is gluten is just not true. Its a myth that got started and won't die. I can tell you that I was at the International Celiac Disease Symposium a few years back and the doctors laughed when this myth came up. We were going through a lot of coffee at this conference! https://www.cureceliacdisease...
  18. kareng
    I couldn't follow that. I wasn't sure if he had positive biopsies , when he was eating gluten-free, etc. What she said! I agree and would say the same thing. And it is possible to have other issues along with Celiac. As for gut pain on a gluten-free diet - often people drastically change their diet - it can be hard on the gut. You could...
  19. kareng
    I’m sorry- can you summarize ( in 3 -5 sentences if you ever were tested for Celiac while eating a gluten diet and the result. Then what is the question you want to ask?
  20. kareng
    This probably explains better than me- https://www.beyondceliac.org/celiac-disease/myths/ Read the whole thing but here is a little part- “... If you find a product that is labeled gluten-free but bears a warning like this one, you can rest assured that the product must comply with the gluten-free labeling law. E...
  21. kareng
    In the US, if the product doe not contain gluten, they can say gluten-free. Just because there is wheat in the “ facility” does not make the product not gluten-free. “Facility” is a broad term. For some companies it means in the same campus - they might have 4 buildings in the facility. Some have separate rooms in one big building. If the manufac...
  22. kareng
    I never liked the crust anyway! You can also take some frozen hash browns and thaw and press in an oiled pan. Give them a light spray of oil and bake them for a few minutes and use that for your “ crust”.
  23. kareng
    Probably not. Not many products actually contain gluten.
  24. kareng
    I don’t know much about Lupus - could your regular doctor order the test?
  25. kareng
    They are gluten free. But they are fatty and salty and contain corn - all of which can bother someone’s digestive system.
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