ms-sillyak-screwed

For those of us that can't eat NIGHT SHADE VEGGIES I was told tomato's fall into that category.

I'm Italian and miss it more than I can express...

Robix -- I went through this too. Find a COMOUNDING pharmacist for your medication. They will make what you need with out the binders with Gluten, Corn and etc.... That's what I did and it helped a lot.

SOY IS POISON!!!!

I just went through something today I'll share with you.

I have been buying package tuna for the longest time it listed

INGREDIENTS: Light tuna, water, VEGETABLE BROTH *, and salt.

I called the manufacture of the food and it took me all day long.

I found out VEGETABLE BROTH * is SOY.

Now I know why I'm not getting better.

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Great book it helped me too!

I know this is a silly question... but I'm a sillyak... lol

They say celiac disease isn't contagious. But could it be? And could we get it or give it to our pets.

As I read these posts and think back in time I find a connection in time with me getting celiac disease and my pet living with me and me getting sick. My dog died young very skinny and had a di·ar·rhe·a with many of the same symtoms I have with celiac disease.

Also I have another little dog now. He was with me about 5 months prior to the other dogs death. Then I had radiation on my thyroid and the tech that did it to me told me to keep my little doggie away from my thyroid gland. You know like picking him up close to my face/neck and giving him a kiss or sleeping with me. I kept him away but I later found out the radioactive material didn't leave my body as fast as my doc had hoped and it was in my system longer then we thought. My doggie sleeps on my pillow with me then and now. He has developed many health issues now.

Any ideas about how we and dogs and cat get celiac disease?

Watch out for SOY!!!

It's also poison for us with thyroid problems.

LEGUMES are in the SOY family too.

Open Original Shared Link on the right side I list some links about soy... I'll add them here. Open Original Shared Link and one more Open Original Shared Link or this one is great it's not on my blogg yet. Open Original Shared Link

Take care and be well.

Robix -- Some others here might agree or disagree with me on this and might they might know more about it then I do. But give it a try and stay away from GULTEN, SOY, DAIRY and LEGUMES (they are soy family). Eat protein veggies and fruit.

I know about the gas embarrasment. It happened to me too out with people one night I wanted to die when all eyes looked at me.

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The dog food I feed my dog was called WD it's by RX only sold by a VET.

I noticed most of you're babies are cats. They also sell cat food too.

I dug out an old can I still have and I found their web site Open Original Shared Link I think it will take you there.

The can had a phone number listed 1.800.445.5777 for questions

Just a note -- as I just read the ingedients in the WD CAN dog food it listed eggs, corn and cracked pearled barley... they have several different types. I was feeding the dog the DRY food and it didn't have those things in it. The can food was for rare occasions...

Hennessey -- It's been a while... did you find out what the lump was?

Rusla -- knows a good deal about thyroid problems too I remember reading she had a problem also.

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You gal's have me giggling...

Last night I was reading about gluten free cosmetics, and I ran to my make up drawer and tossed hundreds of dollars worth of make up in the trash. I was in a delema as to a gluten free mascara... I guess some of us won't need it... lol

I also had long eye lashes as a child but I'm a diva and love make up so I paint away...

celiac3270 -- comment about

"Pharmeceutical Industry -- even though few of us would actually take a pill for celiac, there are HUGE awareness benefits if one is made and FDA approved. You would get advertisements, and the pharmeceutical industry, which contributes to a lot of medical education, would make sure doctors knew about celiac, so money could be made off of people taking expensive pills every day. This area is really out of our control, though, unless anyone wants to set up a lab and make the pill ."

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celiac3270 is bright beyond his years. I wish he was a doctor. I would be his patient, he had helped so many of us.

I think he's right. I also think we need to some how get to the Pharmeceutical Industry and perhaps they will listen to the drug reps that pay them a visit and give them free whatever... Maybe we could work on sending letters to the drug industry and jamming their mail boxes. Think of this one for a quick minute -- if you look at illnesses, the nation spend the most $ , not on cancer, diabetis, heart problems, the #1 thing is digestive disorders... It might make sense to focus on bringing to their attention celiac disease?

4tomorrow -- don't let this MCDonald french fry thing get to you.

I posted something back a few threads back that generated a lot of hate mail for my suggestions I was happy celiac disease was in the news and the family was in a law suit with McD. I was happy they were making McD accountable and what better way. Everyone got on me about it not being good. It is their thoughts and feelings. It's okay! Many said that McDonalds didn't miss lead the consumers. I didn't feel that way. But now I just read the thread about it came out in CNN that they do have gluten in the fries. I reserve anymore comments. I'm just going to sit back and watch how this all plays out.

Please don't take what is said here personal. This web site has a lot of wonderful people that care deeply about one and other (& U 2) and celiac disease.

So please keep posting and stay tuned in.

Be well!

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Hi my friends!

I was hoping some one had the URL to the above information. I wasn't as swift as the other's to pull it up.

No long ago my dog died, and the diet the vet put her on (before I knew what I know about celiac disease) the dog food was free of wheat, it was replaced with peanut shells, and her poop was alway pale and crumbly. I'm wondering if my dog died from celiac disease. I have another little dog now and he has many of the same symptons.

I'd enjoy reading more information. If you can repost the link or copy and paste the artice, it would be helpful.

Thanx again

Jocelyn357 -- I'm not sure if this thread is okay to post this but I don't think others will mind.

I noticed you said you get seizure episodes. ME TOO! WHAT ARE YOURS LIKE??? I also suffer from them along with post traumatic stress (PTS), celiac disease and other life threatening food issues. People don't understand what we go through... I look great -- except those people don't see me when I'm laying on the bathroom floor having what I call an 'episode'. I have just discovered epilepsy in my family the hard way. I have, oops, had an Auntie that was on a feeding tube being pumped with gluten and she was getting them too. I was powerless to stop the doctors and nursing home. She is no loger with me she passed holding my hand at hospice in Oct.

Open Original Shared Link along with some links I found about celiac and seizures (on the right side bottom of the blogg)

But, my seizure started if I eat corn, gluten, dairy or other things that trigger it for me. The first 3 time in the last 10 years they came from pop corn. So I stopped pop corn. It seems that after the food gets into my colon it spasms so bad and the pain is so intense, I loose control of my body and pass out. I've hit my head cut up my head from hitting it on the bathtub or floor. I wake up with my little dog licking my face. I can't control my bowels (imagine that) I shake, get really pale white, feel like I'm going to die, and can't cry out for help. It adds to my PTS. It is frightening to say the least. My 85 year old daddyO lives with me in the winter months and he has witnessed them. One time he picked me up off the bathroom floor and put me into bed, and gave me electrolytes it does wonders for me.

I get the night sweats, not cold anymore (that was from my thyroid) before I had it radiated. That's another story. After reading several of Rachel--24 posting she helped me see something I never noticed I was doing. If I eat any sugar about 3 or 4 hours or so before bed I get them too.

I've lived gluten & dairy free 5 years. I have not been tested for celiac disease the doctor said I had a spastic colon and wouldn't do a biopsy when he did the colonoscopy. And another doc told me "You know you have celiac disease and I know you have there in little you can do save your money."

On Monday my daddyO is going for the celiac disease profile test. He said to shut me up and prove he doesn't have it. But he has only one symptom he's anemic oh and he's diabetic, borderline hyper thyroid. I have read posts that say unless you eat gluten before you are tested and right before you are tested you will come back with a false negative. So over the weekend I'm going to feed him gluten everything and hope I don't get cross contaminated.

Oh that reminds me -- check the ingredients in your medication, it might contain gluten and dairy. It might be adding to things. Go to a compound RX that is free of those binders they use.

The other things I've learned here (the group here is wonderful people) that if you have a seizure and want to be tested for epilepsy you have to be tested with in 24 or no more then 48 hours max in order to get a true test results otherwise it a false negative. I haven't gone for testing... I don't want to loose my drivers license. I'm alone, no hubby, or kids to help me.

Stick to your gluten free diet. Some of us have more then celiac disease here. Soy is a problem, green tea, dairy, peanut butter, night shade veggies for some. Listen to you body and stay connected to these wonderful people we all care about each other here. Sorry my post is so long --

Stay well!

I did the allergist routine to the tune of a few grand... He treats people with enviromental allergies -- I don't suffer from that. They told me they can make an antidote. It was a huge waste of $$$ for me...

Are you speaking about DNA tests to see if someone has celiac disease or prone to get it?

I was hoping there is a DNA test for celiac disease. You see I had a group of doctors and a major hospital mess up a celiac disease profile on my dear auntie, that was on a feeding tube, they were pumping her full of gluten and dairy. I fought with them day and night to change her diet. The result was she died. And they botched the celiac disease profile blood work before she was moved to hospice. Open Original Shared Link. What a nightmare! I have some of her DNA and I am still searching for answers to if it is what killed her or the docs misstreatment of her needs.

So my question is there a DNA test for celiac disease?

I am also one that can't tolerate LACTOSE and SOY.

A little bit will make me sick a lot makes me sicker.

BEWARE LACTOSE & SOY is in our medications too.

I've ended up on thyroid medication (I believe it and a few other factors is a result of a soy problem). So be smart and research what is in your medication I did and what a shock I got. I also didn't know LEGUMEs are in the soy group, legumes are beans, almost all the bean family. With help from my celiac disease support group here, I learned they are in the night shade veggie family and I can't eat any longer.

Good luck and be well!

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WHAT A BUNCH OF CLOSED MINDED PEOPLE!!!!

I posted this because I feel thrilled celiac disease is in the news. And everyone is bashing this family -- REMEMBER what it was like when all of us here didn't have a clue of what we were dealing with. Why food was making us sick. Or what to do to stay alive.

You should all welcome this family with open arms and lend support. NOT BASH THEM.

My point was -- celiac disease will be front page new. It will be headlines... Think about it the food giant McDonalds. People will ask ---what is it called? How do you say it? What does it cause? Or they will learn they have the disease too. If for nothing else it will bring awareness to our country. And then all these big food companies will have to give us real food not laced with all the unseen food additives that are poising babies and others like us. Say what you will -- but think before you bash other people.

And if McDonald says the food is GLUTEN FREE. It should be! We should hold their feet to the fire to be sure it is.

Yes, it's your choice to eat it or not. BUT -- When these companies say it's GLUTEN FREE when in fact we will find it is a BIG LIE we need to make then tell the truth.

Maybe those bashing here -- are angry about other things. Think twice about someone else, that what's wrong with this country. People don't consider others, and only themselves. So think hard again about what your posting. I'm sure you'll send me hate mail -- Whatever -- but it show the type of person you really are.

POA -- Power of Attorney

Hi All! I've been jumping up and down in excitement... My dad found this in the local newspaper. This posting will be long, I'm going to post a few pf the articles here. My feeling is all of us in Florida and around the country need to get together to help this family and attorney it will end up helping all of us too.

WE SHOULD START A CLASS ACTION LAW SUIT!!!!!

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Jupiter couple sues McDonald's over daughter's illness

Staff Report

February 18, 2006

A Jupiter couple sued McDonald's on Friday, claiming its French fries caused their 5-year-old daughter to suffer epileptic seizures, ulcers and the autoimmune intestinal disorder Celiac disease.

In Palm Beach Circuit Court, Mark and Theresa Chimiak seek damages for claims of product liability, negligence, fraudulent misrepresentation and violation of the Florida Deceptive and Unfair Trade Practices Act. The Chimiaks' suit claims that McDonald's fries contain gluten despite representations by the restaurant that its fries were gluten-free and safe for people with gluten allergies.

Between 2004 and 2006, Annalise Chimiak ate fries from both franchise and corporate-owned McDonald's in Jupiter, the suit states. In addition to the McDonald's corporation, franchisee Jupiter Festival Ltd. also is being sued.

McDonald's had not yet been served with the suit Friday, said Andrea Knibbs, a spokeswoman for the Jupiter franchise. On Monday, the Chicago Tribune reported that McDonald's acknowledged that a flavoring agent in its cooking oil is derived from wheat and dairy ingredients.

Copyright © 2006, South Florida Sun-Sentinel

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McDonald's news fries parents of allergic kids

When a neighbor told Garmit Kaur that McDonald's had listed wheat--a taboo for her two children with food allergies--as an ingredient in its french fries, she flat-out didn't believe it.

"I was shocked when I checked the Web site this morning," said the Elmhurst mother. "I thought, that cannot be right because I'm very careful ... and it wasn't there a couple months ago."

But there was no mistake. At the end of a long list of ingredients--including partially hydrogenated soybean oil and dextrose--was the single offending line: "Contains wheat and milk ingredients."

To parents like Kaur, french fries had been one of the few "safe" items on fast-food menus. But on Monday, McDonald's acknowledged that a flavoring agent in the cooking oil used to make fries is derived from wheat and dairy ingredients, which can be off-limits to people with food allergies.

Still, physicians say there is no need to set off alarm bells yet.

The disclosure doesn't automatically put McDonald's fries on the forbidden list, according to Dr. Stefano Guandalini, a pediatric gastroenterologist with the University of Chicago's Celiac Disease Program. The disease, which affects 3 million Americans, interferes with the absorption of nutrients and is triggered by consumption of gluten, a protein found in wheat, rye and barley.

"When you process the ingredients such as wheat in order to derive flavoring, you leave the gluten behind," Guandalini explained, comparing it to vinegar, another product from grains that are neutralized by the distillation process. "We have never found any evidence that eating french fries is a problem."

The wheat and dairy disclosure, coming less than a week after McDonald's acknowledged its fries contain more trans fat than previously reported, was a consequence of a new Food and Drug Administration labeling rule that went into effect in January.

The rule requires the packaged-foods industry to report all common allergens, such as milk, eggs, wheat, fish, shellfish and peanuts. As a restaurant operator, McDonald's does not have to comply but is doing so voluntarily.

A manufacturer with a food product that is essentially gluten-free can apply for an exemption to resolve the confusion, according to Michelle Melin-Rogovin, executive director of the U. of C. celiac disease program.

McDonald's says it is "committed to transparency" about its menu and the nutrition information it provides customers. "It's important to note that the oil, cooking process and ingredients in our french fries have not changed," said William Whitman, spokesman for the Oakbrook-based company.

Still, some people weren't taking any chances. The news ricocheted around the food allergy community, lighting up Internet message boards and unleashing a flurry of calls from parents who already feel as if they're tip-toeing through a minefield when it comes to policing their kids' diets. For some children, even a minute amount of an allergen can turn a birthday party, field trip or sleepover into an event freighted with anxiety.

"My e-mail first started going crazy Monday afternoon," said Sueson Vess of Wheaton, who runs a Web site for people who must follow a gluten and dairy-free diet, www.specialeats.com.

"It's very confusing. ... Just when you think you have the most up-to-date information, things change. It's like trying to nail Jell-O to the wall," she said.

It's not enough to merely take the bun off the hamburger, she said, because the mere contact of wheat with the patty can be enough to cause some distressing symptoms, ranging from hives to wheezing to gastrointestinal complications.

"I'm just so disappointed," said MaryAnn Lukas of Homer Glen, who has two daughters with celiac disease. "When they go out with friends, no matter what town they're in ... they can always go to the Golden Arches. Now what are they going to eat? The boxes? This leaves the hamburger, lettuce, tomato and some of the condiments."

Kaur, on the other hand, is taking a wait-and-see approach.

"This is something my kids will have to deal with the rest of their lives," she said. "You can't react to everything. ... If you do, it will just make you crazy."

brubin@tribune.com

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