Mari

Years ago I had 2 6 hr glucose tolerance tests, both with flat curves. I had Celiac Disease and maladsorbtion then too but undiagnosed for many years. My brother is a Type 1 diabetic and my father had Type 2.

I'll be interested in seeing how the rest of your tests turn out. You may needdo a longer gluten challange to demonstrate elevated autoantibodies if you have been gluten-free for a while. Read up on how the skin biopsy is taken as some Drs dont take the sample from the wrong place.

Welcome To PPA

Physician's Plasma Alliance is made up of healthcare professionals collecting and distributing specialized blood/plasma and other biological products throughout the world

www.physiciansplasma.com

Follow the link to find out all the diseases they are interested in and more information. I have not written them to ask what the plasma will be used for but since plasma is not used in the treatment of celiac disease it will probably be sold and used in research. I am over 65 so can't be a donor.

I'm not spamming this company, just thought some people might be interested.

You may be able to find a Yoga instructor who works with pain problems.

Have you been tested for Lyme Disease?

I had the genetic marker assay at Enterolab in 2006, the cost was about $200.

www.enterolab.com has a price list on the website.

I think you can trust the feeling that you are doing better on the gluten-free diet. As you get better it will be easier to trust yourself as you begin to achieve a feeling of inner health and strength. This has happened to me and I have a lot easier time with relationships. I have relaxed and now when I smile it is a real and warm smile and people respond to my sincerity.

When my diagnostic tests for celiac disease came back confusing I ordered a genetic marker test from www.Enterolab.com. I did not want the endoscopy and the gluten challange. The test confirmed that I had been at high risk for developing celiac disease and non-celiac sprue and I, too had problems as a child similar to yours and was always criticized for not doing as well as I should have. Another test that does not require a gluten challange is the molecular serology test offered by Prometheus Labs and others. This test can tell if you have an antigen binding site which accepts fragments of gliadin, the gluten protein that starts off the production of the autoimmune antibodies.

The experts tell us that a person should have a bowel movement within an hour after eating, so that's 3 bms a day for most people. This helps us flush out the bowel and reduce the amount of toxins that can be adsorbed into the body. It is also likely that the swelling and inflammation in the small intestine has decreased so that your bile system is now able to work better. The congestion in the bile system - gall bladder and tubules in the liver are releasing lots of bile sludge and probably some bile stones. This is also getting toxins out of your body. I have read a number of messages similar to yours and it usually clears up after a while. If it doesn't your Dr may want to test for gall stones.

I read in the Celiac.com newsletter a while back that researchers are developing a new test for celiac disease that only has a short gluten challange time, I think it was about 5 days. After the challange a blood sample is drawn and tested with a dye to count the number of the antibody producing cells.

Thanks for posting, I always am uplifted when people write about their successes and continue to find approproate ways to improve.

Both Boniva and Forteo are brand names for meds to treat post menopausal osteoporosis. I was advised to take Fosamax for my osteoporosis but when I read about it I saw that it is not the treatment needed by Celiacs and I have read in some messages that it makes some Celiacs quite ill. The best treatment for Celiacs is Calcium, Vitamin D and exercise. I have seen messages where people have improved using this treatment.

My aches and pains, rigid cramping muscles improved on the gluten-free diet but I also had Lyme disease and my body was too acid instead of slightly alkaline. Since I have problems after taking antibiotics, for the Lyme infection I took homeopathic drops and used Hulda Clark's Zapper. The acidity I control with diet and eat more alkaline forming foods than acid forming foods. I did a variety of cleanses to clear out toxins and pollutants from my body and toned up my kidneys and liver to help get the toxins out.

Hi-

I was wondering if anyone would know if allergy medication would affect a blood test? At the time I was on AllegraD, Nasonex as well as Singular. My blood work was supposedly negative. (I was told over the phone, I see some people have copies of actual numbers and test that were run). Anyway, looking back I realized I had been taking all of that allergy medicine.

Thanks

Drs are required by law to provide copies of lab tests to patients. Most are very willing to do this.

I found this comment on a search for 'vitiligo celiac"

Is Vitiligo hereditary? Or genetic? - Yahoo! Answers

Resolved

I had a lot of confusion about the correlation between the genetic markers and the DQ serology tests. Finally I read the Wikipedia article about HLA-DQ and now I can figure out what the DNA assay means and what the serology results would be. With that overview you can go on to read about the different DQs and the subgroups, in your case HLA-DQ2.

I'd be interested in seeing your DNA marker results. There are some unusual combinations of the DQ gene that result in receptor sites which will bind small fragments of gliadin and intiate auto antibody production. It's possible that the molecular serology test offered by Prometheus Labs may give more information about the receptor site than the genetic tests. I have found the Wikipedia articles about HLA-DQ and each of the DQ classes and subgroups to be informative.

I have read and experienced that celiacs have more skin problems than other people. I did a search for 'folliculitis cure' and this is one of the results

How to Cure Folliculitis | eHow.com

By Linda Hinkle

Received results of IGg from BioTek ($235.00). Now I'm confused because the only foods it said I should avoid are dairy, eggs, asparagus, bananas, and cane sugar. But, wheat, rye are very low on the scale. Can anyone tell me what's up?

Like many celiacs you don't seem to have allgeries to wheat and associated grains. Celiac Disease tho it involves the immune system is not an allergic response in the same way that an allergy is. I have seen celiac disease referred to as a delayed allergic or immune response but the process is different. It is possible that if you did not do a wheat and rye challange diet then these could be false negative results. In some allergy tests any elevation above normal is significant.

Hay!

What do you think about results? Are there any relationship with celiac disease?

HLA: DQ6(1), DQ9(3) (serological equivalent)

Allels:

HLA-DQB1*03:03:02

HLA-DQB1*06

Thanks!

I'm a DQ8 (a subgroup of DQ3 and main celiac gene) and a DQ6 ( a subgroup of DQ1 and predisposes for non-celiac sprue) This combination results in a worse celiac response. Gluten, actually fragments of gliadin a gluten protein, start off the celiac autoimmune reaction in DQ8 people and in DQ6 people the gluten flattens villi in the small intestine causing the non-celiac sprue.

What lab did the tests. I'd like to see how they dod the test and why it reads HLA-DQB1* 30:03:02. I'm not familiar with that way of reporting the assay results.

There are several online labs that offer genetic testing. I used www.enterolab.com. If she does not have the genetic markers there is only a slight chance that she could have autoimmune Celiac Disease. These tests can also rule out a problem with non-celiac sprue.

Another test would be the molecular serology test offered by Prometheus Labs and others. This test can tell if she has a binding site for gliadin fragments which sets off the autoimmune response.

Several labs offer enteric panels which can give a lot of information on bowel functions and possible problems.

Long before I was diagnosed with Celiac Disease I started using alternative methods of healing. I would never suggest that you stop seeing physicians, these self treatments sometimes need to be monitered. I just want to say that many people have been able to improve their brain fog and digestive issues by doing a variety of cleanses and detoxifications. These helped me survive until I was 70 and they work even better now that I'm gluten and dairy free.

Imbalances and overgrowths of microorganisms in the intestine feed on the food eaten and produce the gas. This is referred to as Dysbiosis and can be caused by bacteria, yeasts and even parasites. Some celiacs seem to be able to normalize the bowel flora and this gets better over time. But many of us need to either work with Drs to correct this problem or use self treatment with supplements and cleanses. A normal person will have no bacteria or yeasts in the stomach or upper small intestine because their strong stomach acids kill them off as does the bile and some of the digestive enzymes in saliva or from the pancreatic secretions. Having volumes of gas soon after eating means that these organisms are living in the upper intestine. Choosing foods that do not encourage the growth of these organisms helps a lot. I use the legal food list from a gluten free diet, take stomach acids in the form of Betaine-HCl and use probiotic, capsules and sheeps milk yogurt. Kefir is good and for people with milk allergies can be made with water.

Hi, I have an allergy to cow's milk and even after strictly avoiding all cow's milk and butter for at least ten years still tested positive and react. Like the other person I could tolerate goat's milk for a while but had to stop eating it. I can tolerate small amounts of sheeps milk yogurt so have some every once in a while. For some people with milk allergy using the yogurt recepie for the Specific Carbohydrate Diet digests enough of the casein so they can tolerate it. A lactose intolerace means that a person isn't making enough of this enzyme to digest lactose, tho many asians and native americans just don't make the enzyme lactase at all. Some celiacs do recover the ability to produce lactase but may not especially if they are older.

Hi Joe - One of the situations which changes is the mixture of microorgansims in our intestines. The bad smell and gas are the result of microorganisms digesting the food we eat. If we are producing sufficient pancreatic enzymes and digesting food well then the bacteria and yeasts don't have that source of nutrients to grow on so some people take pancreatic digestive enzymes to supplement what our pancreas produces. If you keep a food diary then you could correlate what you eat and the problems you have after eating it and change your diet accordingly. I use the Specific Carbohydrate Diet in choosing the foods I eat. The term used for intestinal overgrowths of microorganisms is Dysbiosis and there are many remedies, both meds and supplements. Many people use probiotics, capsules, yogurt, kefir, fresh made sauerkout (sp) to add back healthy bacteria to the gut.

Mushroom's comments offer good advice. I wanted to add that constipation was always a problem and I didn't get D uless it was food poisoning or bad food. I have been gluten-free for 5 years and have finally started to gain back some weight. Also now when I eat something with even a trace of gluten or some food I'm allergic to I develop D or loose bowel movements. I think that the inflammation in my small intestine is finally passing so food can go thru me faster. For me the D is a positive sign I'm finally healing.

I answered yes because I don't tolerate either. Can't remember the problems I had with psyllium it was so long ago but took flax seed meal for a year or so and since I stopped don't get swollen throat and difficulty swallowing only rarely so it might be an allergy.