tennisman

These days I read online and magazines etc about the health benefits of a gluten free diet and stories of people in articles who had so many health problems and after a day - a month on the gluten free diet are 100 % better .

Yet I have had celiac disease and have been on the Gluten Free diet for nearly 9 years and i'm having worse health problems than before I was gluten free . I don't understand how this supposedly great healthy diet has given me a ton of extra problems :S Is it because the articles I read are from people who don't have celiac disease ? Is it celiac disease that makes me ill even though I stick 110 % to the diet the disease still exists. I don't really understand.

I have done all the tests to check i'm not accidentally eating gluten , I just think it's ridiculous how everywhere says Gluten Free diet is so healthy and I get more and more unhealthy the longer i'm on the diet

<table border="0" cellpadding="2" cellspacing="7" style="vertical-align:top;"><tr><td width="80" align="center" valign="top"><font style="font-size:85%;font-family:arial, sans-serif;"><a rel="nofollow" target="external ugc nofollow" href="Open Original Shared Link src="http://nt2.ggpht.com/news/tbn/zoy-lc6t42ddUM/6.webp" alt="" border="1" width="80" height="80"/>

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<div style="padding-top:0.8em;"><img alt="" height="1" width="1"/></div><div class="lh"><a rel="nofollow" target="external ugc nofollow" href="Open Original Shared Link Some 'gluten-free' beers really aren't</b></a>

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<font size="-1">By Robert Preidt, HealthDay Regular beer and even some brands of beer labeled "low-gluten" contain high levels of gluten and could cause problems for people with <b>celiac</b> disease, a new study says. Researchers analyzed 60 commercial beers and found that <b>...</b></font>

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Saw this yesterday on google . Glad I drink Cider !

Yeah, stupid. At least your country HAS laws, though. We have a useless congress who can't even manage to sort out a budget, let alone pass food labeling legislation.

I find it ridiculous , vegetarian labeling is on everything yet the world can't sort gluten-free labeling properly . England is stupid they sell fake cheap dangerous alcohol , won't be long before these same people sell gluten free foods full of gluten

Under the "old" rules, up to 200 ppm could be labeled "gluten-free" in some cases. While not yet perfect, the EU is moving in the right direction.

I hope so But having 3 different labels , less than 20 ppm , 20 - 100 ppm and no containing gluten ingredients is strange . What's wrong with a symbol for gluten-free or a symbol to say it's not gluten-free .

Wow, this is one of those times where you can tell whoever devised that setup doesn't know enough about the issues relating to it.

Is there anyway to start some sort of awareness that this may not be the best way to handle the labeling?

Lots of people on Coeliac UK Facebook said this isn't a good idea . The UK government is stupid though they think this is a good idea ..

Ho boy, good luck tennisman Is there are provision for labelling something as containing less than 20 ppm, or saying "contains no gluten" or some other way to distinguish that you are getting less than 20? They have probably made that illegal, right?

Thanks mushroom Here is some info Open Original Shared Link it's very confusing . How can restaurants test 20 ppm :S

Ours are going to change to 0-20ppm, currently its <3ppm is considered gluten free. How is Low gluten helpful to anyone with coeliac disease anyways? Has the world gone mad!

I think it's ridiculous , I might as well just eat chinese as soy sauce is most probably low gluten . I think Fad diet has changed celiac disease and it's a big shame . Surely gluten-free has to be 100 % gluten free all this low and 20 ppm or 3 ppm just confuses me :S

So it's 2012 in the UK the new labeling for gluten-free foods starts today . I really don't understand it but I think it's gonna be a mess . 0 - 20 ppm = gluten-free . 20 - 100 ppm = low gluten and safe :S How can a product containing low levels of gluten be gluten free ? It's stupid , also apparently many foods are being taken off prescription because they are luxury . How anyone can call gluten-free from the chemist luxury I will never know . I want to destroy the government :@

I'm in Canada. The Canadian Celiac Association lists "glucose syrup" as safe for us, saying, "the manufacturing process renders glucose syrups gluten-free regardless of the source of the starch."

Thanks for the info

The difference I think is in labeling regs. Some would consider the the glucose syrup processed enough to be gluten free. Personally I would pass on the item.

Thanks for the advice I'm not going to eat them

Earlier I read the ingredients on some sweets . In the english ingredients it seemed gluten free . But below it had AU ingredients and it had glucose syrup from wheat . So this means the product is not okay ? Kinda confused me , never seen a product with different ingredients for different country's :S

Part of the reason so many do not bother with pushing for diagnosis:

1. Testing is only 70-80% reliable, blood or biopsy

2. Many doctors will not do the testing even when specifically asked to by the patient

3. Many doctors do not know how to read the reports and will falsely tell the patient their results were negative

4. Many gastroenterologists do not take enough biopsy samples

5. Many doctors are totally unfamiliar with celiac symptoms and nutrition in general

6. Which means many doctors do not do the testing for nutrient deficiencies and bone loss and hypothyroidism, and their patients have to come here to find out what to do about their gluten intolerance.

My old doctor is obsessed with Endoscopy's , on his website he mentions how he has done over 5000 Endoscopy's ! After I had my 1st Endoscopy every time I went to see my doctor for check ups . He always said I want to do another Endoscopy . I really didn't want another Endoscopy but really regret not having a 2nd one now . I did eventually have another Endoscopy last year which showed the villi had all healed.

I think in england the doctors maybe enjoy Endoscopy's more as my Mum who also has celiac disease needed 2 Endoscopy's . Also in the uk if you go on the nhs you don't pay anything to have the tests . I also think maybe the doctors get paid more when they do Endoscopy's

Who wants alcohol anyway?

I drink plenty of alcohol to make up for not having gluten

We always have a choice. It's your body. Even with a broken bone you have a choice. Wouldn't recommend choosing not to set a broken bone though. But we always have choices in medical care.

I was 15 at the time so I had to do what the doctor said lol . Plus I think in the uk you need to get a biopsy to confirm you have celiac disease so you can get gluten free food on prescription . I don't really wanna do most the tests my doctors have told me to do but I need to get better so don't really have much choice

I didn't have a choice my doctor said I had to have an Endoscopy .

All the extra health problems

Here is another link about alcohol Open Original Shared Link

That website is a joke lol . In the summer I posted a few things on an article about gluten free and weight loss . It was quite hilarious what he posted he never had any good information to back arguments up . I don't listen to any gluten free advice / information unless it's from my doctor , or another celiac .

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If you called today they may be able to email you something before the event, that way you just need to print.

Honestly I always shove a Larabar in my pocket. They usually go through my bag and make me step through a metal detector but they've never asked me to remove anything but metal from my pockets.

Good idea Thanks Or I could put something in my jacket or coat

If you call ahead you might be able to get an exception made because they do not have gluten free food. This would best be done in advance. I would also want to get it in writing in case you are stopped entering and the person who approved outside food is not there. You could also call individual restaurants and see if they have gluten free options. Or you can eat before and after the event. Some places like theme parks allow reentry in the same day so you may be able to bring a meal and just leave the park to eat then re enter.

Thanks for the advice I think I will just eat lots before I go . I'm going in a few days so I probably left it too get something on writing from them , as I ordered tickets for the event last minute. I just don't want to take gluten free food and get it taken away at the event , probably best taking fruit.

I have a note, written on the perscription pad, explaining Celiac and saying I should bring my own food.

I have called venues. I never had to prove it. I have been told to just mention food allergy to Security. I have been sent an email to print & show the security. That doesn't mean I can bring a big cooler or anything extreme. More like a small insulated lunch bag inside a bigger bag and buy a drink at the stadium.

I just do this for all day things. Otherwise, I just eat before I go. Maybe sneak a little pack of nuts or candy in my purse or pocket.

Even with the Doctor's note, I would make arrangements first. The person at the door might not understand.

That's a good idea the note and prescription . I was thinking about taking some prescription foods.

I will eat a lot before I go , I just wanted to take some food for after the event , because the transport system is having work the day I go and travelling could take longer. I might just take some fruit surely they can't take a banana off me .

Thanks for the advice

I was just looking at an Entertainment Venue's Food Policy . They say no food or drink is allowed in , but they have like 20 restaurants / bars in the venue . I looked at most restaurants I doubt many if any have gluten free options as most are fast food . Even if there was some food that seemed gluten free , I wouldn't want to take the risk eating it , as it could ruin the night .

I'm just frustrated they mention nothing about gluten free options in restaurants and say no food allowed in . I wish there was a Celiac card or something we got from the doctor's that would allow us to take food in etc ?

Maybe this is already available ?

Thank you everyone for the advice! But, I thought I would not have to give up milk. I am obsessed with milk. I have it with my cereal every morning, I have it with dinner most of the time, and sometimes if I am hungry late at night I have milk instead of food. Does every gluten free person HAVE to give up milk at first? or do people just choose to?

Welcome to forums , I'm sure you will find lots of great information here I never had to give up milk , my Mum is also a celiac and she didn't have to give up milk either.

What really pissed me off about the reactions I have gotten are from my graduate program. I was told by my adviser that it was inappropriate for me to ask about whether or not I would be able to eat what they were providing at the new student lunch. Even though I didn't ask them to change anything. He said that it was too stressful for them to accommodate everyone's dietary needs. It still pisses me off. I was also questioned this fall if I should be in the field I am in given that I have celiac when I talked to my supervisor at school about how to address the issue with my internship. So this was my bad experiences.

Too stressful , he should get celiac disease than he would know what stressful dietary needs are . Your adviser must be very annoying . Hope you get things sorted