Mari
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DQ6/DQ8 Celiac Sprue. Enterolab HLA-DQ B allele 1 *0302:HLA-DQ B allele 2 *0602. This genotype combination gives a strong predispositions to Type 1 Diabetes, Celiac Disease and Leaky Gut Syndrome. One male sibling has Type 1 Diabetes. The DQ6 gives some protection for developing Type 1 Diabetes which lessens with age.
Diagnosed in 2006 at age 70 but have had symptoms of gluten sensitivity all of my life. During the years I was undiagnosed I learned to use many alternative methods to cope with the developing problems of Celiac Disease. Most of these health promoting methods came from the book 'The Cure for All Diseases' by Hulda Clark, PhD, ND and helped keep me functioning and active over the last 25 years. These procedures did not stop the damage caused by gluten so I have had a lot of healing to do but by understanding the underlying problem I am in much better health now than I was 4 years ago.
I have been criticized by the moderators and warned not to refer people to certain alternative websites and not to make diagnoses since I am not a qualified/licensed medical practitioner.
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Trents - yes you are correct in that Celiacs is synonymous with nontropical sprue. I just did a quick search online and the two words come up together. That wasn't the case when I went online 20 years ago when it seemed that there were other causes of this type of sprue. Terminology does change over time. There are probably gastroenterologists who see people...
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Pancreatic enzymes are sold 'over the counter' and do not require a prescription. Many people take them for better digestion. If you are worried that you may react to something in a capsule open the capsule and put a small amount under your tongue. If you have a reaction such as a burning sensation try a different brand. This is useful but not 100% accurate...
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Hi Dora77, I just want to add a little information. The villi in the small intestine main purpose is to adsorb the nutrients from the food you eat and is not involved in the digestion of the food. Digestion starts when you chew food and it mixes with saliva. When you swallow it goes into the stomach where the food is liquified.The liquid food then passes...
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Scott Adams reacted to a post in a topic:
Wholistic Approach
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Hi Eldene, Your message came to me from the Coping with Celiac Disease forum at Celiac.com. When I read a message here from a person having difficulty with gluten intolerance I don't know any more about them that what they wrote. I will do my best to reply to their questions but will not ask about their lifestyle. Giving unsolicited advice has consequences...
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fatigue 2 months post gluten free and feeling sicker than ever
Mari replied to KierstenL's topic in Coping with Celiac Disease
Hi KierstenL, You have received loads of advice and information but while you are thinking about that I want to make a few comments about what you could do right now. I am so sorry that you thought you had a cure for your medical problems then they came roaring back. Since you been only gluten-free for less than 2 months ask your health care provider... -
Why corn intolerant after 4 mths gluten free?
Mari replied to Nicole boling's topic in Coping with Celiac Disease
Nicole, you are very welcome. Marian -
Why corn intolerant after 4 mths gluten free?
Mari replied to Nicole boling's topic in Coping with Celiac Disease
Hi Nicole, It is good that you asked this question as the answers have given all of some helpful information. To answer your question I became corn intolerant at least 20 years before I learned I had Celiac Disease. I would buy 3 ears of corn at the Farmers Market and eat them over the next three days, The first day - no reaction. The 2nd day a... -
Hi James, Good to see you here asking a question. Your body is signaling to you that it has a problem that was not corrected by a gluten-free diet. You may have had this problem before you went gluten-free but you probably had more problems from being gluten intolerant and did not notice this other, more general problem in the background. It...
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Scott Adams reacted to a post in a topic:
I think I need to stop eating in restaurants
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I think I need to stop eating in restaurants
Mari replied to sandree33's topic in Gluten-Free Restaurants
Not long ago when I would occasionally meet friends for a dinner out I would order a baked potato and Lettice and some mayonnaise, oil and vinegar. Now I would also take a capsule of an anti-gliadin enzyme after eating some and might take another capsule at the end of the meal. The capsules that I keep on hand are the ones that are advertised here - GliadinX... -
Scott Adams reacted to a post in a topic:
Why?
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Hi mishyj, When I was told that I might have Celiac Disease about 18 years ago I went online and read what I could find about this condition. I had a blood test called a Celiac Panel and my IgA was elevated but the TTg was in the normal range. I ordered a Genetic test from Enterolab.com that showed I had a Main Celiac Gene (DQ8) from one parent and a...
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Scott Adams reacted to a post in a topic:
Diarrhea vs Constipation
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Hi Goatmanvivo, When I worked in medical labs we would examine fecal samples routinely noting the color, consistency and whether there was any blood or undigested food observed. Fresh blood as you described was noted as was an occult blood test reported. Fresh blood is usually from the large intestine and older (occult) blood is an indication that the...
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knitty kitty reacted to a post in a topic:
I am not sure how to feel...
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Scott Adams reacted to a post in a topic:
Bipolar and Celiac Disease
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Scott Adams reacted to a post in a topic:
I am not sure how to feel...
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Most helpful was the response by Scott Adams who posted some llinks to articles.
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Hi Shortsgirl - = So sorry that your parents are not accepting of your need to stay Gluten Free. You need to get out of this game they are using to convince themselves that you are a person that does not have this problem. Kitty knitty wrote that they are in denial. That is often a word associated with addiction. It is well known that wheat and or gluten...
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Hi Mitchmap, I've been gluten-free for 18 years. The Dr. did not tell me about the gluten challenge before taking the Celiac Panel blood test. The IgA was elevated but the TTG was in the normal range. I was eating very little gluten foods at that time. When I see a new provider they want to do the endoscopy (camera) but I tell them that if I'm glutened...
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Thank you Scott Adams. I was hoping for some references. My eyesight is poor so it makes it difficult to find references, difficult to read small print. I will share these links with my nephew.