Skylark
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About Me
Gluten-free since 2005, diagnosed on an elimination diet and the resolution of dermatitis herpetiformis on my hands after a couple years gluten-free. I have since learned I was tested in childhood but had been off wheat because it made me sick. Nobody told Mom I had to be eating wheat for the test. They may not have known.
I had a classic recurring, blistered, itchy rash but my doctor didn't recognize it because it was only on my hand. When I initially came in after self-diagnosing my doc offered a challenge and blood tests and I laughed at him. I had borderline anemia, hypothroidism (now have Hashimoto's), aphthous ulcers, signs of B-complex deficiency, intermittent carpal tunnel syndrome, chronic fatigue, depression, IBS, gastritis, white spots and ridges on my nails, tooth enamel problems, and food sensitivities possibly from "leaky gut". All but the depression and thyroid disease resolved on a gluten-free diet. The depression gradually resolved with EMPowerPlus vitamin and micronutrient supplement from TrueHope. I needed a high dose for a couple years and gradually tapered.
I know when I'm glutened because I get aphthous ulcers a day or two later. I feel crummy too, but that's not unusual.
Anyone who tells you that you can't have celiac disease with only DQ2.2 is lying. I'm DQ2.2/DQ2.2-ish. (Not quite a 2.2 match.) Mom is celiac with only DQ2.2 and no other risk alleles.
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I can't do high-tyramine foods or nitrates either. Fortunately I only have to avoid the super-high ones like red wine, aged cheese, and cured meat like ham. I'm going to have to try that Hormel bacon if I can find it and see if it works out. Glad I found this thread.
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Mcdonald's Grilled Chicken
Skylark replied to jststric's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Punkin seems to eat a lot of junk food. It's probably affecting her mind. -
The What's For Dinner Tonight Chat
Skylark replied to jess-gf's topic in Gluten-Free Recipes & Cooking Tips
We need a good cheer emoticon! I want a clapping one too. Grass fed beef burger with mushrooms on Canyon Bakehouse bread and baby spinach salad with olive oil and balsamic vinegar tonight. -
ubiquitous gluten is right. I can relate to the emotional experiences of bipolarism and have had my horomones balanced in order to get back on the right track. Worked well. Glad you have come through so much! I am also glad you posted the celiac panel tests, a friend of my mother's is looking to have that done to find out for sure. Thanks!
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The What's For Dinner Tonight Chat
Skylark replied to jess-gf's topic in Gluten-Free Recipes & Cooking Tips
Glad to hear I'm not the only CLL. I'll have to try breading them in cornstarch or maybe cornmeal the way I cook fish. I made black bean soup yesterday, with chicken broth I'd frozen from my last roasted chicken, black beans, onion, garlic, celery, carrots, chunks of potato, salt, and some cumin. I had it with more of the baby bok choy and froze containers... -
Before you go off gluten, you need proper celiac testing. Celiac testing only works on a full gluten diet. (Four slices of bread a day worth of gluten.) If gluten turns out to be your problem, you won't want to re-poison yourself for two months to find out if you have celiac disease. Tests you need: Total IgA TTG IgA deamidated gliadin (also called...
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The What's For Dinner Tonight Chat
Skylark replied to jess-gf's topic in Gluten-Free Recipes & Cooking Tips
Sauteed chicken livers with onions and celery. (Yeah, I'm weird. I love chicken livers and I found organic ones at Whole Foods!) Steamed baby bok choy, and a slice of Canyon Bakehouse gluten-free bread. -
I told my mom about this pizza. She is not celiac and doesn't have to adhere to gluten-free perfectly in order to feel better. She was really pleased becasue she likes Domino's, she can get it delivered, and this pizza will probably work for her. I feel a little better about this product - it is at least helpful to someone I love.
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Well, Domino's could have had my business. Instead they made pseudo gluten-free pizza and lost out.
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I love Larabars. Also most of the Tiger's Milk bars have no gluten ingredients. Last time I looked, the cruch flavor was the only one with gluten.
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They didn't do the right tests to pick up celiac-related neuro problems. They would need to do the old anti-gliadin IgA and it's very prone to false negatives. Someone just pointed out that Cyrex is doing assays for autoimmunity against the neurological transglutaminase, TG6. It's part of their Array 3 - Wheat/Gluten Proteome Reactivity & Autoimmunity...
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They've never heard of a WHEAT ALLERGY? Plenty of celiacs are allergic to wheat too. Sorry you didn't get help. That's insane. I might try making an appointment with my Dr. and asking for an inhaler.