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kareng

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by kareng

  1. kareng
    That might not have been enough time to get good results. It takes a while for the antibodies to build up enough to show in the blood. The biopsy can miss the parts that are bad. https://www.cureceliacdisease.org/faq/what-is-a-gluten-challenge/
  2. kareng
    I am probably still going to go with the Celiac experts who interpret these blood tests over the laboratory.
  3. kareng
    Were you eating gluten free when you were tested for Celiac?
  4. kareng
    But , if you read the link, the numbers need to be much lower to effect Celiac testing.
  5. kareng
    They wouldn’t be deficient if they are still in the normal range. But this test and it’s range was not developed for Celiac disease. So the ranges aren’t relevant to Celiac. That’s why the deficient for Celiac testing is different then the range printed on the test result.
  6. kareng
    Another thought - what if it were cancer or diabetes? Would you not want to help with that? Really this is soooo much easier to deal with. think about out how it is for her to deal with the world now. Shouldn’t you , her family , be her safe place ? sorry if this seems harsh but I have seen too many teens and college kids who can’t...
  7. kareng
    Wait! What? Your kid has a serious disease and you are annoyed by washing? You don’t have to keep part of your kitchen gluten-free, but you and every other person over 15 who fixes food or snacks, must be careful. Another thing to think of is which of you have Celiac ,also? There are lots of foods that are naturally or easily made gluten-f...
  8. kareng
    You just tell them. And you definitely don't eat the stuff. You can explain that there is no way for them to make you safe food. Or that you are "soooooo sensitive". Or your doctor said.... Or have your spouse, older kid, mother, etc tell them for you. If they just give you these things once a year at Christmas, then you can thank them and give...
  9. kareng
    I use molasses. It’s gluten-free. It’s just sugar.
  10. kareng
    I wouldn't do that on purpose until you have the baby. Just in case you really have Celiac and could hurt the baby.
  11. kareng
    I think those types of “ doctors” tell a lot of people they are gluten sensitive. It’s the current fad. The good thing about these types of diagnosis is that, because they are not based in medical or scientific fact, you don’t have to follow them when it is inconvenient or not fun. Have fun on your trip.
  12. kareng
    What are the ingredients? That might tell you what you need know
  13. kareng
    whey in cream cheese is milk. It would not contain gluten. If you bought one of those whey protein powders, they might contain gluten. But that is not the same thing.
  14. kareng
    I am just going to answer your question about trusting a non-Celiac. At the gluten-free bakery I work at, we have people working there who do not have Celiac. Mostly we try to get people who have some connection to food allergies - either in themselves or a family member. But a couple of our best employees do not eat gluten-free outside of work. No gluten...
  15. kareng
    Yes those are often symptoms of Celiac. Any doctor can order the Celiac blood panel and get you started before you get to the GI doc.
  16. kareng
    I think you are confusing our common usage of the word “gluten” with the more technical usage of the word “ gluten”. In the case of Celiac , we use the word gluten to mean the gluten found in wheat, rye and barley. Not the gluten in corn, for example. Corn and rice are “ gluten free” For a Celiac.
  17. kareng
    Some labs use a bit different version or measurements in their tests. But there is a small amount of error to the test or a small amount of normal antibodies. That’s why normal is not 0 only. There are other things that can raise them slightly but a large increase is usually only due to Celiac.
  18. kareng
    Some American chains that you might find there and are known for good gluten-free practices - Chick Fil A Outback Steakhouse PF Changs Bonefish grill REd Robin (fancy burgers, gluten-free fries) Margaritaville BJ's Brewhouse Those are some I can think of right now. You can hit a grocery and get a few things to munch...
  19. kareng
    Are you on FAcebook? There are some Orlando/disney groups. I don't know what the shopping and dining area is called that is outside of Disney but run by Disney? It usually has a lot of good places for gluten-free.
  20. kareng
    If you are on Disney property, you should have no trouble. Lots of gluten-free options. http://www.alexisgfadventures.com/p/orlando-restaurants.html
  21. kareng
    I assume you will get the kids tested on their next doctor's visit?
  22. kareng
    The thing is - he does have health issues caused by Celiac but he refuses to see any of his health issues - that's how it sounds to me. He has a thryoid issue, fatty liver and intestinal issues that he isn't treating. He probably can't get new life insurance with untreated Celiac. Maybe you could ask him to get some more? Maybe being denied would be part...
  23. kareng
    That’s way too much for most of us to even read - much less follow all the links. Maybe you could condense a bit and just give info on the exact topic? Skip your religious views and ideas on other topics? I say this because I know you want to help people , but going off on multiple extra topics doesn’t get read by most people. And then they miss the imp...
  24. kareng
    That's not how that works. "certified" means the company has bought a right to use a seal from a certifying company. The manufacturer agrees to a certain standard that the certifying company has set. Some are less than 10 ppm. The company tests per the schedule of the certifying organization. The FDA doesn't approve any gluten-free foods or even test...
  25. kareng
    I dont under stand - having a good serum IGA only means you can make what is looked at on an IGA based test. And a 213 is usually in the normal range ( some labs might have a bit different range than others). I am not sure there is a problem with your Celiac results. They sound negative or maybe a tiny bit elevated ( not sure of the lab’s normal l...
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