ms-sillyak-screwed

FDA Docket: 2005N-0279 Food Labeling Gluten-Free

elonwy -- I applaud you! THANX!

One more down, a world full of doc's to go...

I'm back doc shopping again.

I got my food allergy test back a few days ago. I'm all excited.

But let me back up, the doc treats environmentally sick people. I'm a diva, in a big way glamour-puss, you know, make-up the long big hair, you know it... Well, either my deodorant, hairspray and/or make up products give off a fragrance and I'm not toxic to those patients. I won't go barefaced, wet hair and peeeU no deodorant....Although I believe he is a wonderful doc and is doing a lot of good in heath care.

I'll keep looking South East Florida for a gastro doc that understands Celiac and toxic food.

Hi all!

Interesting about our thyroid and the effect with food.

I did the same and played with the meds, I found that I can't tolerate the NATURE-THROID either because I can't tolerate the PORK. I will say I didn't feel wired or hyper, more natural over all but my digestion was totally off.

Now I've been taking the LEVOXYL 100 sometime 125. Not the compound anymore. Only with the hurricane mess and excitement with Katrina running across south Florida, I again with out power. The Compounding RX has to be refrigerated. The new doc said the NATURE-THYROID has to be kept in the fridge too.

It's all confusing because from what I understand the compounding RX uses a generic T4? hormone. Everything I read said the generic is unstable. The new doc said NO WAY. I don't know anymore...

But today I finally got my food alergy test results back I posted them on my new blog.

Check it out... too long to list here.

Open Original Shared Link

Thanks again!

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Hi All!

I'm going to go back and re-read the book. I have flipped through it and she does use the word cure.

She devotes a entire chapter to Celiac, backed up my doctors...

People do use the word "CURE" too freely now-a-days.

And we all know there is NO CURE and/or magic pill for this sillyak thingy we suffer from. You are right for newbies who are clueless (as we all were) in the begining, it can be misleading to use the word CURE.

Here I am! I have... [waving my hand]

It is a very informative book. I have been following some of what she says.

The recipes I am unable to use because of my dairy intolerance. The scientific evidence part went right over my head. You guys (celiac3270 and others) are really good at making sense of these things. Check the book out.

I spent maybe $15 well worth it for me.

One of the gals from the local CS support group turned me on to the book when I got sick after 4-heathy years. But consumed corn, rice, and potatoes. Major stress blindsided me. Up reared the ugly head(s) of the Celiac Sprue & Thyroid Nodule Monsters that kicked me around.

She opened my thought process to some of us celiac's can't tollerate corn, rice and/or potatoes too. And as things would have it, that's my problem.

The author of this book writes about it.

Check out her web site www.breakingtheviciouscycle.info/

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I eat the grilled chicken breast, plain. I do okay with it...anyone else?

Someone said someplace its soy marinated?

I have worked in Film and TV for ten years. ......

People with any chronic disorders, especially something like celiac, which can cause them to lose shooting days, are considered to be high-risk.....

So it a good chance that actors describe anything like that as an "allergy" becuase it makes it harder for them to get work.

<{POST_SNAPBACK}>

It makes perfect sense "High Risk" = Send celiac celebrities into hiding!

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We need to wear flashing signs in the middle of our foreheads. Listing

Toxic Food that is KILLING US! So each time we don't have to explain to people who don't understand.

I like that web set you-don't-look-sick-dot.com...they are right people don't get it!

I feel the same way too, being Italian -- my entire life with sweet cream butter on Italian bread, pasta, macaroni, cheese, canolli's, cheesecake, capacinno... Oh, I could just died now. I can't e-v-e-r - - n-e-v-e-r eat them again. No wedding, birthday, or créme brulée. Oh God why?!

So how do we make the world wake-up and take notice to Celiac-Sprue?!

We need to find some major celebrities who are suffering, as we are with CS, and get an awareness movement going.

First I think, we or it, has to have a name that people can say and remember. Like TOXIC Food Disease, or something else then what it is. When I say, "I have Celiac Sprue", people look at me like, "...what? How do you say it? Do you spell it with a S, or is a who? ...Gluta Huh?"

Where did the sillyak name came from anyway?

It's not just the ladies that get the night sweats!

Pre-diagnosis my dh suffered terrible from these,they were bad-he used to have to get up and change and put a towel down on the bed.Soggy pillows-the works.

Only gets them occasionally now.

<{POST_SNAPBACK}>

What is dh?

I believe there is a very strong link between having gyno hormones and thyroid hormone working properly.

I was given a double dose of HRT by accident by my gyno doc. It threw my body in to major shock.

I stopped HRT at the same time I developed Celiac and as a result my thyroid problem now. I eat strict gluten & dairy free for 4 years (I'm so intolerent I have seizures) However, I did eat CORN, RICE and POTATOES okay. Then with major stress bla bla bla stressed me out totally. I thought I was doing okay then out of nowhere B-A-M! It came back and hit with a vengence this time. No more CORN, RICE and POTATOES. I'll really miss you... Bye Bye! Since, I have developed more and more food allergies with time. I wonder how I can thrive?

Is it only woman, or are men experiencing the night sweats problems?

Hi Celiac & Thyroid Cyberspace Friends!

Well, I'm back to update you on my experience with NATURE-THROID.

After taking it I found out I'm allergic to PORK. Upset my tummy. So on to the next one...

If any of you have ideas or other options PLEEEZE write...

The generic LEVOVYL is unstable. There was some kinda class action suit.

CYTOMAL = cornstarch & lactose

THYROLAR = corn & lactose

NATURE-THROID = pork

ARMOUR THYROID = pork

I wonder how Celiac (intolerant of corn & dairy) people do on regular SYNTHROID, made GLUTEN DAIRY & CORN FREE by a compounding rx? Anyone out in celiac cyberspace have experience on this one?

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Soy makes my hair fall out in gobs. And, I feel itchy all over and my ears itch. [giggle]

HI all my CELIAC cyberspace friends.

My rock star brother has let [stardumb, fame and b*tch bridezilla] get to his head, but fame won over.

The PIXIIEDUST FAIRY came along out of nowhereland, just down the street from rock star never-never-land, and sprinkled pixiedust over him.

It seems the week long Mexican CanCun beach side wedding all expenses paid for her entire family, has been called off. Yes, you read right CALLED OFF! [giggle] oops that wasn't me. [giggle]

The band just left for another USA tour, they'll be back home for Xmas, and off again to Europe just after New Years. If you remeber the wedding is the first weekend in December.

Oops I can't contain myself but b*tch bridezilla's nose is out of joint, and has posponed it for a while.

Thank you, God is good!

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ianm - you got that part right. he's in a rock'n'roll band in an altered state of mind... [giggle]

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westiepaws - I wondered about the family and where it all came from too. I do know he has serious digestive problems.

Hi my celiac disease and thyroid cyberspace friends! It's me again Ms Sillyak Screwed.

Well, I'm back to report about the thyroid RX I was taking.

www.compoundingdocs.com/ Great staff, beautiful shop, like old world style. COMPOUNDING DOC's RX was far better then the Levothroid, Levoxyl and Synthroid I was taking. My nervous system felt like I was wound-up too tight and plugged in to electric current on the synthetic RX. Yeah! I was wired. This stuff is like s-p-e-e-d w-o-w !!! I've been hyper all my life, but this stuff c'mon.

Anyway, all kidding aside, the compounding doc was out of town one long weekend and I was without medication as a result was forced to go back on the stuff poisioning me Levothroid, or it was Levoxyl, you know, the generic for Synthroid. I was wired! They say that generic synthetic stuff is not calabrated or stable doses, that's why I felt so bad and plus that it contains corn.

Over the weekend I read a super book "LIVING WELL WITH HYPOTHYOIDISM" got a grip on why Doc's don't want us to be well, and how to get better. And about alternative RX with out gluten, corn, rice or potatoes.

I asked my endro doc if I could take NATURE THROID, she's clueless prescribes a tripple dose, the Walgreens pharmacist caught it, questions me, and wouldn't despence it to me. I called the drug lab they are wonderful gave me the comparison. Not the same, synthetic is mcg and nature is grains. My doc then under prescribed the next time. With the mix up the new COMPOUNDING PHARMACY called "SKIPS" Oh here is his web site, www.skipspharmacy.com/ in Boca Raton Florida.

I found a new doc that's great DR. ALBERT ROBBINS in DEERFIELD BEACH, FL. I have been on the NATURE THROID two days. I already notice my nervous system feels calmer and relaxed, more natural feeling, not like I was being p-o-i-s-o-n-e-d & d-r-u-g-g-e-d. The new RX it will take a while to know, I'll go for a blood test in a week and see where my levels are.

The Doc seem to think I can be treated for my food alergies with shots twice a week for life...

So this is a life time thing? Oh, my! [giggle] Can I eat wedding cake now? [giggle]

Get my head out of the clouds, you say?

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BERNESES - I had the same problem. It was my THYROID out of wack from being sick to other things. Now I know can't do corn, potatoes, or rice. Took 4 years to find out and did majr damage to colon and etc.

BERNESES have your THYROID LEVELS checked. You might be suprised...