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notme

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by notme

  1. notme
    yes, me! I have a weird symptom of my neck and shoulders ache when I get glutened - popped a gummy bear in my mouth the other day, dumb me, then I read the ingredients. some gummy bears are gluten free, these were not. spit out gummy bear, rinse out mouth, etc, I must have gotten a little, because the next day, there was my telltale neck ache. so, it...
  2. notme
    i agree with Fenrir, in the past 10 years I've been gluten free, I have not been sick with *anything* except one sinus infection that I had to get antibiotics for. allllll the flu, colds, pneumonia (!) that I used to get all the time, everybody else gets sick, I do not. even the flu last year that laid up my super tough husband - notme! lolz
  3. notme
    this was one of my unexplained symptoms - gp said it was allergies, ent said it was because the tubes between my inner ear were too small to drain quickly enough to correct my balance? when I quit gluten, this was another thing that went away. celiac is systemic, which means it can affect any part of the body. stopping the inflammation from ingesting...
  4. notme
    I had to limit or skip many fruits for many years - my g.i. suggested I have fructose intolerance, but I have been able to successfully add most fruits back to my diet. I think the amount of time your body is healing is a factor. I couldn't eat raw veggies at first, but they were ok if I cooked the daylights out of them. now, I can eat most raw vegetables...
  5. notme
    I ( and many of us) use the 'find me gluten free' app - you plug in the address of where you want to eat and the app will bring up potential restaurants in the area with reviews from actual people who ate there. it's for real, I review on it all the time. that being said, not many restaurants are perfect, choose wisely, ask questions and don't be shy when...
  6. notme
    yesterday, we made (o gosh, I watch too much food network, lolz) a trisha Yearwood recipe for garlicky beef shank stew - made it with a venison roast in our cast iron dutch oven. t'was delicious and basically no fat to drain off because venison is so lean. served over jovial pasta. Saturday, we made fried butterflied shrimp, cocktail sauce and a zucchini...
  7. notme
    food/mood/pooed - I love it, kk lolz I have to take zyrtek and acid reducer at night, Flonase and Xanax (very small amount does the trick) in the morning, and use nasalcrom before eating. this, plus strict gluten free diet has done wonders for my digestion/energy/overall LIFE. look into something called mast cell activation syndrome (or also called...
  8. notme
    have you read the newbie 101 thread in the coping section of this forum? lots of good info there. yes, you probably need to have new or separate cookware for him. there is an app called 'find me gluten free' for restaurants that have real celiac reviews to help make educated choices for him. frankly, some restaurants are unable or unwilling to keep food...
  9. notme
    I have been canning and preserving. I made a batch of tomato jam that 2 jars did not seal, so, trying to figure out to do with that to use it up lolz - it is great on ham, cheese and egg sammiches, that's a texas sized 10-4 ! sunday, we made northern nj style Cantonese chicken chow mein - I got the recipe that duplicates the Chinese restaurant chow...
  10. notme
    crescent roll dough, biscuit dough, pizza dough, etc - please mr. Pillsbury poppin' fresh dough boy, go gluten freeeeeee!!!!!!!
  11. notme
    I eat nothing without an ingredient list! also, I would think that not ALL gyro meat is that way. I make my own, have browsed many recipes and haven't found ones with flour of any sort in them. maybe it's just restaurant gyro meat?
  12. notme
    what restaurant in Knoxville was that? I eat in knox vegas all the time and I would like to skip the contamination!!
  13. notme
    cross-reactivity is a myth. cross-reactivity is a myth. cross-reactivity is a myth. cross-reactivity is a myth. gluten is the only thing that will cause a gluten reaction. that is wheat, barley and rye. NOT coffee, NOT grapes or any other food. I can eat white grapes, drink white wine - can not do red wine or grapes. not anything to do with...
  14. notme
    I put it on my shopping list lolz
  15. notme
    yes, you can have gluten withdrawal - I had it and it lasted about 2 weeks then every day was better than the last. I skipped dairy for about 6 months and at about 6 months (yes, this long) or so, I felt like a fog had lifted off of my brain. if you are having a gluten reaction, it will cause inflammation anywhere in your body it wants. nerves are the...
  16. notme
    it probably hasn't made it out of Canada? why does it seem like Canada gets all the good gluten-free stuff first lolz i'll look down here but, you know, even if there was a nuclear war, it wouldn't make it to east Tennessee until 2 years later......??
  17. notme
    you are going to have to fight for a diagnosis then, I guess if you are needing an 'official' - that would be for making a meal plan for school as they need an official diagnosis for a 504 plan. or, if you trust she can eat gluten free on her own and never cheat (and if your school allows kids to bring their own lunch! you never know these days, lolz...
  18. notme
    I eat mission tortillas allllllllllll the time. no GLUTEN reaction although my digestion was a little wonky when I first started being able to get and eat them. I attributed that to different food that was processed so I had a little intestinal distress but not gluten reaction, which includes all sorts of different lovely symptoms such as headache, body...
  19. notme
    Friday was grilled burgers - mushroom & swiss burgers, tomato, pickles - I get burger buns from the red robin when I go to eat there. I will get a half dozen and pop them into the freezer for such burger occasions. ate with pot cheese (aka cottage cheese) Saturday, was kareng's chicken shwarma or however you spell it - thanx k, it was super delish...
  20. notme
    I use a one-ee and I have extra one-ees for visitors and if I want to smoke with friends they can each have their own one-ee if I gotta share a doob, I TRY to be first, then others aren't glutening me lolz. I make somebody else lick the zag if i'm rolling, which I hardly do because ya waste too much. my friend went to a dispensary and got a bunch...
  21. notme
    hi dana I used to play clarinet, back in the day. your mouth is only touching your new mouthpiece and reed, did your new mouthpiece include a mouthpiece cover? that, I would think, would be the only way you would be ingesting any residual gluten. you know, wash your hands after you play I guess, just in case anybody ever played it drinking beer or...
  22. notme
    not a product, but I did watch a cooking show where they made corn dogs with cornbread batter and hot dogs in a waffle iron. I really want one now...…………….. canyon bakehouse makes good stuff. I can only get the plain bagels here locally, but the everything bagels I have had in florida and they are spot on edited to add: we have the bfree pit...
  23. notme
    Friday = date night = a trip to the butcher ha ha ! we bring 2 coolers with ice into the butcher shop, the girl behind the counter takes my list and bags everything up in the portions I ask for. we go about once every other month and fill up the freezer. everything is organic and fresh - locally sourced. then, we go out to eat dinner at a good, safe place...
  24. notme
    (hi, rmj, nice to see you!) just be as careful as you can! shop the perimeter of your store, and fresh veggies and plain meats are always gluten free. if you're unsure of ingredients in a product, you can google said suspect ingredient(s) lolz I googled some stuff that turns out was gluten free, but just gross - maraschino cherries are colored with...
  25. notme
    I went undiagnosed for 25 years. I have been on the gluten free diet for 9 years. I am still seeing improvements in my health and I am still adding in foods that I had eliminated because my body couldn't tolerate them. so, I think the healing time has quite a bit to do with the amount of damage that has been done. I figure 25 years worth would take longer...
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