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Joni63

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I have lots of bumps in the road from Celiac Disease, but refuse to let it get me down!

  1. Joni63
    Hello, I'm new to the area and looking for a support group or other's in the area to do things with. I bike ride, hike, swim, kayak, and just want to have people to have fun with. Anyone local?
  2. Joni63

    Oh Lisa - so glad you like it! Thanks friend!

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  8. Joni63

    I just wanted to Thank you for your lasanga receipe you posted a long time ago. It was soooo awesome! Thank-you!!! Lisa

  9. Joni63
    Did you have your specialist visit yet twinsmom? Wondering how you made out?
  10. Joni63
    What is a PETD?
  11. Joni63
    twinsmom, How did you 2nd opinion go?
  12. Joni63
    Judy! So glad your new ENT is very good! Unbelievable that the other Doctors couldn't figure out it was ear wax causing your problems. Stick with his guy - he sounds awesome. My mom recently bought me a Sinus Rinse bottle caused NeilMed from Walmart. It's supposed to be as good or better than the Neti Pot. I haven't tried it yet, but plan on it soon. ...
  13. Joni63
    Hi twinsmom, That is great you found some information that could be your answer. I hope your 2nd opinion goes well and you get some relief! I think not knowing what's wrong is worse than having the answer. It's great news that your hearing has returned to normal. Maybe your ENT is right and it will heal by itself and you won't need further intervention...
  14. Joni63
    Thank you for the info about the Chropractor. I will keep that in mind if I get no relief from the ENT. Had my visit today. They did a complete hearing test and everything looks and works normally. The ENT looked baffled and is sending me for an MRI of my head. He said he was looking for damage to the 8th nerve? I'm pretty nervous about the scan and what...
  15. Joni63
    Can you explain what the Choropractor does to get the fluid draining? I'm very interested in alternative methods. I've considered candling...any opinions if that would help ear fluid? Thanks!
  16. Joni63
    flourgirl, Is it common practice to have a hole put in your eardrum for drainage. Is that what you are saying is barberic or the flushing out of the ear? I'm not sure I would want anyone to purposely puncture my eardrum without trying many, many other options first. It sounds dangerous, but for all I know it could be everyday common practice. I really...
  17. Joni63
    I'm in the middle of trying to get my ear problems figured out now. Mine started ringing in December and have not quit. (I was just dx'd Celiac in August) I ended up with an ear infection about a month ago and was put on antibiotics. Like you, my infection has cleared but the fluid and pressure is still there. I'm visiting an ENT on Monday to see if they...
  18. Joni63
    I doubt I would react. My case is tough, I either don't react to minimal amounts of gluten or don't recognize my symptoms. Other times I can definately tell, but my symptoms have varied so much from glutening to glutening. That is exactly what they told me and the representative was super nice and went out of her way to tell me about the vinegar....
  19. Joni63
    Hello, I haven't been worrying about dilstilled vinegar because I read it is rarely derived from wheat. I called Hunt's yesterday and they informed me that the distilled vinegar they use in their sloppy joe sauce is either derived from corn or wheat. I also read that the proteins that cause Celiac's to react are removed in the distillation process. ...
  20. Joni63
    Yes! You are absolutely right. I diddn't mention that I went to the optomotrist and had a thorough exam and they did find an astigmatism, but no serious problems. It is worth getting those eyes checked. This is exactly what happens to me. My right eye is worse than my left eye. But when I am overtired or during PMS they tend to blur more. I'll have...
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