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Mari

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Mari

  1. Mari
    Hi Edene - I usually feel hungry after eating a healthy meal. I also eat some food that has protein and fats or oils assnacks and I don't gain weight by eating extra food. If you are worried that you are not eating enough protein you could take a good look at your fingernails. Malnutrition often causes fingernails to break, crack or be too flexible. They...
  2. Mari
    Trents - yes you are correct in that Celiacs is synonymous with nontropical sprue. I just did a quick search online and the two words come up together. That wasn't the case when I went online 20 years ago when it seemed that there were other causes of this type of sprue. Terminology does change over time. There are probably gastroenterologists who see people...
  3. Mari
    Pancreatic enzymes are sold 'over the counter' and do not require a prescription. Many people take them for better digestion. If you are worried that you may react to something in a capsule open the capsule and put a small amount under your tongue. If you have a reaction such as a burning sensation try a different brand. This is useful but not 100% accurate...
  4. Mari
    Hi Dora77, I just want to add a little information. The villi in the small intestine main purpose is to adsorb the nutrients from the food you eat and is not involved in the digestion of the food. Digestion starts when you chew food and it mixes with saliva. When you swallow it goes into the stomach where the food is liquified.The liquid food then passes...
  5. Mari
    Hi Eldene, Your message came to me from the Coping with Celiac Disease forum at Celiac.com. When I read a message here from a person having difficulty with gluten intolerance I don't know any more about them that what they wrote. I will do my best to reply to their questions but will not ask about their lifestyle. Giving unsolicited advice has consequences...
  6. Mari
    Hi KierstenL, You have received loads of advice and information but while you are thinking about that I want to make a few comments about what you could do right now. I am so sorry that you thought you had a cure for your medical problems then they came roaring back. Since you been only gluten-free for less than 2 months ask your health care provider...
  7. Mari
    Nicole, you are very welcome. Marian
  8. Mari
    Hi Nicole, It is good that you asked this question as the answers have given all of some helpful information. To answer your question I became corn intolerant at least 20 years before I learned I had Celiac Disease. I would buy 3 ears of corn at the Farmers Market and eat them over the next three days, The first day - no reaction. The 2nd day a...
  9. Mari
    Hi James, Good to see you here asking a question. Your body is signaling to you that it has a problem that was not corrected by a gluten-free diet. You may have had this problem before you went gluten-free but you probably had more problems from being gluten intolerant and did not notice this other, more general problem in the background. It...
  10. Mari
    Not long ago when I would occasionally meet friends for a dinner out I would order a baked potato and Lettice and some mayonnaise, oil and vinegar. Now I would also take a capsule of an anti-gliadin enzyme after eating some and might take another capsule at the end of the meal. The capsules that I keep on hand are the ones that are advertised here - GliadinX...
  11. Mari
    Hi mishyj, When I was told that I might have Celiac Disease about 18 years ago I went online and read what I could find about this condition. I had a blood test called a Celiac Panel and my IgA was elevated but the TTg was in the normal range. I ordered a Genetic test from Enterolab.com that showed I had a Main Celiac Gene (DQ8) from one parent and a...
  12. Mari
    Hi Goatmanvivo, When I worked in medical labs we would examine fecal samples routinely noting the color, consistency and whether there was any blood or undigested food observed. Fresh blood as you described was noted as was an occult blood test reported. Fresh blood is usually from the large intestine and older (occult) blood is an indication that the...
  13. Mari
    Most helpful was the response by Scott Adams who posted some llinks to articles.
  14. Mari
    Hi Shortsgirl - = So sorry that your parents are not accepting of your need to stay Gluten Free. You need to get out of this game they are using to convince themselves that you are a person that does not have this problem. Kitty knitty wrote that they are in denial. That is often a word associated with addiction. It is well known that wheat and or gluten...
  15. Mari
    Hi Mitchmap, I've been gluten-free for 18 years. The Dr. did not tell me about the gluten challenge before taking the Celiac Panel blood test. The IgA was elevated but the TTG was in the normal range. I was eating very little gluten foods at that time. When I see a new provider they want to do the endoscopy (camera) but I tell them that if I'm glutened...
  16. Mari
    Thank you Scott Adams. I was hoping for some references. My eyesight is poor so it makes it difficult to find references, difficult to read small print. I will share these links with my nephew.
  17. Mari
    In the United States there is a laboratory - Genova Diagnostics, that offers very complete fecal examinations. I asked a Dr. to order a fecal test from them and they sent me a collection kit with dry ice. I collected the sample and sent it back the same day with UPS. The report was extensive and picked up a parasite and an intestinal pathogenic bacteria...
  18. Mari
    I seemed to have had celiac disease from when I was about 3 years old and was diagnosed just before I turned 70 so I have been gluten-free for 18 years. I think that my sister also is Celiac but with quite different symptoms. She had extreme hair loss dating back to about her first pregnancy and has worn a wig for many years. Her son took the 23&me test...
  19. Mari
    Hi Emma - I just wanted to share some information I learned after a Dr suggested that I had gluten intolerance and I began researching this problem. It seems that when a person begins to react to gluten grains that the reaction starts at the lower part of the small intestine just above the ileo-Cecal Valve. This is a small sphincter muscle on the right side...
  20. Mari
    Hi Natalie14, To avoid having a reaction to small amounts of gluten in your food keep a supply of anti gliadin enzyme capsules to take with each meal. I use the product advertised here, GliadinX, but different brands are offered at your local pharmacies. One person suggested that you have your own gluten-free toaster. Also a rice steamer would...
  21. Mari
    Hi Mads - I have wondered for years why so many Celiacs report having such immediate reactions to foods containing gluten. Others here have suggested you could have food intolerances or allergies which you may discover , remove from your diet and have less problems. But for more immediate relief it reminded what my health provider said when I told her...
  22. Mari
    About 10 years before a Dr. suggested I might have celiac disease and ordered a Celiac Panel I began to have a strong reaction to hot peppers and now cannot tolerate any amount of hot peppers without reacting. Over the next few years I began to react to almost any spicy herb and despite being gluten-free for 17 years these sensitivities persist. Back then...
  23. Mari
    Hi Jane07 - I tried keeping eat out of my diet but it did not work for me. That was 16 years ago and now there is a lot of advice online for Celiacs who want to be vegan or vegetarian, Put "gluten free veg" in your browser and many helpful sites come up. You may still need to add some supplements such as Vit B12 and D3. Your health provider can order some...
  24. Mari
    Well this is Saturday evening and I hope you are feeling a little better. But if this is dragging on and still a problem it could be best to see your provider or return to the ER soon to have this checked out.
  25. Mari
    I had that problem for years so I know how uncomfortable it can be. Now I don't have heartburn very often. The first remedy I found was an Aqueous (water based) Lugol's Iodine solution called Stomach Saver. I buy it online. If you use this start with only one drop in water then build up to the full dose. Do not use topical iodine solutions as they are not...
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