Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

kareng

Advanced Members
 View Profile  See their activity

  • Posts

    15,640

  • Joined

  • Last visited

  • Days Won

    300

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by kareng

  1. kareng
    The TTG wouldn't be elevated by non-Celiac gluten intolerance
  2. kareng
    I use Sensodyne. Most people don't care if a toothpaste is gluten-free. Why add tot he cost of the product by testing?
  3. kareng
    That is what you would expect after years gluten-free. A negative Celiac test.
  4. kareng
    What test was 177? Serum IGa should be a high number as it is not a measure of the Celiac antibodies. It is used to make sure you can use an IGA test - basically to see if you can make "IGAs". What was your TTG numbers? YOu would expect those to be in the normal range for a Celiac on a strict gluten-free diet for years
  5. kareng
    Maybe you are allergic to melon? Food allergy testing is not currently, very accurate.
  6. kareng
    Thanks. ?
  7. kareng
    So, providing the correct info from actual Celiac researchers drives you away? I hope I have read that wrong! I would love it if people on blogs only posted correct info, but they often don’t. So I think going to a legitimate source is best. They have lots of good info on the celiac center of Chicago site.
  8. kareng
    There are legitimate places that dispute this. Unfortunately, people like to believe what they read by people who claim to know what they are talking about and won’t even read what we have written here. All they will see is the claim of cross reactivity - they won’t bother to read beyond that part.
  9. kareng
    Even better - the last time I talked with their rep at a Celiac conference she admitted about the gluten in the coffee , showed me the reports of the study that showed the gluten contamination , and still tried to say the cross reactive thing with coffee is legit! Ugh!
  10. kareng
    And because no one will actually follow the legitimate link I gave and read it - here is what it says- “There is not yet reliable data about cross-reactivity. As for the alleged possibility that many gluten-free foods or drinks (such as coffee, milk, orange juice, etc.) would trigger symptoms in celiac individuals due to hidden antigens mimicking gluten o...
  11. kareng
    There is no science to this nonsense that our body sees coffee as gluten and reacts with an antibody response. The company that first started this nonsense to sell “lab tests” actually admitted that they tested people using some instant coffee that was found to contain gluten. But people love a good conspiracy theory and to pretend to be experts on the...
  12. kareng
    Maybe 5 years ago when this was posted they did not say “gluten-free”? Products change over the years
  13. kareng
    Giving your doctor info from actual doctors might help - https://www.cureceliacdisease.org/faq/what-is-a-gluten-challenge/
  14. kareng
    To answer your title question - I am sure in the first month or so I or my family messed up 4 or 5 times. Most of us do not eat out for a few months unless it’s a dedicated gluten-free restaurant or one with exceptional gluten-free practices. Eating food someone else prepares isn’t really a smart move in the first few months. You have to learn how to ...
  15. kareng
    What I am trying to say is - it is difficult to be as gluten-free as a Celiac needs to be. So why not find out if that is necessary? If it’s actually a FODMAP problem, your life will be easier. You don’t even know if you have intestinal damage . Celiac can take months or years to heal in a strict gluten-free diet.
  16. kareng
    Since you seem to be reacting to things that are gluten-free - like balsamic vinegar. Maybe gluten isn’t the real issue? Go back on a gluten diet and get tested for Celiac, then you will know. If it’s not Celiac, you could explore a low FODMAP diet- that usually has quicker results than a gluten-free diet for Celiac
  17. kareng
    Show her this info from actual doctors that are experts in Celiac before you take a blood test. I don't want the doc to say you don't have Celaic because of an invalid blood test. https://www.cureceliacdisease.org/screening/ Find out for sure Antibody tests are accurate only when a patient is on a gluten-containing diet. Those...
  18. kareng
    I don't think the whey is a concern if you are mixing it with milk? The Thrive looks more like you add water but Nestles you add to your milk? The Nestles looks gluten-free, but for some reason says "may contain wheat" - on the website
  19. kareng
    If you have an issue with potatoes- don't eat them. You could have some sort of intolerance to potatoes. There is no law that says you have to have fries or chips. Probably better off without them.
  20. kareng
    Then your best bet is to call the company and get them to tell you ingredients. Tell them its about an "allegic reation". They may not want to tell you but you can ask specifically if it contains - "wheat, rye, barley, malt" and they can check the list. I am betting its just a bunch of chemicals added to the wood.
  21. kareng
    How would the wood chips gluten your food? I really can't see why they would have gluten in them. Aren't they just wood? You aren't laying the food on them? You are probably struggling to find info because it isn't a Celiac concern?
  22. kareng
    More likely than wood chips having gluten & getting it on the food would be the fact that the grill surface may have toasted buns or something like that and have crumbs on it. What else did you eat? Did they marinate the meat? Did they wash the strawberries in a colander they drain the pasta in? So many other and more likely possibilities.
  23. kareng
    Use whatever you want to. There are very few or no cleaning products with gluten. Gluten is only a problem if you eat it. Gluten wouldn’t clean well. It’s glue- like
  24. kareng
    I use both of those products. Many companies do not want to list "gluten free" unless they test for gluten. But why increase the cost of a product for the small percentage of people that want it to say gluten-free on it? Also, there are laws in some countries that things that are naturally gluten-free, should not be labelled gluten-free.
  25. kareng
    Beer made with barley is not considered gluten-free. gluten-free beer are made with different grains. The ones where the main ingredient is sorghum will have a sweet taste. It will depend where you live what gluten-free beers are available.
×
×
  • Create New...