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luvs2eat

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luvs2eat last won the day on May 30 2010

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  1. Reading this thread with interest, as my middle daughter who was recently diagnosed with Celiac Disease is trying to find the right combo of meds for her bipolar, which is also fairly new and SCARY (for her mom anyhow!). She's finding the whole gluten-free lifestyle hard to embrace and I'm so thankful I've been dealing with it long enough to be able to give her answers when she has questions or to direct her to where she can find the answer if I don't know.

    I'd love to hear that others feel better with their bipolar issues after being gluten-free for a while. My daughter has more GI symptoms than I did/do, and doesn't feel well much of the time... so feeling physically better AND mentally better can ONLY be a plus!!

    All this said... her doctor told her that if a food/medication says simply "modified food starch" that it means it's soy starch and that she can have it. I told her that she can't take the chance. This same doctor told her she also has a "wheat allergy"... but she felt like a croissant this morning so she ate it. "Then we're not talking about the same thing," said my daughter... "because if you have Celiac Disease, eating a croissant is not an option."

  2. Yea, I was lucky to be diagnosed so quickly... altho now I laugh when I tell people about it and say, "the first symptoms is unexplained weight loss... um... I didn't get that one!"

    When I went to the rheumatologist, he explained it all so well to me. He said that my body is like a country (I asked if that was some kind of sick FAT joke?? haha). My immune system is the army that defends my country. When I get sick, my army comes to the defense and helps me get well...

    So... sometimes when there are no germs to fight...or even when there are... the army (immune system) gets restless and starts fighting amongst themselves (autoimmune disorder). It's the immune system fighting itself!

    So, he said that this elevated ANA meant that my army was sort of poised to fight against itself if it got mad enough.

    I don't remember what my ANA number was... but the numbers go up in a funny way... sort of exponentially or something... so a big number looks bad, but really isn't.

    I'd call your doc and get a better explanation!

  3. My symptoms were unrelenting diarrhea and belly noises that sounded like wolverines were fighting in there!! I had no pains or other sickness. I thought I'd picked up some sort of parasite! The doc gave me a course of Flagyl, the med for "bugs" and did blood work and a colonoscopy. The results were SO positive, I didn't have an endo. I'd only had my symptoms for about 2 months when I was diagnosed.

    About a year later, my routine blood work for my yearly physical showed the slightly elevated ANA. My doc sent me to the rheumatologist who did more extensive blood work. So far, so good... no symptoms from it.

  4. I am certain that my sister and brother have the DH form but both refuse to be tested because there are medicines they can take for their rashes. My sister lives in France and isn't about to give up that awesome bread. I'm trying to make them understand that even tho the medicine helps the rash... their intestines are still being compromised, even if they have no gut symptoms!!

  5. I'm wondering (hope I'm not hijacking your post here!) why doctors recommend colonoscopy rather than endoscopy? My doc told me to get a colonoscopy and on that day gave me the results of my bloodwork. I went gluten-free that day... and because my bloodwork was SO positive, I didn't do the endoscopy. Wouldn't an endo be more diagnostic (biopsy) than a colonoscopy??

    Not to mention... there's no prep for an endo ('cept nothing to eat/drink after a certain time) and a really awful prep for the colonoscopy!!

    Plus... there's no way I'd gluten challenge for an endo now!!

  6. I made them this weekend so I could try it out!

    I sliced onions thinly (I'll do a tad thicker next time) and soaked them in milk (I might try buttermilk next time). Then I dredged them in cornstarch and fried 'em till they were crispy. I drained them on papertowels and hit 'em with salt and pepper while hot.

    The reason I'd go a tad thicker on the onion is that the thin slices burned very quickly.

    I used Progresso Cream of Mushroom soup... and the whole casserole was DELICIOUS!!

    I was so excited! I'm also thinking that I could even do the onions the night before and crisp 'em up in the oven before putting them in the casserole on Thursday. Whattya think??

  7. I have so NOT lost weight in the 3 years I've been gluten-free. I was diagnosed quickly too and hadn't lost weight with gastrointestinal symptoms... but I can not get this extra 20 lbs I gained after going gluten-free off!!

    At this point, I'm exercising a lot more just so I can get into a little better shape and stay flexible!

  8. I believe there is a connection. I was diagnosed with Celiac Disease in 2002 and about a year later my doc called after my routine physical and told me my ANA was elevated. She told me it was a "marker" for LUPUS, which is like the MOTHER of all autoimmune disorders.

    She sent me to a rheumatologist, who sent me for about a million blood tests (all negative, 'cept for that mildly elevated ANA) and I've been back to see him twice since. Once a year he runs the million blood tests and he goes thru my entire body systems asking tons of questions.

    I've not had one symptom of LUPUS other than that raised ANA... but he brings me back once a year to keep an eye on me.

  9. Well, my experiment was a success! I baked a loaf of Manna from Anna bread and cubed and toasted it. Then I added sauteed onions and celery with Poultry seasoning and sage and chiken broth and stuffed that bird.

    The only difference I noticed between this and the good old Pepperidge Farm stuffing is that gluten-free bread doesn't get "glue-y" when it's moistened. It stays in its shape well. I'll add some more spices and a tad more broth.

    Now I know I can stuff the turkey and everyone will be able to enjoy!

    PLUS... I french fried my own onions (dipped in milk and cornstarch... not hard at all) so I can make green bean casserole!!

    I'm a happy camper!

  10. I must be Manna from Anna's greatest fan! I order 2 cases at a time and make a loaf once a week. I have this nifty knife that slices uniform slices and I package them and freeze them and make a sammy every morning for work. Or I cook them in English muffin rounds for awesome rolls.

    Tonight I'm going to make a loaf and this weekend I'm going to make stuffing for a chicken to see if it'll work in the turkey in a few weeks.

    I use my big Kitchen Aid mixer to make it... never tried it in a bread maker.

    I probably tried 4 different bread recipes with lots of different kinds of flours and none was any good.

    Manna from Anna rocks!!

  11. I think this is a fabulous idea. Even if Oprah has talked about it before... just mention in your email how MANY new members we get every day on this site and how many MORE are diagnosed every day.

    She might even take the opportunity to plug some of the yummy foods available to us.

    Count me in on the "F" week!!

  12. I usually make a sandwich every day with my Manna from Anna bread which I bake and slice and freeze in bags with 2 slices each. I toast the bread and make a ham and swiss or any kind of sammy I want. That, plus a banana or apple is my awesome lunch every work day.

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