quincy

• 
  
  
• Realized that actually, I was mildly bloated and am no longer.
  
• Pretty close to digesting fat again (yea!!) and concurrent return of ability to not be close to a bathroom for the first 4 hours of the morning. Like, I could go hiking!
  
• Greatly reduced acid reflux w/ no meds.
  
• Significantly decreased tummy pain.
  
• Probably decreased joint pain (this was variable, still a little hard to tell)
  

Still waiting for the fatigue to truly resolve, but probably still being contaminated some.

Two weeks gluten-free (round two).

I am only about 4 weeks into being gluten-free and so far the bloating has disappeared and some of the reflux is gone

however, I still get sick from fatty foods. Do most newly diagnosed celiacs have trouble with fatty foods even ones such as olive oil if used too much and salmon or tuna packed in its own oils?

HAHA! *sigh* Yeah..... totally understand. Good luck... Let us know how it goes. I recently finished up 6 weeks of 50,000 once per week. Brought my levels up from 18 to 59. Just trying to figure out my maintenance dose now. Going to try 2500/day and get retested soon. Now I'm thinking I want to be closer to 80. Still have struggles with fatigue...

Make sure they test your calcium too.

may I ask which RX of D you were taking? this one doctor prescribed the D2 but I understand the D3 is the better one to take...

Just thought I would address the problem with digesting fats. It could help you to take a digestive enzyme every time you eat. I would look for one that tells you how many grams of carb, fat, and protein that it will breakdown.

Your doc likely won't know too much about it, but you could ask. It's really common to have problems with your pancreas - which is the organ that helps to produce enzymes to break down food - with celiac diseas/gluten intolerance.

Personally, I was having trouble no matter what I ate and it really helped me to take a digestive enzyme.

I have been having trouble with Vit D too, so I'm going to keep an eye on this thread and see what info people come up with.

Hope you feel better soon!

thank you. I appreciate it. I bought some Enzymes from Lame Advertisement.com a few months ago when I didn't know I had celiacs. I purchased the NOW brand of enzymes. I read somewhere that the Betain can be a little harsh on your stomach. My Endoscopy showed inflammation in the stomach and lower part fo esophagus, so if you have any further input on a particular brand of enzymes I will look into this further. I really need the omega fats because my HDL/LDL ratio is inverted to the bad side....

I get my blood work done every three months. My D was one of the really severe imbalances. After 6 months of 6,000 IU of D3 a day my Dr. upped me to 8,000 as my D level were still below normal, though improving. At 2,000 IU a day my level was at 18. At 6,000 it was 28. 30 is the low end of 'normal'. This has really helped my fatigue.

I'll be getting rechecked in July so it'll be interesting to see where it is then.

very interesting. so at my current 2200 IU's a day I might only maintain my low number of 16. thanks for that. It seems like we need more to get to normal then. Thanks!

I've been dealing with that for two years. Every time I go, I end up with another Rx for 50,000 IUs a week. Usually for 3 months then a recheck. A doctor told me to just start taking 4,000 IUs daily. I do, and haven't had a problem since.

thank you for that bit of info as this will be my strategy if the 50,000 Rx is not effectual. most of my GI discomfort comes from the duodenum area. did anyone's GI discomfort subside more readily once the Vitamin D levels came up? I imagine once the inflammation goes down and the villi extend it should subside also..

thanks.

Do you live in an area with sunshine? If so, the best way is to get it naturally from the sun, because you can't overdose on it (of course, you don't want to let yourself get sunburned). I'm very fair skinned so I lay out on my deck for 7-8 minutes each side between the hours of 11-1 when the sun is at it's best (I've gotten all my information from Dr. Mercola). Because I can't always get it the sun, I also supplement with 4,000 IUs each day. The last time I check, my levels were perfect. I'm going next week to check them again. If you take supplements, you'll want to check them frequently because it can build up in your fat and become toxic.

I live in the Northeast and I crave the sun. Summer is when I fill up on D but it goes right back down during the winter. This winter has been especially tough since developing the celiac reactions that I am now seeing.

I knew I was very low on D before they ran the test. The depression and anxiety have been horrible.

thanks for the feedback. I realize that it is D2 rather than D3. I will try it for a few weeks and see if I feel better. I don't think there is a prescription grade D3 to my knowledge.

I use LabCorp and their reference range is 32 to 90 I believe. I came in at 16.4.

My concern is that D is fat soluble, and I am having a hard time digesting anything fatty, even omega 3 fish oil. It gives me extra trips to the restroom.... any thoughts on that would be interesting as well.

John

Has anyone had success with Vitamin D therapy through a prescription dose of it? I went to a doctor who said that my numbers won't come up with 2200 IU's of D3 daily, that I need to do a therapy of 50,000 IU's a week for several weeks and then see how the numbers move. Several people I know have taken the prescription dose and have had success

I think this is the key to my healing as I have muscle aches, dizziness, and anxiety which are all signs of low D. I have been gluten free for about 4 weeks despite an accidental glutening which set me back a week.

any feedback would be great.

Welcome! I'm new to the boards myself. If you are in the first few weeks your body might be undergoing some sort of detox. That was my observation anyway. I eat much healthier than I did before going gluten free. Very little in the way of processed foods. The first week or two I alternated between feeling better and feeling worse, then I got to a point where I felt better than I had felt in years. To start out you might not want to replace your gluten items with gluten free items. Try starting out with just meat, steamed veggies and salads (be sure to check any dressings or seasonings you use). Also don't go overboard on sugary items or really sweet fruit. Beans and too much raw veggies can be hard on your intestines too depending on how much damage you have. So you might want to take it slowly and a little at a time with those items. I've been doing this since January 2010 and I'm still not at the point of being able to eat a bowl or chili with beans in it. I can have salad and other raw veggies but if I eat them too many days in a row I'll be a world of pain. You may be able to tolerate those things better, though, everyone's different. I suggest you keep a food log of what you eat and how you feel. If really helps to figure out if there are other things you need to eliminate or cut back on later on (many people have to cut out dairy and soy).

I am newly diagnosed with relatively mild damage and I have had the most success so far with very basic foods: grilled chicken breast, steak, baked potatoes, bananas with natural smooth peanut butter, rice chex, lactaid milk, Tinkyada rice pasta (fettucini style is delicious) with Prego or Ragu. I am sure there are many other foods available that are basic.

I tried going with an organic tuna in natural oil and it gave me the runs, so that means my digestion is not mature enough to handle oils, raw veggies and beans just kill me right now as well. In time I will re-introduce these foods. don't try to do too much in the beginning, I have learned with many trips to the restroom.

So last night I was craving a Wendy's chocolate frosty and some french fries and haven't eaten fast food since going gluten-free. I thought I would be okay with a frosty and McDonald's french fries...HAHAHA Nooooooooo.

Let me just say I woke up this morning and I had turned into the little girl from The Exorcist, as well as depression, paranoia, head was in a fog, dead tired, and my stomach is upset. Fun stuff right? Not really.

I was told by my nutritionist that the only fries I could have are from Wendy's or Five Guys because they use dedicated fryers? If this is not correct, someone please correct me because I am new to this and just learning my way around gluten.

thanks that is a great point. If I hadn't found out I would have just gotten worse.

"mild Celiac" in the biopsy report must be referring to the damage to the villi. blunted as opposed

to completely flat.... that's my assumption. my nutritionist didn't like that term, but there was no doubt

I was going to take the gluten free living seriously despite the misnomer.

I am new to this forum as well as recently diagnosed with "mild celiacs," on April 14th, 2010. The biopsy said Mild I guess because the villi were blunted? with some crypt hyperplasia.

my question has probably been asked many times here. how long does it take to get some normalcy. my main symptoms are mild discomfort in the abdomen and somewhat loose bowels and the feeling that I have to go even after I have already "gone" once. does any of this sound familiar? I also get a sense of fogginess and lightheadedness/dizzy in the mornings especially. anxiety has been terrible. I worry all the time now about every little symptom to the point where I might need an antidepressant.

I was starting to see some normalcy in my bathroom visits until I recently went to a Japanese buffet and asked the chef to make me rolls with no sea weed, but then I realized he was probably using the same gloves and surface as he was handling other foods so I must have gotten my rolls contaminated. I am going to have to learn to be very specific I guess.

if any experienced folks out there have some words of encouragment as well as confirmation of what I have said, please respond.

all the best!