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notme

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by notme

  1. notme
    this week, i tried the nuts dot com brand of gluten-free organic rolled oats with success the texture/flavor was much better than the instant brand (natures path) that i've been able to digest. the taste is 'plain', too, lolz. i jujjed it up with some craisins and mesquite maple walnuts (also from my favorite nut company) off to find golden syrup...
  2. notme
    thanx!! i think that corn syrup would probably work
  3. notme
    i couldn't eat oats of any brand for 10 years, but now i can eat certain brands (nature's path is the one i eat the most) so i guess i had to heal up lolz cristiana, i want to try your 'flapjacks' now!
  4. notme
    i'm in the usa, so not sure if the brands that i use will be available to you. baking powder - i use clabber girl brand baking soda - i use arm and hammer brand vanilla - i use back bay brand yeast - i use fleishmann's brand i don't know how you would make these ingredients - maybe vanilla you could, but i've not had any problems...
  5. notme
    those things are all naturallly gluten free - just read allllllll your labels!
  6. notme
    if i waited for my doctors to give me a firm diagnosis, i would be dead by now. almost 11 years later, they finally wrote on my medical records "celiac: confirmed" 🙄 my blood test was neg, because my gp told me to start the diet without testing first. i was so underweight that the gi doc didn't want to risk a gluten challenge, and basically told me...
  7. notme
    try drinking extra water, too. can't hurt to hydrate
  8. notme
    you can develop allergies as you age. my husband never had hayfever/sinus allergies until he hit 55. then he walked around sniffling and wondering if he was coming down with a cold until i made him try claratin 1x/day. now he takes one per day and he's fine. one of our friends developed allergies at about the same age - the difference was he didn't treat...
  9. notme
    most kettle brand chips are certified gluten-free (maybe not the vinegar ones) also, cape cod brand are as well. i tend to look for that lil' circle what says 'certified gluten-free' when i'm choosing my snackeroos. i am addicted to the kettle 'bourbon bbq' flavor lolz
  10. notme
    hahahahahaaa - i was thinking that! also, plastic is gluten free lololz honestly, i don't know how people eat larabars - they're so gross. when i was first dx'd, we went to the county fair (with allllllllll the delicious gluten foods - there is nothing to eat at a fair lolz) and i brought a larabar for me because i knew i couldn't eat anything there...
  11. notme
    no offense, but go see another doctor. a doctor can not tell you that you don't have it just from what you are able/unable to eat comfortably and without testing. from experience, i can tell you that most doctors don't know much about celiac. my (trusted!) doctor treated my 'ibs' for 20 plus years before he even suggested that i could have celiac (i had...
  12. notme
    by the time they get to my 'group' (non-essential, low risk/healthy, mostly self-isolated) there may be several fda approved vaccines. i am a bit nervous over the pfizer one because i do have weird allergies. i am expecting to be probably in the last group to be vaccinated, so i hope i can choose the safest one for my situation. i would think that everyone...
  13. notme
    i'm curious as to how the parrot died....... my next-door animal hoarding neighbor has one that screams obscenities. i think she put it in the basement where she is hatching chickens........ joy..........
  14. notme
    says the guy with the bleeding throat........ 🙄 i was actually going to refer YOU to this thread, bud.
  15. notme
    before i was diagnosed, i used to catch every germ/illness that came around. after being on gluten-free diet, the only thing that i had to take antibiotics for in the last 10 years was a sinus infection. i do have allergies and i take daily doses of zyrtec and flonase. the sinus infection was already 4 years or so ago. once your immune system starts running...
  16. notme
    maybe. is it blood with mucous? i have no medical degree but i am a mom lolz
  17. notme
    do you have white patches on the inside of your mouth? my daughter used to get thrush originating in her g.i. tract and it would work it's way up into her throat. (she is also celiac and that was happening before she started the gluten-free diet) edited to add: i think the doc that asked you about nasal drip was alluding to maybe you have allergies...
  18. notme
    here is a helpful place to start looking for ways to manage our diet better. it takes a bit to get "good" at it, lolz, don't feel alone. the struggle is real, but not impossible. i think i didn't eat out/take out for a solid year. yeah, at first i was like: o, yeah, no big deal, i'll just order off the gluten-free menu. haaaa ha ha, there are a million...
  19. notme
    what sort of blood test did you put off? how were you diagnosed with celiac? are you eating out at restaurants/getting take out very much? i have had blood work done during this health crisis with no problems. my doctor's office has strict protocols in place limiting their office capacity. i only interacted with the 'vampire' lolz
  20. notme
    dang, chris! if they didn't do any tests, how could your doc diagnose you at all? i'm confused. why did they do an endoscopy without the blood test/because of the blood test? if you *do* actually have it and are gauging your reactions to gluten, consider that you are doing more damage than a little bloating. untreated celiac can cause a ton of damage...
  21. notme
    yes, this is allllll true - it took some adjusting, lolz, but i am 10 years on the gluten-free diet and i am feeling fabulous. i do feel much younger because all those problems i attributed to 'old age, i guess' - nope, not old age, just 25 years of misdiagnosed celiac. i get a check up once a year - one with my gyno, one with my gastro, and twice per year...
  22. notme
    what questions are you referring to and are attributing to cyclinglady?
  23. notme
    whenever i am trying to figure out what the heck is making me sick, i keep a food journal. it is extremely helpful to write down *everything* that passes your lips (even gum - gum makes me ill, no gluten, just artificial sweetener/color/etc - it took my food journal to figure that out lolz) then i use a scale of 1-7 as to how i feel following eating said...
  24. notme
    what's up, charlie - i am a bbs sister ❤️ i smoke a swisher sweet from time to time - the ones with the plastic tips. i never really researched them because the plastic tip is the only thing that's touching my mouth/ aka, i'm not eating them, lolz. i have ever smoked a cuban at a wedding, a little too much merriment decision.
  25. notme
    the medical community can't continue to make $$ if you get a diagnosis of celiac, the gluten free diet is the cure. no meds, no surgeries, etc. my doctors never did test me until i was so malnourished they were ready to put me in the hospital on a feeding tube. i had wonky blood tests and vitamin deficiencies for years, but they never did suggest celiac...
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