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ms-sillyak-screwed

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  • Kim Klingele

    Kim Klingele

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  1. Well I saw the Internist, after I asked if it were possible, he started my .25 of synthroid. He didn't want to do it himself but agreed that it wouldn't hurt if I gave it a shot.

    I just wanted to warn you about the ingredients in our thyroid medication. If you have a problem with gluten, dairy or corn you might have a problem with mainstream thyroid meds. I found out the hard way.

    The drug companies don't tell us that they buy their dyes (in all colored pills) from companies that process gluten in their other pills factory lines. It causes cross contamination (CC) It has become a problem for us and most of us don't know why we aren't getting better. I have been forced to go to a compounding pharmacist. They will make your thyroid medication without the binders and dyes that make us Celiac sick. It had helped me a lot!

    If you need one. I'll post a link to help you.

    AS far as getting tested for celiac disease. Why bother make your sick body sicker by pumping yourself for several weeks to get a positive test result??? If you don't have ENOUGH gluten in your system you will get a false negative. A few days won't do it, a few weeks might. I'm a celiac that experiences seizures from it and all these secondary food allergies too. If you are reactive to these food groups there is your answer.

    Have you looked into seconary food intolerance/allergies to legumes (soy family), nuts, corn, potatoes, opr dairy??? Many of us Celiacs develop seconary food problems, it's a matter of time. Kepp a food body journal. everything that goes in your moth and comes out of your body and how will give you an indication of what works and doesn't.

    Oh, one last thing -- I don't know if I posted it here in this thread, or not. But do yourself a favor and REMOVE SOY from your diet. If you have thryoid problem SOY is poison. It is documented in many of the new books about thyroid and celiac disease that have come out in the past year or so. Mainstream isn't going tell you SOY is bad, just like they don't believe gluten can kill. It does. I know first hand. I wish someone told me about the SOY and thyroid problems 5 years ago when I went gluten & dairy free.

  2. I am in the same situation -- limited what I can eat.

    Check out my profile below. I was also non-meat eater 15 years. I'm convinced it never helped me in the end. I felt I couldn't digest it, it would make me constipated. Now, I eat plenty of meat and I it what makes me feel alive. I can't go with out it. Remember what cavemen - cave women ate. Have you read the PALEO DIET? It's on the [must read list]. It will explain much of this, and a better way to eat. It helped me. You might need to scratch everything you have been doing and start all over again. Go basic, then introduce foods one at a time...

    Be aware that it happend that some of us celiac's can't do corn, potatoes, rice and soy too. I'm one it took 5 years and it appeared after gluten & dairy free diet , that I didn't cheat on.

    We develop secondary food intolerance and allergies like I have. No one tells you about it until you ask questions. It is common in this disease. It is documents in the new books coming out about celiac disease.

    Also -- I want to warn you about SOY. I really wish someone told me. Many are in denial and don't want to listen to me beat my drum about SOY. It caused my problem! However regardless of what the (clueless) medical community says -- one day a food is 'good' then in no-time it's on the 'bad list' -- SOY creates problems for many of us as time passes. There are several threads here pro and con. I will link them if you'd like. Now with that said SOY is in the LEGUME family. They are ALL beans. I've had to do away with them too.

    Something I just learned about advacados is they are in the latex family, so if you get a reaction to latex gloves, advacados can also be problemmatic. They were for me, I found out the hard way.

    You must also consider cross contamination (CC), if you live with other people their crumbs in your food can cause it too.

    DRINK DISTILLED WATER ONLY. It will make a difference too. There are minerals and things that can overload your body when ill...

    One last thing. What some of us do -- like one of the posters wrote is a food JOURNAL. I have been keeping one for over the last year now. I must tell you it will help you pin-point what is giving to you a reaction. It will help you understand your body and whats good and bad. I know it takes time, but not that much. Less then a minute per meal. I first write the time of day and what I ate. I keep it in a large paged spiral bound journal in the kitchen counter someplace, and everything, and I mean everything, that goes in my mouth and comes out (you read that right) is written between those pages. I write what my stools are like, formed, not formed, explosive, pale, steatorrhea diarrhea the smelling kind or with undigested food particles. This is very helpful in knowing what type of reaction a certain food you just ate is giving you. You can go back and refer to see a pattern. Please think about it and try it, it will help a lot I promise.

    Be well!

  3. Deborah Scaling Kiley wrote me back -- Celiac is in her NEW BOOK. Her dear friends daughter almost died from celiac disease. They used her "The Ten Lessons For Survival" - in the book.

    We have to get a copy. I'm ordering one...

    If you want me to post a link to amazon, just ask and I will.

  4. I eat huge amounts of soy, not so much by choice but because two other family members can't have milk, one being lactose intolerant, the other requiring a gluten fee/casein free diet. I recently heard that eating too much soy can be a problem but not what the threshold is. I tend to rely on Amy's when I'm working 12 hour shifts and that's all soy and we go through about 3 gallons of sugar free soy milk a week and I tend to pick tofu as my main source of "meat" protein.

    But, I have hypothyroid (my guess - Hashimoto's but who knows) so I wonder if my soy intake really matters with regards to my thyroid.

    WoW that's a lot a Silk Milk!~ I was doing the same thing but soy was also in the foods I ate, tofo, brazil nuts (modified soy) its in my vitamins, in tuna, canned fish< hurricane food I was eating. Plus soy is also in the legume family of foods it all beans, peas, chickpeas, string beans, snowpeas, and the list goes on that I have developed a problem with.

    Just a thought - I wouldn't want to stress my sick body part with the stuff that was making it sick to begin with. You want to eat the right foods for a healthy thyroid. Soy isn't it! It can be confusing because hyper (fast) or hypo (slow) thyroid function are very much different to treat and cope with the symptoms. So you must keep that in mind in your health care plan. There are a few good books out, not a lot, but a few with good up to date information. If you can't buy them your local library will lend them, and if they don't have a copy they will order you one.

    I know exactly how you feel Elizabeth, I have felt that way every day for 3 years. I was diagnosed about a month and a half ago and am still not feeling any better. I know its awful and I know its not much help but I can really understand what your going though!! ..its hard but it takes time.. unfortunately most of it is spent feeling really crappy..

    sillyak you seem to know about different diets and such. I was wondering do you know if the paleo diet or the SC diets are affective for someone thats really underweight.. im 5'4 and only weigh 85 lbs..im desperately trying to find a way to get some fat on me.. lol... I dont eat meat, but could if it meant I would feel better and as far as I know I dont have any problems with any dairy I ahvent been tested for other allergies. I eat rice and rice based breads but I stopped eating potatoes last week so I will see if that would help. I will go days with out eating any and then have some and I dont feel sick.

    any help would be great!!!

    The paleo diet book you must read it. It really will help.

    I am your height. I have a shape now. My lowest was 98lbs I hate to say... I'm up to 109. It's work because I had to make a total shift in the eating patterns I had created and causing me not to maintain. I was suffering post tramatic stress and going through several week of being sleep deprived. My thyroid was in the hyper mode my blood levels showed I was about boarderline hyper and my endo doc said "Oh, that's okay. Do you know how many woman would love to look like you do, at your age?! Be happy your skinny." Anyway, I changed my thyroid medication getting a lower dose from another doctor. And I had it made by a compounding doc that makes RX's free of the dyes used in our medication that is cross contaminated with gluten. And for me its problematic because they all had corn and dairy in them as well which I'm unable to tolerate either.

    I feel better on the compounding RX medication. Not like I want to crawl-out-of-my-skin!

    I went to, of all types of doctors, to my Chiropractor, he has been working with me to re-set my digestive system. And he had changed my eating habits to a large meal for breakfast, snack, lunch, dinner another snack. For me I always skipped breakfast, ate a late lunch, never missed a big dinner. Now my big meal is (giggle) dinner for breakfast. When you get a copy of the paleo diet it has meal plans and easy things that are safe and taste good.

    But remember it's basic.

    Plain chicken, fish, seafood, meat - grilled, broiled, or baked.

    Plain veggies - zucchini, summer squash, asparagus, broccoli or what ever you can tolerate - steamed, grilled, broiled or baked.

    Plain fruit - raspberries, blueberries, blackberries, melons watermelons - fresh or frozen in smoothies. And BANANAS. LOTS and lots of bananas. bananas are my best friends. :P

    I have been doing research for my blog about celiac disease in the historic newspapers in the early 1900's. They were feeding babies lots and lots of bananas. It was good for them they gained weight and thrived, the other didin't. And research would later show it helped them ward of celiac disease until later in life. I eat a 4 banana smooties with blackberries, raspberries everyday. So simple - I put the bananas in the fridge, and use the other as frozen fruit. I put it in a blender with the chilled bananas. Try it - it's yummy!

    Oh, one last thing. Do you juice? Because if you get a juicer and juice, you can power pack vitamins in to a juice you can drink. I do it too. I put things like carrots, lots and lots fresh pasley, zucchni and more. I feel super after a couple days of these.

  5. They hide the name(s) they use for soy.

    They can call it "protein", or "veggie broth", "lecithin" they will confuse you with these below...

    Other names for soy

    Edamame

    Miso

    Mono-diglyceride

    Natto

    Okara

    Soya, soja, soybean, soyabeans

    Soy protein (isolate/concentrate), vegetable protein

    Tempeh

    Textured soy flour (TSF), textured soy protein (TSP), textured vegetable protein (TVP)

    Tofu (soybean curds)

    Yuba

    Possible sources of soy

    Note: Avoid all food and products that contain soy in the ingredient list, e.g., soy cheese.

    Baby formulas

    Baked goods and baking mixes, e.g., breads, cookies, cake mixes, doughnuts, pancakes

    Bean sprouts

    Beverage mixes, e.g., hot chocolate, lemonade

    Bread crumbs, cereals, crackers

    Breaded foods, chili, pastas, stews, taco filling, tamales

    Canned tuna/minced hams

    Chewing gum

    Cooking spray, margarine, vegetable shortening, vegetable oil

    Cross contamination, e.g., containers, utensils

    Diet drinks, imitation milk

    Dressings, gravies, marinades

    Frozen desserts

    Hydrolyzed plant protein (HPP), hydrolyzed soy protein (HSP), hydrolyzed vegetable protein (HVP)

    Lecithin

    Monosodium glutamate (MSG) (may contain hydrolyzed protein)

    Natural flavours, e.g., listed in ingredient lists may be soy derivatives

    Processed and prepared meats, e.g., beef, deli, pork, poultry

    Sauces, e.g., soy, shoyu, tamari, teriyaki, Worcestershire

    Seafood-based products, fish

    Seasoning, spices

    Snack foods, e.g., candy, chocolate, energy bars, fudge, popcorn, potato chips

    Soups, broths, soup mixes/stock

    Spreads, dips, mayonnaise, peanut butter

    Vegetarian dishes

    Non-food sources of soy

    Cosmetics, soaps

    Craft materials

    Glycerine

    Milk substitutes for young animals

    Pet food

    Vitamins

  6. DON'T SEE a nutrionist or dietician unless they have read DANGEROUS GRAIN, or the PALEO DIET.

    PLEASE do be afraid to ask how much they know before you go to your visit and how many Celiac's they have treated. Ask if they have read these books.

    SAVE your MONEY! They don't have a clue, we do know more then they do...

    glutenexpat --- I know what you mean about support group. The one down here leaves a lot to be desired. They have their own AGENDA, and push their vitamins and their doctor that doesn't carry medical malpractice ins... and on and on. They are in denial about seconhardy food allergies and don't have an open mind.

    I think a major hospital in JACKSONVILLE treats celiac disease. I will do some research and post it for you.

    Q -Do you know what they say about getting sick in Florida? Where is the first place to go when you get sick here?

    scroll down

    A - To the Airport!

  7. HERE IS AN ARTICLE THAT JUST APPEARED IN THE FORT LAUDERDALE NEWSPAPER

    Open Original Shared Link

    Open Original Shared Link

    Fab bean or has-been?

    The legume is healthful but, scientists say, it's no magic bean. Too much, some add, might pose risks.

    By Hilary E. MacGregor

    Times Staff Writer

    May 8, 2006

    WHEN soy burst onto the Western food scene in the early 1990s, the possibilities for the bean seemed boundless. The protein-packed legume had potential to prevent breast cancer, increase bone mass, alleviate hot flashes. It seemed to lower cholesterol, and thus to help prevent heart disease.

    Millions of dollars were poured into research, and technologists plopped soy into every food imaginable. They ground it into burgers, hot dogs and sausages (Tofurky was born). They processed it into cheese, milk and ice cream. Manufacturers added it to baby formula, and baristas foamed it into lattes.

    Purists consumed soy in its traditional Asian forms — as tofu, tempeh or edamame — while hard-core health nuts sought out soy protein powder or isoflavone-packed supplements.

    But 15 years later, with ever more soy products available in the grocery store and conspicuous soy consumption a cultural shorthand for "Hey, I'm health-conscious!", the tides are turning against the Asian wonder food.

    Call it the "soy backlash."

    A crop of books and articles are now warning about the dangers, not benefits, of the bean.

    Soy now has its very own tell-all, penned by a certified nutritionist: "The Whole Soy Story: The Dark Side of America's Favorite Health Food."

    It's being tracked by an international watchdog group, the Soy Online Service, whose mission is to "uncover the truth about soy" and inform consumers about "the plethora of criminal and dangerous lies that issue from the soy industry."

    Soy, we are warned, can do terrible things should we overdose on tofu or soysauge, suggests the men's magazine, Best Life: "Grow man boobs! Shed muscle tone! Boost estrogen! Saps your sex drive!"

    These reactions are extremes. But even mainstream scientists are pulling back on once-heady health predictions for the bean. New research is showing that soy is not the magic bullet researchers once hoped it might be.

    Yet these scientists also see soy's fall from grace as the latest casualty in Americans' endless — and unrealistic — search for a single substance that can change your life.

    "It's just food!" says soy guru Mark Messina, an adjunct professor of nutrition at Loma Linda University in California, who has written books on its health effects and consults for the soy industry. "We are talking about diet here. Not the fountain of youth."

    The vegetable in the hairy pod is a pretty complicated bean. Native to China and Japan, it is termed the "king of legumes" because it has the most complete protein of any member of the pea family. It is high in calcium, magnesium and vitamin B, and contains estrogen-like chemicals — isoflavones.

    Soy has had its share of celebrity champions. Henry Ford was batty for the bean. He created a car made out of plastic from soybeans, wore a soybean suit and soy fiber tie at various public functions, and served a 15-item soy menu at the 1934 World's Fair.

    But it was in the 1990s that evidence of soy's possible benefits began to mount (see sidebar) and books and magazines took the science and ran with it. "Are soy isoflavones the women's health powerhouse?" asked a 1997 article in the newsletter the Nutrition Reporter, adding that soybeans might end up "the ultimate women's health supplement of the 21st century."

    The market for soy foods exploded.

    Over the last 10 years, the average growth rate of soy products has been about 14% a year, says Peter Golbitz, president of Soyatech, a soy industry information company. Even now, he says, soy sales continue to grow, albeit less briskly. "We have been selling to baby boomers and hippies for the past 20 years," he says. "Now it is time to embrace the changing demographic of the American consumer."

    That, he said, includes Latinos, Gen X-ers and Y-ers.

    Perhaps no food could withstand the hype heaped on soy. But with more rigorous scientific examination, the bean's starry promise seems to be crumbling.

    In January, the American Heart Assn. published an advisory pulling back on its earlier, 2000 stance on soy, which had recommended "including soy protein foods in a diet low in saturated fat and cholesterol." January's statement said that a review of 22 studies showed that soy protein with isoflavones did not, after all, seem to improve cholesterol. Thus, the association said, it "could not recommend the use of isoflavone supplements in pills or food for the prevention of heart disease."

    Alice Lichtenstein, a nutrition scientist at Tufts University and the chair of the heart association's nutrition committee, says the scientific cart simply got ahead of the horse.

    "Soy is good," she says. "Soy as a food is very good" — but only because it has healthier fats and vitamins than, say, meat. If you eat a soy burger, you are not eating a hamburger. If you are eating a tofu pup, you are not eating a hot dog.

    This April, there was more bad news for soy. Although many women consume soy or soy supplements in the hope of preventing breast cancer, a study in the Journal of the National Cancer Institute found differently.

    After analyzing 18 studies, the authors concluded that eating soy may very slightly reduce the risk of breast cancer — but not enough to recommend soy foods or supplements.

    For breast cancer survivors, taking soy supplements (as opposed to food) could actually be ill-advised, says study coauthor Robert Clarke, a professor at Georgetown University's Lombardi Comprehensive Cancer Center.

    Unlike soy foods, supplements contain high levels of estrogen-like isoflavones, such as one called genistein. And estrogens coax breast tumor cells to divide, says coauthor Leena Hilakivi-Clarke, a professor of oncology at Georgetown.

    The hot flash connection has also begun to erode. In early trials, soy isoflavones reduced hot flashes by 9% to 40% in menopausal women, but most of the 25 or so trials done later showed no difference from placebos.

    More than soy's effectiveness is now under scrutiny: A few scientists are actually voicing fears about its safety.

    Some worry that soy may affect thyroid function, and even interfere with the absorption of synthetic thyroid hormones. (However, a March review of 14 trials found that neither soy protein nor isoflavones adversely affect the gland.)

    Others are worried about reproductive problems. Last year, researchers at the National Institute of Environmental Health Sciences found that mice given genistein right after birth developed irregular menstrual cycles and problems with ovulation and fertility. This year, they reported that genistein disrupted the development of ovaries.

    "Whether these things cause problems in humans, we just don't know," says Wendy Jefferson, an NIEHS scientist and the paper's lead researcher. "But so many babies are on soy formulas. If these things are going to be a problem … it is a problem that would only manifest later, when a woman was trying to get pregnant, or having reproductive cycle problems."

    The research led an independent panel of 14 scientists to meet in March and decide whether soy formula — fed to an estimated 10% to 20% of U.S. infants — is hazardous to human development or reproduction.

    The panel concluded that soy formula was safe but the one pediatrician on the panel expressed concerns. Dr. Ruth Etzel, who works at the Alaska Native Medical Center in Anchorage, says exposure to soy formula occurs during a critical time in infancy and might possibly affect development of the brain and reproductive system.

    Yet even as some soy fears grow and much of its promise is being shot down, new possibilities are popping up.

    A recent study suggested that if women consume soy during the third trimester of pregnancy, it could help program fetuses with a craving for healthful foods and a good metabolism.

    Others suggest that when women eat soy could be key. Research by Anna Wu, professor of preventive medicine at USC, suggests that girls who eat a lot of soy during adolescence — when their breasts are developing — may be less likely to get breast cancer later.

    And bone strength may be one place where soy really delivers. A three-year, $3.4-million study funded by the National Institutes of Health is testing whether soy isoflavone supplements can help preserve bone in the lower part of the lumbar spine in post-menopausal women.

    Nutritionists watch the very public taking down of soy with bemusement — and slight exasperation. Many point out that meta-analyses (which pool results of different studies together) are not the best way to determine a food or medicine's effectiveness — especially in the case of soy because the product comes in so many forms.

    But they also see the fall of soy as part of the cycle of American pop culture, be it celebrity or bean: hoist it up to impossible heights, then drag it down and bash it. The truth about soy, they say, is somewhere in the middle.

    "Soy is eaten by two-thirds of the world's population." says Dr. David Heber, director of the UCLA Center for Human Nutrition — apparently quite safely. If anything is problematic, nutritionists say, it is the quintessentially American habit of assuming that if a little of something is good, then a lot must be really good. Eat soy as a food, they add. It would be nearly impossible to overdose from eating too much tofu, tempeh or soy burger.

    And be realistic.

    "If a drug company came up and said 'We are going to develop a product that reduces the risk of heart disease, reduces the rate of prostate cancer, that alleviates hot flashes and does good things for bone, and that doesn't have any side effects,' they would be laughed out of the room," says Dr. Gregory Burke, a professor in the department of Health Sciences at the Wake Forest University School of Medicine.

    But just because soy is not a magic cure for hot flashes and breast cancer does not mean it isn't a good food.

    "It should be thought of in the same way that people think of exercising, not smoking and a prudent diet," Burke says. "It is not to be overdone, and not to be said it is worthless."

    Soy's medical side

    The idea that soy could help with chronic diseases, especially women's diseases, came from comparisons of Asia to the West. Rates of breast cancer, heart disease and endometrial cancer were known to be much lower in countries such as Japan, where soy foods like tofu are frequently eaten.

    It is hard to boil vast cultural differences down to a few foods, but scientists tried to adjust for other lifestyle differences and found that after they'd done that, eating soy still appeared protective.

    The data were intriguing enough that in 1991 the National Cancer Institute made millions of dollars available for soy research.

    In 1995, the New England Journal of Medicine published an analysis of 38 clinical trials that found eating an average of 47 grams of soy daily reduced bad (LDL) cholesterol by 12.9% — the same effect as modernday statins, and with no apparent side effects.

    "To find a food that lowered cholesterol 13% was phenomenal," says soy scientist Mark Messina.

    In 1999, the Food and Drug Administration granted a health claim for soy: Foods with 6.25 grams of soy protein a serving (and which were also low in fat, cholesterol and sodium) could bear a label declaring that the protein might lower heart disease risk.

    Right around that time, women's health was gaining attention and boomers were hitting menopause. Hot flashes became the topic du jour. Soy, again, took center stage.

    Scientists hypothesized that soy's so-called phytoestrogens might be why Japanese women's rate of hot flashes is one-third that of Americans. Early research supported that notion.

    Studies have also shown that Asians who eat soy have higher bone density than Asians who don't; animal studies suggest that both soy and soy isoflavones can keep bones dense.

    Small, clinical trials are encouraging: A study published in the American Journal of Clinical Nutrition in 2000 reported that perimenopausal women who took 80 milligrams of soy protein powder with isoflavones daily over six months did not lose any bone mass in their lumbar spine region.

    A control group who took whey protein lost a small but significant amount of bone (1.3%).

    — Hilary E. MacGregor

    Copyright © 2006, The Los Angeles Times

  8. BetseyCo--I hope you've found out what was going on since your last post. Don't lose hope. I'm 5'6 1/2" and was down to 94, but four years later I'm actually up to 125 and I love it--I finally fill out my clothing and spill out of my bra. When going on the gluten free diet I was so emaciated and malnourished that I couldn't really eat fatty foods, but I started introducing them slowly so they wouldn't make me sick. I eat tons of avocados (high in fat but healthy), lean red meat (I hadn't eaten that for nearly 6 years because docs thought it was too rich for my delicate digestive system), and a good share of dark chocolate. When gaining weight, I did no exercise at all, but now it's time to get back in the swing of things because I've used weight gain as an excuse not to workout but my weight has been stable for over a year and a half--guess now my only excuse is that I'm too lazy to get off my now-nicely-padded behind!

    I'm doing several of the same things and they are working too. I weighed myself and I'm up to 109lbs from 98lbs.

    I can't eat avocados (they will bring on a celiac disease seizure) I'm allergic to laytex along with it are avocados too. But BANANAS are the thing that helps those with celiac disease gain weight. I found some old medical articles written by doctors about 'banana babies' and their treatment of celiac disease. Bananas lots of bananas are in my diet I drink 3 or 4 banana smoothies I make with frozen raspberries and blackberries.

    I have been seeing my chiropractor 2 times a week he is resetting my digestion system.

    I extremely limited as to what I can eat with all these seconary food allergies. However, I eat a large meal for breakfast. Dinner for breakfast. Chicken, burger, shrimps (protein), veggies streamed. Things like baked carrots and zuchinni. I eat 3 meals a day and consume and a good share of dark chocolate also. Dark chocolate is good for you - if you can find it dairy and soy free.

  9. this is where a hard-core elimination diet can help. they suck, and they require a lot of pre-planning, and did I mention they suck. (they are harder mentally, than physically, because you are litterally eating no more than a dozen foods in a week, and maybe only four or five in a day - that includes your spices and cooking tools like oils.) the basic premise is that you go do a very low number of very easy to digest, very hypoallergenic foods - you'll want to do some research on them, I certainly don't remember (I do know grapes weren't on the list). you eat nothing but those foods for two weeks. then you add in other foods, one at a time, one week at a time. it is a long, slow, mentally challenging process. it's HARD. but it is better than the 'eliminate one thing at a time' route, if you're dealing with multiple intolerances.

    VydorScope -- I know what you are going through... I have been forced to do this... I really agree with tarnalberry. She's smart. Have you read the Open Original Shared Link? Think simple - 'caveman simple' it's the only way. Then add into your diet things little by little and you will see what you can tolerate. She is right [it's NOT easy and HARD]. People need to take celiac disease serious.

    I thought it would be a cake-walk. It was for 5 years - and then all these secondary allergies and illnesses showed up. I know no one wants to listen to me beat my drum about SOY. But Vincent read a couple of these books, you're sharp you pick up fast. Soy is bad for us. It says it in these and many respected books. Did you read Dangerous Grains? We have to eliminate certain foods then rotate our other foods and not eat the same things over-and-over, that is how we get allergies or intolerance to it. We get enviromental triggers too. I that read another very good book about what triggers our systems from childhood and the progressions through out our lives. In Dangerous Grains he explains how most of us get it (other intolerance/allergies), its only time...

    So back to simple - try a simple diet for a few weeks.

    I have been able to gain about 9-lbs in the past few weeks, or month. This is what I'm doing. I'm going to my chiropractor 2 times a week, he's resetting my system a justing my digestion. He has me eating my large meal for breakfast. So Vincent -- Coffee and fruit don't cut it! I know -- It was my rountine my entire life. Not now. I eat dinner for breakfast. It's silly isn't it?! Once you do it a couple times you can make it a habit. Today I had my coffee but with a my breakfast meal, baked carrots & chicken, baked zucchini with tarragon w/olive oil. I had a 4 banana smoothie with frozen blackberries, and frozen raspberries for a mid-day snack.

    Banana's do wonders for us. I've just found several old medical articles from the early 1900s where they were treating Celiac babies with huge amounts of bannanas back then. As research would come to show it helped them as they aged and it works for them gaining weight with celiac disease. I'm going to try to post the articles how to bake or the process to use them, and many are very helpful things mentioned in the press then.

    Eating a good breakfast in the morning is also essential

    She's right!

    Forget cereal for breakfast if you can't do dairy (or soy) -- have protein, a burger, chicken, turkey, tuna or fish, with steamed veggies. No starchy veggies. Try it let your imagination get creative you just have to plan ahead. Stay away from potato chips, the oil they use might be more of a problem with CC. Also with potatoes you might have a problem with dealdy night shade veggies. Look at legumes also. Break the foods into there groups and see which ones give you symptons and which don't.

    Oh, one last thing when I feel weak, frail, or like I don't have blood in my veins (for a lack of better term) I drink Open Original Shared Link baby electrolyte replacement drink. It will help balance your blood sugar, and replenish what your body needs after steatorrhea diarrhea, or just feeling sick. It helps when I feel a headache coming on sometimes. It's about $4 or $5 a bottle. Get the unflavored, so no chance of a problem with 'flavoring'. Healther then sports drinks. You can find it on the baby isle in Walmart, Wagreens, CVS, just about anywhere. They also sell as 'Whole Foods' as a powered electrolye packages you mix with water. They work, but for me too many additives. This stuff helps me a lot more. Buy some, try it. It works!

    One last thing -- DRINK DISTILLED WATER ONLY!

    Be well - hope you feel better soon!

  10. Open Original Shared Link

    I just saw this ad on TV, there is a chicken breaking up with bread and bread says something to the effect of "is it the gluten" "is there someone else?"! LOL!

    it looks like a fried chicken tender type product check it out!

    I think if you go to breadlesscoating.com the main page you can see the video of the commercial

    I WROTE TO THEM.

    Dear Sirs:

    Please tell me what the ingredients are in your foods. I have many

    food allergies...

    Thank you.

    THIS IS WHAT THEY SENT BACK

    Re: Breadless Coating

    Our ingredients are as follows: Chicken Breast (containing up to 18%

    Solution of water, salt & sodium phosphate). Almond meal, soy flour, soy protein concentrate, flax seed meal, salt & spices.

    Hope this helps.

    Customer Relations

    Breadless Breading

    info@breadlessbreading.com

    ______________________________________________________

    I can't eat nuts or soy. Too bad the chicken looked good.

  11. ....I mean I'm alive, I may have other complications from this disease that hurt but....I have use of all my limbs, I can breath, talk, laugh and walk. I can see, I can smell and I can feel. I don't need things other illnesses do like radiation or dialisis. I won't need to spend the rest of my life being cared for, and I know as long as I stay gluten-free I have the potential for a long life. So looking at it that way; I know I can deal with all the complications, aches, pains, being glutened on occasion, etc. Giving up Gluten can really suck after loving it for most of your life but when I get on the pity pot I just remind myself....."I Eat To Live, I Don't Live To Eat" so just because I can't have some of the things I used to love, and that my friends still love, doesn't make me any less of a person or any less special! Food does not make me who I am in this world!....

    Bridget -- GOD BLEASS YOU! I pray you stay healthy! You are very lucky you are one of the Celiac's that haven't developed the many secondary food intolerance/allergies that many of us have. Or you haven't developed them YET! Most of us do, it only time. No one tells us about it. I wish I knew early on...

    I was in denial too, thinking I could just go gluten-free & DF and it be a cake-walk through this illness. It was 5 years later I ended up with radiation treatments, thryoid problems and a list too long to post. I wish I was as lucky as you. I am all alone suffer from celiac disease seizures and the seconadary food allergies. I am a happy loving person. It's not so simple. I have gone from 112 lbs down to 98lbs. I EAT to LIVE and it has forced me to LIVE to EAT. Celiac KILLS -- never forget that. I know this first hand for a fact. Open Original Shared Link I have has 2 family members die as a result... I pray to our dear God I don't end up on a feeding tube like Auntie...

    Canadian Karen -- Are the "nits" gone yet? Sure way to add drama to a vacation.

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