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notme

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by notme

  1. notme
    i agree. i guess they aren't sick enough. yet.
  2. notme
    once i got diagnosed, half of my family got tested (all neg) so they discounted it, even though they had many, many symptoms. my son has type 1 diabetes, which is also caused by the same autoimmune gene. fast forward, my brother, daughter and nephew are all gluten free now and their symptoms have gone away. without a diagnosis. it's hard to get a firm...
  3. notme
    my 2 cents - many of us had a terrible time getting diagnosed. if you have a celiac dx that you didn't hafta fight tooth and nail for, take it at face value. i still have encountered some doctors who doubt that celiac is serious. which it is. and, yikes! i wouldn't want to spend any more $$ on a second opinion.... your numbers support a celiac diagnosis...
  4. notme
    same here - 'ibs' for 25 years
  5. notme
    well, what are you wanting to eat? obviously, you can't have regular bread or pasta. there is a pinned post in this section of the forum, go ahead and read through it. "newbie 101" many good suggestions and recommendations. in the beginning, I was like, o, i'll just order off the gluten free menu, but it's not as simple as that. I would suggest you...
  6. notme
    yes, definitely try cooking your veggies/fruits. in the beginning, I could not eat raw veggies but cooked were ok. after a while, I could eat raw things. also, pay attention to your fructose intake - I had issues with fruits for a bit. now, I can eat almost anything except gluten. it takes TIME, too, so don't forget to take it easy on yourself. i'm...
  7. notme
    oats were deff a problem. honestly, it took me 10 (TEN) years to be able to eat them again once in a while. I obviously missed them a lot!! so, I kept trying them every 6 months or so, and different brands until I either healed enough to be able to digest them or I got lucky and this one brand is actually not cross contaminated. misterseth, you are...
  8. notme
    lolz, kk, I would try this, but my Hungarian grammy would rise from the grave and slap me silly !!!
  9. notme
    keep a food journal. many foods are probably going to cause you discomfort to digest for awhile. what did knitty kitty call it? a "mood, food, poo'd" journal - what did ya eat, how did ya feel, how was the level of discomfort/digestion. that will help you to eliminate some foods for a while until you heal up some and your villi get healthy. once you...
  10. notme
    yes, I have experienced this - didn't realize I was compensating for my memory by tricking myself - like: when I see this, i'm going to remember to bring the post office keys when I go out. I still do it, but not as much. writing stuff down helps, too. lists help also, as long as you remember to take it with you!! lolz
  11. notme
    as soon as I could eat without it making me sick (started eating gluten free) I gained 20 lbs in, like, 2 weeks. the rest of the weight gain getting me back to my normal weight is still in progress. I've been at the diet for 10 years. BUT after being stuck between 115-120 lbs, I have finally gotten above the 120 lb mark. eating a lot of proteins, nuts...
  12. notme
    I get that a lot. I don't really even discuss it much anymore. my gp loses my records every time they switch computer systems, lolz, I could tell her I have leprosy and they would put it in my records. then lose them next year ? I go to my g.i. to keep up one prescription, he takes blood, tells me to eat activia ? check. my gp does full blood workup...
  13. notme
    for me, personally, I just eat whatever i'm hungry for. sometimes, just gluten-free toast or something light, a little tea. or, sometimes, after i'm done feeling icky, i'll eat a huge meal. that being said, I've been on gluten free diet for 10 years. your guts might be more sensitive if you're just starting this journey. fyi - my blood test was negative...
  14. notme
    crescent roll dough in the can!!!!!!! I am so hopeful, I check the poppin' fresh aisle every shopping trip. ? gluten-free oyster sauce, packaged wonton wrappers, phyllo dough....
  15. notme
    lolz! I can make a chat bot! it's just gonna say, "I know you are, but what am I.....?" ???? I would take anything free from apple, I graduated high school with laurene, hahahaaa I am gardening - got half of my herbs in, harvested the cabbages we started from seed in july, they are now becoming sauerkraut (about 3 gallons!) gotta put red cabbages...
  16. notme
    amen to that, gemini - I was looking up good sources for naturally occurring zinc (from foods) and discovered that I am already eating most of the suggested things that are high in zinc. they say zinc will help ward it off if you are exposed? mleh, can't hurt, lolz I haven't gotten any flu shots. ever. I don't feel one way or another about them,...
  17. notme
    I am sending billy to the grocery store, etc. hey, lady, just lie about the age to that virus!! you don't look a day over young, anyway! I feel ya - heyyy, I busted the 120 lb mark at my last g.p. visit I now weigh a whopping 121 lbs - wooo hoooo - I am partially attributing that to my lower histamine awareness that allows me to eat lots more things, just...
  18. notme
    I am a huge hand-washing advocate? when they come home from school/anywhere, they know the first thing i'm gonna tell them is: WASH YOUR HANDS that being said, lolz, yeah, they're germ factories. when the coughing 11 (ash Wednesday) wanted to sit next to his favorite church lady, she wanted nothing to do with him, I didn't blame her, and they...
  19. notme
    honestly, scott, I haven't picked up anything except one sinus infection in the past 10 years. everybody got the 'bad flu' last year, even the (big, tough guy) husband was in bed suffering for days, I fully expected to be sick next. then, nothing. not complaining!! I spent years sick with everything when my immune system wasn't working due to untreated...
  20. notme
    ok, lolz I am so bored.
  21. notme
    mleh, I think it's already been here - about a month ago, one of my grandkids had a dry cough for like, 2 weeks, no fever. I gave him cough syrup with cough suppressant and it went away on it's own. this was before anybody was nervous about covid-19. didn't think much about it. a week later, the other 11 year old had a sore throat and a fever. one of...
  22. notme
    hi, gem! good to see you!! I have found I also have histamine problems. not hives (yet! lolz) but I need to watch what I eat and rotate foods to stay 'balanced' ? daughter and brother = same. brother used to (like you, cyclinglady) break out in hives and swell up by being bit by any insect, used to need to go to the e.r. where they would give him...
  23. notme
    I really thought I would never be able to eat them again, but the nature's path brand is the one I can eat. I stopped trying different brands when I could eat this brand, like finding something in the last place you look i can eat them once or twice per week, even adding (nuts dot com) mesquite maple walnuts and craisins!! yum o, I hear you, Cristiana...
  24. notme
    i couldn't eat oats for, like, 10 years. I kept trying them every 6 months or so. processed foods, same thing. I was undiagnosed for 25 years, I can imagine, when I started on the gluten free diet, there was plenty of healing to be done! keep yourself a food journal - include alllllll ingredients and your body's reactions. adjust accordingly, until you...
  25. notme
    hiiii, you should go to the coping section of this forum and click on the 'newbie 101' thread at the top. lots of good info and advice. skip the restaurant food for now. read allllllll the labels. if you shop the perimeter of the grocery store, you have lots of choices, meats, vegs, fish, cheeses. I stay away from lots of processed foods, in the beginning...
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