ms-sillyak-screwed

Guhlia -- Thank you. I'm going to tune in...

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Lynxear -- Welcome newbie you've found the right spot. The people here are wonderful you will get many answers to a lot of things now.

I looked at the test...

1.) I don't watch TV only the Sopranos... and haven't been on a date to the movies in 5 years.

2.) Open Original Shared Link

3.) Nope

4.) Sometime I wonder where I'm going.

5.) Nope

I wonder if I'm just an insominac?

As far as sleep goes I'm begining to wonder what to do. I can't take normal sleeping meds cause they are filled with corn, dairy or gluten things that make me sicker. I applied last week for a sleep study by a drug company. They turned me down I'm not healthy enough. I was very disappointed.

I'm trying something different I wear little black eye masks so it forces me to keep my eyes closed and not look around the room to follow the light. No stimulation TV clocks or anything in my room it doesn't really matter.

My problem is right now its 3:00 a.m. east coast time and I should be sleeping. I can't fall asleep lately. I toss and turn until 5 or 6 a.m and I hear the birds chirping. I thought it was my thyroid meds had me in the hyper-mode, but thats not it. I do end up getting 7, 8, 9 or 10 hours sleep when I do fall asleep. I could never hold down a job if I had too. Last night I had a dream I was in a plane crash. I was in th ecockpit with the pilot could see the runway and he diverted to a crash. I asked him where he was going. Silly maybe I miss not having my plane anymore. lol

I do have a cousin that has stage 4 narcolepsy and she has just developed a thyroid goiter I think there is some connection to her not getting sleep and the thyroid problem. She was tested and her levels are fine she said. I made her go for a celiac panel test. She said it was negative. I don't think she has enough gluten in her system to get a true reading.

jcc -- thanx for the posting I'm going to pass that information on to her. Do you have any reference material I can email her a link?

Goodnight & Sleep Well!

Yes, I had it too really bad. Then I had a Hysterectomy at a young age early 30's about 10-years ago. I wore a HRT patch Vivelle 0.05 I went through major stress and not long after was when I peeled it off for good I ended up sick with celiac disease. I'm wondering if I should go back to HRT again...

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But how do dogs and cats get it?

I didn't think SOY was a problem, until it became a problem. In time it will come out main stream the truth about soy, just like wheat.

Viola -- Sorry about your girlfriend. I know what it feels like I lost my best friend and dog on the same day not long ago. I will add Elizabeth to a prayer list... many hugs.

I was just wondering are there any writers in the house? Professional or otherwise?

On St. Patties Day when Open Original Shared Link taking about green beer and celiac disease. The talk show host brought to my attention something we have all talked about in some form or another here. That is -- getting to the drug manufactures and bringing awareness to the doctors about celiac disease.

The idea is this – How about we find a list of all the drug manufactures or pharmaceutical companies’ names and addresses all around the USA. It’s not that hard to find. Post them all on a thread here. And with it for those of us that aren’t the writer types, the writers in the house will create a letter that will get the point across and make a strong impact. We can post a few versions of a form letter that we can each copy and paste into our word processing programs on our own computers. Each of us fill in the blanks with our stories about or desire to find a cure and what our ailments are and etc... And we then print out a copy to each company, mail them to the research and development department and maybe even CC to the CEO’s in hopes of a cure.

We can pass them around to all our friend and families and ask them to do the same for us. Tell them if they want to stop listening to us complain, or watch us sick, they do something also and can help in our efforts too. They can tell their stories of how sick we get. Also we can make copies and pass them out at our local celiac disease support groups too.

The worst that can happen is we all spend maybe $25.00 on postage stamps stationary and envelopes, and a few hours in front of our computers. It’s a small price to pay. And as a group we can say we really tried… Open Original Shared Link We are all a big family here that loves and cares about each other. If we unite in this effort we might help and make a difference.

Remember there are 3 million of us that are DX and millions more that aren’t, YET! If it is true as reported there are 1 out of every 200 people with celiac disease the numbers are a lot greater then we think.

All of us talking to a doctor that has 7 minutes max with each patient isn’t going to listen to us cry to them “WE NEED A CURE!” They aren’t going to take it upon themselves to help. They want us coming back so they make $$$ on us being sick; they don't have an insentive for a cure. Never forget that. But if the drug reps that calls on these docs talks to them about the drugs they are developing and a new treatment or new drugs we will get what we need. And we end up winners! Perhaps we need to come in the back door of the doctors offices and not as we are doing being as the call us 'patients'. We can no longer be patient!

What do you think?

I welcome your thoughts and ideas…

So any writers in the house? Up for the challange? I believe we can find a cure!

I know its been awhile but how did the presentation go?

Did this show ever air again?

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SOY IS POISON FOR CELIAC'S If you wonder why you aren't getting better it's the SOY!

I was gluten dairy free for almost 4 years and then I realized I was poisoning myself w/ SOY. I can't do dairy at all and soy caused me major thyroid problems. After the thyroid problem I was then unable to eat CORN, night shade veggies or legumes. And most nuts cause me a problem now too. I wish I could eat all the wonderful things everyone else eats here. Reading all of the wonderful things all of you eat I really have a challange but I love to cook so I mix different things and I make it yummy.

-Breakfast -- Banana & Coffee Black w/sugar -- Or sometimes I make a fruit smootie from scratch. Or a veggie juice drink I make from the juicer.

-Lunch -- Burger and mushrooms with a cucumber... Or Chiken or Turkey Salad (chicken or turkey, celery, zuccini and carrots shreaded, celentro, or parsley, taragon or basil and olive oil.) Sometimes I'll put spanish olives in it or sliced up peaches or pears. It's really good try it! NO TUNA Salad -- most tuna has SOY in it beware! Shrimp salad with parsley and celery with olive oil.

Or I have chicken soup or turkey soup or meatball soup from scratch.

-Snack -- Banana or Peach.

-Dinner -- Fish any kind, Meat (I enjoy a big fat Costco Steak), Chicken or Turkey, grilled, broiled or baked with seasoning. Veggies are carrots baked in the oven with a sprinkle of olive oil, sometimes I make zuccini that way with tarragon seasoning. Asaragus steamed with a cap of olive oil. Broccoli steamed the same way or Artichoke baked with water in th ebotton of a glass baking dish. Baked squash of any kind with seasoning and olive oil. Now a problem> Potato only once in a blue moon [giggle].

Sometimes I make turkey with rosemary or meatloaf with shedded carrots and zuccuni w/ seasoning.

-Snack -- Banana or Pear or Rasins or Grapes. JeLLo

- Dark Chocolate w/ decafe coffee.

I drink Gatorade

PEDIALYTE DOES WONDERS WHEN I FEEL SICK, YUCKY, DRAINDED, OR IF I FEEL A SEIZURE COMING ON. IT THE BEST THING I FOUND TO HELP WITH CELIAC...

Vitamin B-12, Folic Acid and Pantothenic Acid shots have helped me a lot with many of my ailments. I'm going in for another shot tomorrow -- once a week is good for me.

But how does the consumer know what vats the fries are fried in?

And how do you know if the vats are cleaned each and every night and it the cleaning agent will distroy gluten.

Don't loose sight that each McD is different. Some are owned by the corp McD and others are franchise and don't stick to the guidelines set by corp.

Everyone get on their soap box about we should know better not to eat at McD. But not everyone is as smart are you are, or understands the celiac disease as you might. We all go through our learning process with celiac disease as what to eat and not eat.

Ursula -- you are right. Thank you. You have helped me so much you have no idea. xo xo xo

When I had my food allergy tests SOY was so so high I couldn't believe my eyes. It was worse then anything else. I think I have continued to damage my body with soy for the past 5 years even if thought I have been gluten and dairy free... It's gonna take me a long time to heal my body.

We need to spread the word to our Celiac family here online before they get sicker and don't know why.

Read all labels...

I don't have kids so I'm really clueless. Many here know a lot more then I do. But I would stay away from soy at all expense.

I created a web site for my local celiac disease support group and I posted this link on their site. I don't know what they say about soy but take a peek. Open Original Shared Link

Oh I did read something about Open Original Shared Link

M&M have milk in them I know because they were my all time favorite candy I can no longer eat.

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Soy is called soy.

It's also called veggie broth in many things also in TUNA FISH packs.

It's in chocolate bars called lecithin -- soy lecithin.

It can be called emulsifier and/or artificial flavoring.

I wish I know about soy before I did the damage to my thyroid. It goes back for me to birth I only made the connection a short while ago. My mom has since passed on but my 85-year old daddyO winters with me and he was telling me all these things. My darling mother had my daddyO chasing all around South Beach Miami looking for Soy MILK, or Goat's milk beacuse I was allergic to MILK as an infant. And my mother didn't breast feed me. A bad no no. Who knew it would cause me life threatning illnesses and celiac disease later in life.

Don't listen to doctors -- listen to your body!

Oh I also am thinging of changing my screen name from Ms_Sillyak_Screwed to "Soy_is_Poison" [giggle]

Don't feed babies SOY! NO matter what the doc says.

I added this post last night PLEASE take a minute and READ. SOY IS POISON!!

Open Original Shared Link

I pulled up the ensure web site and looked up what is in it. click on the link to read for yourself.

Open Original Shared Link

I won't consure SOY if you paid me a million dollars. It is the casue of my thyoid problems.

I know plenty about adoption... and finding birthparents.

I WILL HELP YOU!

What would you like to do? I don't think this is the form.

And some people might nice agree with our views.

Send me an email and I will guide you in the process. Click on my profile my email address is listed.

I want to share will all my Celiac cyberspace friends what I found out about SOY. I thought I was getting better gluten & dairy free and replaced SOY as a major part of my diet. After almost 5 years of living gluten & dairy free I developed major THYROID problems I believe are from SOY. It is my opinion... but read for yourself and draw your own conclusions.

I welcome others throughts and views on this so we all can understand this better.

Open Original Shared Link

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Open Original Shared Link I hope this helps.

This is where it came from Open Original Shared Link

I'm thinking I should start a thread so our Celiac friends can learn how bad it is before they end up like us...

Open Original Shared Link

candidas?

I was tests it was negative.

My 85 year old daddyO gets them he told me and he's a diabetic.