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Skylark

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Skylark

  1. Skylark
    I usually look for restaurants that have gluten-free options. Just ask for the gluten-free menu. If you're really nervous you can ask what precautions they take to prevent cross-contamination of gluten-free food with wheat. I generally don't bother, though if they have fried foods listed as gluten-free I ask whether the fryer has been shared with wheat breaded...
  2. Skylark

    Skylark, you've been such a help as I have started my gluten-free journey. Thank you!

  3. Skylark
    That's interesting stuff! Mycobacteria are sneaky little things.
  4. Skylark
    No. It's not new at all. It just uses an IgG rather than IgA specific secondary antibody. That technology has been around for over 20 years.
  5. Skylark
    Going to visit my folks in Georgia. I don't get to see them very often. I've been to the naturopath once, got some tests done. Results are back in so I'll go again when I'm back to see what the results are. Yes, she can prescribe. Yeah, it's normal to feel weird. Thyroid is a big deal and your body has to adjust to dose changes for weeks!
  6. Skylark
    Thanks a million! I read this at just the right time today, because I'm sitting here dizzy and frustrated. Your kind words mean a lot. My endocrinologist wants to get my TSH settled first and then we will deal with the perimenopause. I think there are tests for it. I have a naturopath I'll get to see in a couple weeks once I'm back from vacation...
  7. Skylark
    Don't worry about it. I really dislike having to spend the time to watch videos. It's an agonizingly slow way to get information compared to reading and I find most of the people making health videos are either trying to you something or have an axe to grind. If you've got something in the peer-reviewed literature I'd be happy to take a look.
  8. Skylark
    Glad my cross-sensitivity explanation made sense. All I've read about is gliadorphins and casomorphins. "Leaky brain"? I'm sorry, you're going to have to explain what you mean and there probably won't be an answer because I've never even heard the phrase.
  9. Skylark
    I still feel muzzy-headed and dizzy most of the time. I don't know what's wrong but I don't think it's thyroid. One of my friends said she felt this way in perimenopause. I think maybe my thyroid crash-and-burn set me on the path to menopause a little early. Your head will probably clear out. I think I'm just unlucky.
  10. Skylark
    I had all the hypo symptoms in the book. Dry skin, hair falling out, tired, depression, brain fog, weight gain, balance problems, shivering cold in 70 degree weather. TSH was over 5.0 and I had tons of Hashimoto's antibodies. My Dr. upped my T4 and I still felt bad. Tried some T3 and my TSH was down but I still felt foggy and memory problems. finally...
  11. Skylark
    I don't generally even dismiss cross-reactivity. It seems to be a very misunderstood term on this board. Your antibodies are not perfect, and it's by design. If you made perfect antibodies, you would have no immune response against a slightly different strain of flu or bacteria. Say you get swine flu. You make antibodies and get well. A certain % of those...
  12. Skylark
    Wow, that's interesting! Did you happen to bookmark where you read it? I can probably dig it out but it's faster to have a link. One of the things that can cause celiac is Campylobacter jejuni food poisoning. And hey, check this article out on celiac autoimmunity and infections that just popped up with Google. Nothing to do with cows milk but really...
  13. Skylark
    Great! I'm glad you're getting good care. If gluten doesn't make you terribly ill, I would recommend going back to eating it for the week leading up to your test. Then you can start freely playing with diets while your Dr. works on what else needs to be ruled out.
  14. Skylark
    Wheat protein is gluten, not wheat starch. Sounds like there is enough residual gluten in the starch to get you though. I hope you can find a doxycycline pill that's gluten-free and that you feel better soon.
  15. Skylark
    I hate modern docs relying on TSH. My grandmother was on Armour thyroid all her life after having her thyroid knocked out for Graves' disease. Her doctor told her to take more thyroid if she was tired, less if she felt speedy. When she was in the nursing home and got put on levo instead of her Armour she hated it! 30 mg of Armour does seem low after...
  16. Skylark
    Hi, and welcome. The other C diagnoses are scarier, aren't they?
  17. Skylark
    Oh, wow I read the original post wrong. Yes, you cannot be tested for celiac if you've been on the gluten-free diet for too long. The antibodies go away. You need to eat a full gluten diet for a couple months to be sure you get a positive result.
  18. Skylark
    What, exactly, is a "real diagnosis"? And more importantly, why do you care? Make sure you haven't unconsciously bought into a system where every ailment needs a label to make it real before you go make yourself sick for nothing. Our healthcare system has inadvertently brainwashed patients into thinking they need a "real diagnosis", even when they know...
  19. Skylark
    It does sound like you have a food intolerance. It's possible to have a strong gluten intolerance but not be celiac. Usually 2 weeks strictly gluten-free is enough to notice some improvement from gluten intolerance but I'd give it more time. There's a slim chance you are seronegative celiac and the biopsy just missed the damage or even was read incorrectly...
  20. Skylark
    This is a web page and fact sheet from the Chicago Celiac Center that explains the testing. Open Original Shared Link Open Original Shared Link
  21. Skylark
    I guess what I was wondering about was kinetics of casomorphin release and absorption in raw vs. pasteurized. I don't know if it would be different.
  22. Skylark
    Sorry you got sick. As well as considering non-gluten causes for your illness, I'd ask the retailer whether gluten-containing foods are prepared where they are packaging the salads and slicing the fruit. They may not be concerning themselves with allergen CC to the extent that you need.
  23. Skylark
    I just remembered we had a thread on gluten-free vegetarian ideas. You might try adding a post to see if you can revive the thread again. You're definitely not the only vegetarian on the board! Here's the link.
  24. Skylark
    I think you have anti-EMA confused with the dermatitis herpetiformis biopsy, Nora. Anti-EMA is an immunofluorescence assay done with standard fluorescence microscopy. The patient's serum is reacted with monkey esophagus at varying titers and then stained with a fluorescent secondary antibody. It can test for either IgG or IgA depending on which secondary...
  25. Skylark
    I have a bottle of Lyle's golden syrup from when I tried Failsafe. I just went and tasted it and it tastes very sweet with a light brown sugar flavor. It doesn't taste of maple at all to me. It would be fine for gaggo-sweet on pancakes. I was using it in stir-fry trying the substitute soy sauce trick in Sue Dengate's cookbook. I don't agree with...
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