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Muffy

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    Female
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    Living my life!
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    United States

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About Me

I had intestinal reactions to formula as a baby.

I have always, since childhood, had anxiety, fatigue, muscle twitches, migraines, insomnia, asthma, and extreme PMS.

I developed Graves Disease at 21, it almost killed me I was in the hospital for almost a week. In my 20's I also started to get weird bumps and rashes that itched on my knees, wrists, forearms and hands. My migraines also started to increase in severity and frequency.

By the time I got to my 30's I was able to add muscle, joint, and nerve pain. The migraines were almost constant. I was dizzy a lot, often I was unable to drive and even walk from one room to the next without having to sit down on the floor for a minute. I started getting cloudy-headed in addition to the fatigue, and I was pretty depressed for a while. I was diagnosed with rosacia and started getting itchy rashes on my chest. I developed allergies/intolerances to tomatoes, kiwis, mangos, melons, ginger, agave, and bananas over a six year period.

2 years ago I started to feel discomfort in my stomach and intestinal areas that came and went for a few months, increasing in severity until I went to the ER and had to have my appendix out as well as part of my upper and lower intestine as it had turned to stone. The doc literally told me it clanked like rock against his tools and that none of them had ever seen anything like it. They offered no official diagnosis or suggestions for moving forward.

My cousin told me about the inflammation caused by refined sugars and I cut it all out in a desperate attempt to stop the headaches. And it did help some. Since I was transitioning away from processed foods in the process I started to notice that MSG was a migraine trigger. That got me thinking about gluten in general and I did some research. Once I saw the connections I cut it out and I haven't had a headache in months. Almost every symptom I discussed above is completely gone.

It was hard at first. My brain finally gets it though and I find it easy to stay both gluten/grain and dairy free (I also discovered how very sick all grains and dairy make me in this mess) - it's the cross contamination that gets me! I am what they call 'super sensitive', I react strongly to airborne VOC's and processed things that are supposed to break down the gluten protien so I suspect that in addition to celiac and gluten intolerance I have a full blown wheat allergy as well.

I am about a year and a half into recovery, My husband and daughter have gone gluten-free as well and they have similar symptoms that have decreased significantly.

  1. Muffy

    ARCHIVED I'm Pregnant

    Thanks for pointing out the connection between adrenal supplments and pregnancy. Last Week I startded the supplements and have been offcially trying to conceive for 3 days now. After I read your commment I peeled the promotional sticker off the bottle and now I can see the pregnancy warning. :whew:
  2. Hello, I am just re-kindling my gluten/wheat issue research. I have been gluten free for about a year and a half, maybe a little longer. Shortly before going gluten-free I went refined fructose super-lite and right after going gluten-free I went grain, dairy, soy, and canola oil free. I have a long history of thyroid issues, rashes, dead intestines...
  3. I have occasional issues with apples and I think it's the coating. I also have problems with dairy and I read somewhere on this forum that some waxes can be cassien based. In any case, I always wash them with gluten-free soap and it doesn't help at all. I sometimes have reactions to frozen veggies too, and that trips me out. I'm always reacting to something...
  4. Have you been tested for parasites?
  5. That's how feel. Yuck. And when I watch people I care about eat it I want to cry and scream, but usually I just try to educate them. And then they blow me off.
  6. I am super sensitive, although I struggle with accepting this strange reality. I react to processed foods, products, distilled alcohol, flour particles in the air, and I suspect VOC's from cooking wheat products as well. And those are just my wheat issues. I am still figuring it out and get CC'd everywhere I go so it has been hard for me to process everything...
  7. Definitley. From what I understand stress in general increases our perception or vulnerability to pain. And further, I find that when I get CC'd I get both stressed out and have a lot of pain. The stress is a symptom just like the pain so they naturally go together. I'm not sure what the likelihood of you being CC'd or what your symptoms tend to be, but if...
  8. That is how I undertand it as well, that once the overactive thyroid (Graves) flares down the thyroid just remains damaged and in the underactive state. Be careful with the Graves. It almost killed me in 1995. I had NO idea anything was wrong at all, it was before most if my obvious wheat symptoms started to surface, right before actually. My heartate was...
  9. I get extra big shares of MEAT!!!!!!! But we all do since I made the whole house go gluten-free. They guys love that I am always craving steak and bacon though, that is for sure.
  10. From what I understand the reason some alcohols that are grain based are gluten-free is because the offending gliadin protien (is that right?), which is one protien within the gluten protien (which is a dual protein), is broken down during the fermentation process. Similar to the way it is broken down in aged cheese. (eww dairy... I know Depending on...
  11. Hi weluvgators, I run the before and after school program, which means I am in the cafeteria/gym during the entire cooking and eating of breakfast. Plus I serve a daily snack and students sometimes bring thier own breakfast or snack as well. I did finally manage to get all the traces of non-gluten-free playdough out of there. And I finally trained my...
  12. I know this thread is old, but it has been very helpful. I have been gluten-free for about 9 months and have been feeling so much better until recently. At firstI thought it was the hoildays with the parties and house guests and all that figured I was getting CC'd that way. But it is getting worse, like it is building up in my system and I am freaking...
  13. I have also been CC'd this week and noticed the big change in my mood. I get anxiety with hopeless dark moods as well. And I also get really paraniod and have serious brian fog. It gets increasingly severe if I get CC'd frequently and don't have a lot of time to get it out of my system in between - a cumulative effect.
  14. I voted both but I don't feel my GI symptoms much, but they do take a lot of damage. The neuro affects are what actually bother me and they are similar to the others listed here. One thing that is very common for me as well is a difficulty swallowing. Like to the point where I have almost actually chocked on food that I can't neither swallow or move out of...
  15. I also get the singular bumps, like a weird bug bite. I called them volcanoes for the longest time because they would erupt as I scratched and scracthed and would take forever to heal, my scratching didn't help. I get them on my hands, wrists, forearms, upper cest, neck, face, and knees. There is never any kind of symmetrical pattern. I have an itchy...
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