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jebby

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by jebby

  1. jebby
    That is such great news that you are feeling better and realizing that certain GF grains do not work for you. Quinoa really did a number on me in the beginning.
  2. jebby
    I have spent a good portion of this summer enjoying my time with my family, traveling, and not obsessing about celiac disease (which has led me to not write about it either!) Overall, I am comfortable with my gluten free household and life and have accepted my diagnosis. But, the other day, in part due to fatigue and in part due to accidentally eating a KIND...
  3. jebby
    I have four children, who are all at high risk for developing Celiac Disease. I was diagnosed with Celiac Disease 3 years ago, but have had symptoms since early childhood. My husband does not have Celiac Disease, but he carries one of the two main Celiac genes, DQ2. Due to my children’s risk, I have had their pediatrician screen them when they turn 4 years o...
  4. jebby
    Hi D, The more women that I hear through from my main blog, the more I am convinced that a lot of us have a mast cell problem in addition to Celiac Disease. I am in the midst of getting my insurance to approve a trip to the Mayo Clinic for an evaluation. Once I go there I will report back what I find. J
  5. jebby
    Hi snash, You are welcome. There seem to be a LOT of us who have both Celiac Disease and problems with our menstrual cycles. Although there must be a relationship between the 2 problems, research into this is really lacking. I wish you the best on your gluten free journey!
  6. jebby
    There are many of us with celiac disease who develop additional food intolerances after going gluten free. Despite maintaining control of my celiac symptoms by being strictly gluten free, I have become intolerant to soy (2011), sulfites (2012), and too much dairy (late 2012-early 2013). My allergy skin prick tests for soy and milk were negative, which shows...
  7. jebby
    I am not sure. I have been unable to post for the last few weeks because my posts stay stuck in draft mode. Peter, the admin, has been posting for me since I can no longer do it myself. Are you having similar issues?
  8. jebby
    Hi D, Glad that you are feeling better and that your vitamin and iron levels are trending in the right direction! Jess
  9. jebby
    Hi D, Good to "see" you and glad we are back to blogging (even though we can't post!) Hope your sister finds it helpful! J
  10. jebby
    As I was doing my weekly glance through the PubMed database (www.pubmed.gov) I came across an interesting letter to the editor in the Archives of Gynecology and Obstetrics entitled, “Celiac Disease and Endometriosis: What is the Nexus?” Endometriosis is a common gynecologic disorder, which effects approximately 10% of women of childbearing age. It involves the...
  11. jebby
    Mr. GF, That is very sad that your own MD, who has Celiac Disease, does not keep up to date on the management of your shared problem. This is a misperception that this is an easy disease to manage, since it is diet controlled, but as we all know it can be quite a challenge to avoid small amounts of incidental cross contamination. It's a lot more difficult...
  12. jebby
    Hi Irish Heart, It is nice to "see" you on here. I hope that parents can bring this info forward to their kids' physicans to challenge them when they recommend a gluten challenge. Just about all MDs have access to "Up to Date" and should be able to read the article which I summarized. I think it is important for patients to have as much knowledge as possible...
  13. jebby
    You are welcome. Thanks for stopping by!
  14. jebby
    You are welcome! I hope that you begin to feel better soon!
  15. jebby
    “Up to Date” is an online medical database for physicians and other practitioners. I use it almost every day when I am at work to get a brief overview of the most recent evidence regarding the diagnosis and management of my patients’ problems. I just reviewed the most recent “Up to Date” highlights on the management of Celiac Disease in adults (publishe...
  16. jebby
    Nonresponders are the 5% of Celiac patients who have either persistent symptoms and/or abnormally high Celiac antibodies after two years on the gluten free diet. According the most recent medical review in the “Up to Date” database, there are 5 main categories of nonresponders to the gluten free diet: -Patient is continuing to eat gluten. This is ...
  17. jebby

    Is This Thing Working?

    jebby commented on kareng's blog entry in kareng's Blog

    I have been unable to post my last 2 blog entries and they are stuck in draft form. Does anyone know if/when the problem has been fixed?
  18. jebby
    Thanks BitterGrad for sharing your experience. I hope that in the (not to far) future that Fasano's diet becomes the standard of care for newly diagnosed Celiacs. Had I known of this back when I was diagnosed, I would also have stuck with whole foods for the 1st 3-6 months. Jess
  19. jebby
    If you have Celiac Disease, it is important that you know a bit about your thyroid gland, as you are at a high risk of autoimmune thyroid disease. Experts estimate that between 8 and 12% of people with Celiac Disease have, or will eventually develop, problems with their thyroid gland. Conversely, between 3 and 5% of people with autoimmune thyroid disease...
  20. jebby
    Hi Diana, The "gold standard" would be a repeat biopsy, but I think that for a lot of us who decide to go this route, we would expect to feel a lot better and experience much less cross contamination. Jess
  21. jebby
    One of my favorite Celiac Disease-related pages on Facebook is that of the University of Chicago’s Celiac Disease Center. One of the first “tidbits” that I read on this page, after discovering it last fall, was the following statement: “Women who have experienced persistent miscarriages or infertility without a known medical cause should be tested for cel...
  22. jebby
    Hi Maria, Thanks so much for reading and commenting. I am glad that you are feeling better on the "grandma's diet." It truly makes so much sense for us!
  23. jebby
    Hi, I am in the same boat as you. I went almost 33 years before being diagnosed with Celiac Disease and we have a lot in common (I have 4 kids too). I put a few of my blog posts from my "real" blog on here (The Patient Celiac) if you'd like to connect. I very recently wrote about both the after effects of having a delay in diagnosis as well as infertility...
  24. jebby
    As many of us already know, there are some celiacs who are “refractory” and continue to have ongoing symptoms after going gluten free. In addition, there are a bunch of us who are “super sensitive” in terms of reactions to gluten cross-contamination. I am one of the super sensitives. Not too long ago I had a reaction from eating one bite of a Trader Joe’s “...
  25. jebby
    I am so glad to hear that your daughter is feeling better. I am really trying to get the word out about this condition because I feel that so many people are needlessly suffering from it (including some of my own family members). Message me if you are interested in sharing your daughter's story on my blog, I think it would help a lot of people. Jess
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