-
Posts
15,640 -
Joined
-
Last visited
-
Days Won
300
Content Type
Profiles
Forums
Events
Blogs
Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by kareng
-
Is TriLyte colonoscopy prep gluten free?
kareng replied to Neo's topic in Gluten-Free Foods, Products, Shopping & Medications
Our GI uses Miralx and Gatorade. See if you can do that. It’s the same thing -
Is gluten detox a thing?
kareng replied to ErinRiel's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
You aren’t really “ detoxing” gluten. It doesn’t sit around in your cells or your intestines and have to be released. The whole faddish notion of “ detox” is not really correct. But - it can take quite a while to heal. As you heal, your GI response to foods might be a bit different over time. Also, many people drastically change what they eat - ... -
Confused by Results
kareng replied to Sharon Barrett's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
“Rule out x” does not mean they have actually “ruled” it out. This is a phrase that doctors use to justify a test- they wanted to do the Endo to see if you have Celiac. This cannot be a final diagnosis- it’s just the reason for a test. for example - 5 year old brother talks 2 year old brother into jumping off the top of the sofa. Now 2 ye... -
The What's For Dinner Tonight Chat
kareng replied to jess-gf's topic in Gluten-Free Recipes & Cooking Tips
We made Krusteaz cinnamon coffee cake for breakfast! I have done them as muffins, too. Very tasty. Plenty of topping. You could add a simple powdered sugar, milk/water and vanilla glaze drizzle, but they don’t really need it. -
The What's For Dinner Tonight Chat
kareng replied to jess-gf's topic in Gluten-Free Recipes & Cooking Tips
Sounds great! We are making hamburgers on the grill and some fries in the air fryer. -
I agree with Cycling lady. And the title of this thread is “sourdough and Celiac”. So of course we are reacting to the fact that someone is trying to say sour dough might be safe for Celiacs. I have seen several instances of people who make and sell bread trying to scam Celiacs and other gluten-free people by saying that sour dough has no gluten. S...
-
my 1 year old has celiac gene
kareng replied to PersianCeliac's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Back to the original poster- both of my boys ( in their 20’s ) have Celiac genes. I have Celiac. They have been tested a couple of times, and are negative. They have no symptoms but are aware of what to look for - and not just the digestive ones. it isn’t the worst disease a kid or adult could have. It can be treated with food! There is no medicines wit... -
my 1 year old has celiac gene
kareng replied to PersianCeliac's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If your son has Celiac - he still has Celiac. It doesn’t go away. I actually thought you Would know that. https://www.cureceliacdisease.org/faq/whats-the-difference-between-active-and-inactive-celiac-disease/ -
Have fun making bread but it is still not gluten-free for Celiacs. gluten-free wheat starch is a thing but it is not what you are playing with by fermenting bread. So trying to say it’s the same thing is incorrect.
-
How long does it take to know if you have been glutened?
kareng replied to 97133620's topic in Coping with Celiac Disease
And here’s another thing to think about - maybe the “ reaction” has nothing to do with gluten. Unless you know you ate something questionable, it’s not always easy to tell. Mild food poisoning, a virus, eating too much, etc. can seem similar. I know people swearing they were glutened by something gluten-free but they just got excited and ate... -
How long does it take to know if you have been glutened?
kareng replied to 97133620's topic in Coping with Celiac Disease
There is no one answer for this. And it may even change for you from one time to the next. when I was first diagnosed it seemed to be about 4 hours. Now I think it’s more like 12. But I so rarely “ get glutened”. People who claim to know almost instantly, probably aren’t having a Celiac reaction to gluten. Gluten has to leave the stomach and ent... -
I don’t know where you live, but a lot of cities have Facebook groups. That’s a good place to ask about doctors. Maybe someone will have a dermatologist that diagnosed them. you might have to try variations of “ gluten free Kansas City”. Or “ Celiac Kansas City”. Or “ celiac northeast Kansas”. That sort of thing. Just using my city for ex...
-
Not Healing
kareng replied to CharlesBronson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I don’t see any rudeness from anyone toward you. I just see people with lots of experience as Celiacs trying to help. Why scare people or make their lives harder than it needs to be? Most people cannot just replace the whole kitchen and appliances. And yet, they heal. -
DNA testing only excludes Celiac because just having a gene for Celiac doesn’t mean you have Celiac. It has to be “ turned on”. So about 30% of people have a gene related to Celiac - but only about 1% actually have Celiac. If you don’t want to do a 12 week gluten challenge for a blood test- I would say “don’t”. Just stay very gluten-free. From t...
-
The What's For Dinner Tonight Chat
kareng replied to jess-gf's topic in Gluten-Free Recipes & Cooking Tips
Thanks. I think these were not the freshest tortillas. Layering instead of rolling tastes the same but isn’t as “ fun” as rolled. -
The What's For Dinner Tonight Chat
kareng replied to jess-gf's topic in Gluten-Free Recipes & Cooking Tips
So I made the veggie enchiladas- I cannot for the life of me keep the corn tortillas from breaking up when I roll them! I briefly microwaved them in a damp towel. If I made it again, I would just make it in layers with flat tortillas. this recipe seems simple but needs a lot of bowls, etc. lots to wash up after . And it’s a bit bland. If I... -
The What's For Dinner Tonight Chat
kareng replied to jess-gf's topic in Gluten-Free Recipes & Cooking Tips
Sounds yummy. I am trying a new recipe - https://www.health.com/recipes/veggie-enchiladas-with-creamy-poblano-sauce -
Celiac Rash DH - Grown Alchemist Brand
kareng replied to Jenna1028's topic in Dermatitis Herpetiformis
But I get my info from actual Celiac Doctors. I didn’t make it up. Sorry, I should have said “ up to a third”. “The gene test does not diagnose celiac disease. It places an individual into an at-risk group for celiac disease, which indicates the individual should be closely monitored with antibody testing in the future. When the genetic predisp... -
Celiac Rash DH - Grown Alchemist Brand
kareng replied to Jenna1028's topic in Dermatitis Herpetiformis
About 30% of people have a gene for Celiac. But only about 1% actually have Celiac. So a positive gene is not diagnostic of Celiac. But you have a wheat allergy - so you need to be almost completely gluten-free because of it. -
Daily stomach pain and nauseated
kareng replied to Bshake's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
No. I agree with what Scott said. So much is not true in this post. -
stool test postive twice
kareng replied to lorilichterman's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I don’t know why you had a stool test instead of a blood test. But taking the actual blood test for Celiac while gluten-free is not a good idea. It tells you nothing. If you have Celiac , and are eating gluten-free, you shouldn’t be making antibodies to gluten that are found in the blood. So- the blood test would be negative. -
Holidays and eating at other people's homes
kareng replied to Golden's topic in Coping with Celiac Disease
Yes but I understand not telling her ahead. I wouldn’t want her making some gluten-free muffins but having no idea about cc or that something isn’t really gluten-free. Then she would be mad I didn’t eat them. Some people I just tell them not to make stuff and I will bring my own or bring a dish to share. It just depends on the people. if it fe... -
Holidays and eating at other people's homes
kareng replied to Golden's topic in Coping with Celiac Disease
Sounds like eating ahead might be the thing to do. Then explain to everyone why you aren’t eating. If she has some plain fruit or something- that might work. In a bigger gathering, I would eat ahead but most people wouldn’t notice I was only eating the fruit and drinking the mimosas.