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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by cap6
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I use Simple Green but honestly, I do not know of a product that does have gluten. You're pretty safe in this area!
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It sounds like you have made your decision and all I can do is wish you luck. You already have multiple autoimmune diseases, why take the chance of collecting more? I speak from eight years of experience. It is quite easy to eat gluten free and no more expensive than any other "diet". It's all in what you choose. You said you prefer processed foods...
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Celiac and span of life.
cap6 replied to Johnny55400's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Of course!. Just don't cheat. -
Kitchen and other questions
cap6 replied to Bookgirl32's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Slow and easy. !! -
We used to eat at our local Road house and they had a gluten free menu. That, however, was about four years ago. They suddenly canceled the g.f. menu and said that they "tried" to keep things gluten free. I'm thinking maybe they had too mkany people complain?
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The purpose of this little story is to give you all a smile and to say gluten lurks everywhere, even where we least expect it! We live in a rural area with a lot of wild creatures close by. Yesterday a raven flew overhead and dropped a piece of whole wheat bread, smack, in the middle of our small doggie yard. We saw the raven fly over and we saw it...
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When I was flying and visiting my Dad, I was faced with a shared kitchen situation. Dad was a gluten lover so his kitchen was a danger zone. I would claim a small shelf in his refrige, put down paper towels and then then my stuff on top. Cooking in his micro was a celiac's worst nightmare! I brought my own containers and then wrapped them tightly in paper...
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This was an older posting so most have probably moved on - but alm260 may be back. Hawaii is an easy place to be gluten-free. If you have a kitchen hit the nearest Costco and load up on your meats, veggies etcs. Their prices are much better than local grocery stores. Check out local farmer markets for some awesome fruits and veggies. Also...
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At Disneyland I found even the "fast food" places to have gluten-free options. They were awesome!
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Tired of peoples reactions to my restrictions
cap6 replied to Gma of 3's topic in Coping with Celiac Disease
In the beginning it is difficult and many people don't get it. I give a quick, brief explanation and then let it go. Again, I use the words "similar to a food allergy" as that is what people understand. If someone asks about my symptoms I just say "it's not pretty" and if they push I tell them we'll talk later and change the subject. The hardest... -
I agree - not all food with a warning label "made in facility...etc" are bad. It could be the veggie itself. Some people can't tolerate night shade, for instance. Also, was it a pure veggie or were there other ingredients. When you add sauces/spices and such is where you can run into trouble. When eating out I usually look for a place that have a...
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kissing, if he/she ate gluten first then yes. Other areas - no.
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Foreign Lady ~ Easy does it. We can all run on a short fuse when stressed and I expect that with a new food prep issue you are beyond stressed. When I first started out I couldn't understand how one little tiny crumb could possibly hurt. But it does. That said, I know you will do everything you can to keep your little one safe. Slow. Slow. Take...
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Gluten Withdrawl
cap6 replied to DaveCH's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Gluten withdrawal is very real. The length of time varies from person to person. How long were you sick, how severe, your age. All factors. Give yourself a couple months. I would also cut out processed foods, at least until you heal. Pure, whole foods are best. If it has ingredients - stay away. -
Hair loss help
cap6 replied to Jen1104's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Have your iron levels been checked. -
Very interesting post! When first diagnosed my ferritin levels were so low they talked about iron infusions. Lucky to bring it up to acceptable levels with prescription iron supps. On and off through the years I would feel the old tired feeling and go back on the iron supps. Flash forward 8 years and I had those old tired feelings again so went in...
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There are some that may not agree with me, however, here goes...... Beans (lentils included), oats, quinoa can be difficult to digest. They can also cause glycemic spikes. I am not saying not to eat these items, just be aware, especially if you are fairly newly diagnosed. Eating difficult to digest foods can cause glutened type reactions. Everyone is...
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Celiac diagnosed 20 yrs ago - still have questions
cap6 replied to JKB's topic in Coping with Celiac Disease
Some time back I met an elderly lady that was one of the banana babies. She had recently been rediagnosed with celiac. It is amazing at the strides that have been made in just the 8 years since I was first diagnosed. Hope for the future that as many won't endlessly suffer. -
Celiac diagnosed 20 yrs ago - still have questions
cap6 replied to JKB's topic in Coping with Celiac Disease
As was explained to me - Your gut heals and yes, you probably could eat gluten again and not feel any ill affect, for a while. However....! The damage is starting all over again. Like picking a scab off of a sore. Sort of a nasty comparison but accurate. Celiac never goes away. Google the banana babies. Very interesting as it fully explains why celiac... -
I wouldn't worry about the oven. We moved in a rental house short term while waiting for our current home to go through and I wiped out the oven and then used it. No problems. When visiting a friend who cooks pies all the time I just pop a loose piece of tin foil over my stuff. I think covering the stuff is more for my mental health than anything else...
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Wouldn't! Couldn't! Shouldn't! Oh my! I hear what some are saying about keeping areas clean, but no way. I get not wanting to cook for a big group but a couple pretty easy, and cost effective, thoughts are a simple crock pot or two of chili, taco bar, potato bar or a salad bar. I just did a Xmas party for 22 people, only 4 of us are gluten free,...
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Ferritin levels and celiac?
cap6 replied to Breezy1's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Interesting on your ferritin levels. When first diagnosed, in 2010, I was very low iron and I was started on iron supps. Fast forward 7 years and my iron levels were at 1,200! Just diaqgnosed with genetic hemochromatosis, a genetic iron overload. Now starts the struggle to lower the iron levels with weekly blood draws of 1 pint of blood. I have the... -
Flu shots, as per my doctor, are safe. As a rule I never get them but only because I rarely get the flu. Think the last time was about 10 years ago. I am considering it tho this year as I was recently diagnosed with Hemochromatosis (along with the celiac of 8 years). The dr thought it might be a good idea since my body is already fighting with this new...
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Hi ~ Haven't been on site for quite awhile now but back and searching for answers! I am almost 8 years celiac, totally gluten free, paleo diet for past 4 years, and yippee, now I find that I have Hereditary Hemochromatosis with genes provided by both parents. (thanks mom & dad!). My ferritin levels are at 1200, should be 50, and am currently...