ms-sillyak-screwed
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Hi my celiac disease and thyroid cyberspace friends!
I wanted to report back and let you know that the medication Levothroid, Levoxyl and Synthroid I was taking wasn't effective because it has ingredients that I can't tolerate because they were toxic to my system - Fillers binders, with corn, dairy and etc. Some of us celiac's can't do corn, rice, potatoes and dairy. Look into it... I know I can't after 4 years of being okay on a regular gluten free and dairy free diet, or I thought I was, until induced by major stress my [celiac and thyroid problems] came back with and ugly vengence...
A wonderful guy on this site suggested I contact a compound pharmacist. They are not your ordinary pharmacists, they make what you need pure and free of the fillers and binders that are in regualr drugs. I guess our bodies have to work twice as hard when the drugs we are taking to make us better, are poison to us too.
Think about it!
I have only been on them a few weeks and I do see an improvement. I'll report back in a while and let you know. But I do think it's worth looking into.
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I posted this in one other spot -- Singles W/celiac Website To Meet Other Singles, Celiac Single's to meet and find LOVE. I think it's under Celiac Disease - Coping With
Okay this idea came about from another posting about those of us kissing people who are NOT GLUTEN FREE...
I would love to know if there is, or should we some how start, a Gluten Free web site for SINGLE people (of all ages) to meet, date and find love ???
There are so so many of us [sINGLE] people searching for love with this dreadful illness... How many millions of people with celiac, IBS, and other digestive illnesses that would like to find a mate with or understand our health problems???
It would make life easier, for us, to live with, cope, or explain to insensitive people about our incureable illness. They say things to us like, "...oh just get over yourself... food doesn't make you sick!" - "Your no fun to go out with, we can't ever go where I want to eat!" "Your a problem, your life revolves around food." or "Here have a bite of my cake, it won't hurt you!" How about this one "Kiss me! I only had a 6-pack of beers!" I'm sure all you single's with celiac have come across it too.
I welcome your ideas and thoughts about creating a website and/or finding love with other Celiac's.
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Okay since we are in the kissing mood...
I would love to know if there is, or should we some how start, a Gluten Free web site for SINGLE people of all ages to meet, date and find love???
There are so so many of us [sINGLE] people with this dreadful illness...
I have been sick for so many months, I'm getting better now that the compunding doc are making my gluten, corn, and dairy free thyroid RX's. Going on a date is hard, with this illness.
But, I would like to find a guy that perhaps has the same thing I do. It would make life easier, for us, not to have to explain to insensitive people about our illnesses. They say, "...oh just get over yourself..." or "Here have a little bite of my cake, it won't hurt you!" I'm sure you all have come across it too.
If there is such a site please let me know... I'd like to kiss and fall in love with a nice compatable gluten free guy soon too!
pmrowley - Your posting made me laugh so hard. I thought of the scene from the movie 9 1/2 weeks were they where Kim Bassenger and Mickey Rourke were smearing food all over their face sitting on the floor in front of the fridge.
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darlindeb25 - I went to Walmart yesterday and I priced the Sound Machines. I found one in the candle and aromatherapy isle where they have some mood music celiac disease's and cassette tapes. The one I found is called SOUND SCAPES it sells for about $19.00 and it looks good. It has about half a dozen types of sounds to choose from. I don't know if it would help drown-out the crickets you hear...???
Sleep well my friend!
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darlindeb25 - Glad you moved away from your stressors. Wonderful to hear about your sweetheart. Being in a loving enviroment can heal a lot. I also believe the power of loving touch does wonders as well. I noticed I became sicker (this time I had a flare up) when I called of my engagment. Plus it stressed me out in addition to several other things.
My late-mom had the crickets in here ears. I remember as a kid she told me she had virtigo.
Have you tried a SOUND MACHINE to sleep with? You know it has sounds of the ocean, or city noise, or whatever soft noise in your comfort zone. I have a girlfriend that uses one to put her twin babies to sleep. My 84-year old daddyO sleeps with the radio playing. Sometimes it so loud I can hear it on the otherside of my home. He said for the same reason.
So.... thank you for remindiing me.... I've just added it to the Walmart shopping list, I'm going to check into it, and price them out. I'll get back to you on what I find.
Sleep Well!
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lovegrov - Thaaanx again!
Sorry I'm stillll stucck with sticky keys.
Today I did soome research. I found twoo compounding pharmacissts in Boca Raton, Florida where I aam. I am very disappointed in my docs theeey didn't suggest a compounding pharmacy!
There iss one in east Boca he said wwould maake up the pillss for me no problem, all he needed was the script from my doc and to kknow what I'm not able to tollerate. He woould make up a 30 day ssupply. He asked if I could tollerate gelatin caps. I told him yes. I eat jello and taake another medication with caapssules aand are ok.
The other compounding pharmacy in Weeest Boca told me he woould give me a paper placibo pill for 3 or 4 days... see howw I do, then he would make up the RX with it void of the ingredieents (corrn, daairy & etc) I am unable to tolerate. I won't put my body under more stress of going without thyroid medication for eeven one day, I'm only 2 weeks into medication ssiince my radioactive iodine treatment 2 1/2 months ago. The ssymtoms were totally unbearable, with my levels off the chart.
The day before you helped with yourr solution, I had spoken to a holistic doc in Texas, he was going to have me stop theee medicaton and start holistic thyroid treatment.... But he told me I would get the heart paalputations, hot and cold flashes, migraines, and mosst of thee otherr ssymptons, for 2 wkks to a month. Before I hung the phone up I knew I didn't want to go that route and streess out my body again....
So my friend I say thanx again for your help. I'm sendding you a big cyberspace HUG. And I will let you know how thee compounding pharmacist drugs work.
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lovegrov - Thaank youuuu thankk yuo.
sorrrry I'm still stucck with sticky keys on this junky1. My other 2 computer(S) got the trojaan virus wwhile looking up drug iingrediteents on a evil boguss web site.
Did as you suggestedd. Caalled the companies. I found out some thyroid meds that thee pharmacy said was gluten daairy free has corrn in some forrm, they list in in some long word I had no idea what it ment until I spokee to someeone.
I will try to find a compounding pharmacy. It'll be the solutionn to the problem!!!
God Bless U ~
Many thanx my friend!!!!!!
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Hi my cyberspace friends!
I'm baack with more questions and a baad computer with sticky keys. My other 2 computers were infeected with thee deadly trojan virus while looking up drug ingeridents alast night. Please bear with me.
Mel I undersatnd what you are going thrrought. I send U and email last week don't think you got it.
You must get a book caalled BREAKING THE VICIOUS CYCLE by ELAINEE GOTTSCHALL B.A. M.Sc. you must read it, it will heelp you alot. It did me!
My ssysteem cann NOT tolerate CORN or DAIRY.
I take LORAZEPAM 0.5 MG it a form of ATAVAN --- I looked themup wwhen I got the virus on my other computers THEY HAVE DAIRY in them. I asked the phaarmassisst what I could doo she said take LACTATATE (sp) the over the counter sstuff that counter aactss dairy products so you can tolerate theem. I'm going to try it. And hope it doesn't haave corn in it... lol...
In the mean timee...The new thyrroid medication I'm taking is giving me diarrhea. IT'ss from corn and daairy in it they are bulking agents. I take the pill and eat 30 mins later, within 10 minutes in in the bathroom with diarrhea. I'm taking LEVOXYL 75 mcg generic for SYNTHROID. My ddocc is NO HELP! I caalleed thee paarmaacist and I was told LEVOTHYROXINE does NOT contain dairy or corn.
Does anyonee else have the same problemss and if so whaat do you taake???
PLEASE HELP!
sorry about thee ssticky keys!
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Hi I'm baack with more questions and a baad computer with sticky keys. My other computers were infeected with thee deadly trojan virus while looking up drug ingeridents alast night. Please bear with me.
I'm looking not only for gluten free but corn, an dairy free drugs.
My ssysteem cann NOT tolerate CORN or DAIRY. The new thyrroid medication I was given 2 weeks ago I'm taking is giving me diarrhea. I take the pill and eat 30 mins later, aand within 10 minutes I'm in the bathroom with diarrhea. I'm taking LEVOXYL 75 mcg generic for SYNTHROID. My ddocc is NO HELP! I caalleed thee paarmaacist and I was told aanother drug LEVOTHYROXINE does NOT contain dairy or corn, however the other ingreddientss I don't know what theyare...
Does anyonee else have the same problems and if so whaat do you taake???
PLEASE HELP!
sorry about the sticky keeys
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Hi my celiac cyberspace friends!
YES, I have a big problem with CORN, RICE & POTATOES too.
Great book you have to buy. BREAKING THE VICIOUS CYCLE by ELAINE GOTTSCHAALL B.A., M.Sc.
The author believes some of us can't eat, corn rice & potatoes.
Hi I'm baack w/ a baad computer with sticky keys. My other computers were infeected with thee DEADLY trojan virus while looking up drug ingeridents alast night. Please bear with me.
My ssysteem cann NOT tolerate CORN or DAIRY. I live a sstrick gluten free dairy free diet since 2001.
The thyrroid medication I'm taking is giving me diarrhea. I take the pill and eat 30 mins later, within 10 minutes in in the bathroom with diarrhea. I'm taking LEVOXYL 75 mcg generic for SYNTHROID. My ddocc is NO HELP! I caalleed thee paarmaacist and I was told another drug LEVOTHYROXINE does NOT contain dairy or corn.
Does anyonee else have the same probelmss and if so whaat do you taake???
PLEASE HELP!
<I feel like this.....
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Hi I'm baack with more questions and a baad computer with sticky keys. My other computers were infeected with thee trojan virus while looking up drug ingeridents alast night. Please bear with me.
The thyrroid medication I'm taking is giving me diarrhea. I take the pill and eat 30 mins later, within 10 minutes in in the bathroom with diarrhea.
My ssysteem cann NOT tolerate CORN or DAIRY. I'm taking LEVOXYL 75 mcg generic for SYNTHROID. My ddocc is NO HELP! I caalleed thee paarmaacist and I was told LEVOTHYROXINE does NOT contain dairy or corn.
Does anyonee else have the same probelmss and if so whaat do you taake???
PLEASE HELP!
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Kaiti I think that a book is a wonderful idea. I have noticed many of your postings. You are a smart and beautiful young woman. Put you beautiful face on the cover, it will get attention. I'm glad you are going to spread the word about this hidden disease that doctors don't want to acknowledge because they can't get kickbacks from the drug companies. My doc threw a major fit and had a meltdown when I told him I was feeling better from enzymes. He called it hocus pocus... I only stopped because of the cost factor.
I would share my story with you. Feel free to email me regarding what you are exactly looking for.
I noticed you have just been diagnosed with Graves Disease this March. I'm so sorry! I also have a serious thyroid problem too. Are you on thyroid medication? I'm having a hard time with it finding a balance in my system...
I wish you the very best with your quest and if I can help in anyway (I can design you a web site) or etc., please feel free to contact me.
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SOUTH EAST FLORIDA CELIAC SPRUE SUPPORT GROUP
I created this web site for them you can visit it for more information...
Open Original Shared Link
Copy and paste it in your browser window if a link doesn't pop up.
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I'm Sleepless in Florida
~ Hi all my celiac cyberspace friends!
Since I was a kid I was up late, I was born at 1:00 am if that matters. My body clock seems to be set much different than most people.
I alway had a problem getting out of bed in the morning. I remember as a kid, and teen years, my dad would pull the covers off me, grab me by the ankles and pull me out of bed on to the floor to wake me up early mornings. As a teen, 20's, 30's and into my 40's now I'm up all night. I generally wake up around 10:00 a.m to 11:00 a.m. It seemed I would wake up and get a second wind around 10 or 11:00 p.m. I would go out dancing all night and come home around 3:00 am. Or when I had a hubby I would go to bed when he did but would get up when he fell asleep and would go out to my home/studio. I'm an artist, and all and all creative soul that does my best work at night. Some times I'm up until 4.
I don't know if it was insomnia, because I would get 7 or 8 hours of sleep and I feel rested for the most part. I slept sound. I was just living on the USA east coast but my body clock was on west coast time. (giggle)
Even now with this illness I have tried to reset my body clock. It's so so so hard...
I have lived with celiac disease gluten-dairy free for 4-years and been okay until a major flare up and stress with my thyroid problem. Now sleep is a major issue. I have so many symptoms now and insomnia IS a problem.
I find that what does help me fall asleep. I take my little Italian dog GOOMBA for a walk for a mile or so in the evening around 11:00 pm. (The weather here is always beautiful.) I force myself to go to bed no later then 1 to 1:30 a.m. Then with dim lights or candles aromatherapy in the room or aromatherapy spray on the pillow bed sheets. I take a shower or bath with aromatherapy oils and read my Bible or a book if I'm not relaxed enough. I will relax with no outside stimulation. NO TV it makes me wired, a radio wakes me up and not even a alarm clock in the room. If I don't fall asleep after 15 minutes then I take something. Only since I've had this thyroid flare up on occasion have I had too, when I feel racy, my heart goes into palpitations or etc. I feel better in the morning and though out the day when I get deep sleep uninterrupted.
As I look back I wonder if when I break this routine (I started a few weeks ago) its the reason I feel really bad... Now as my thyroid is swinging between hyper to hypo I'm sleeping in the late afternoon early evening and feel like that cartoon where I'm dragging myself around by my collar.
I have always been an UP positive person alway on the go, I hate feeling depressed
My question is there any common thread between my sleep patterns and feeling so bad? Is it just my thyroid is killing me? Or I'm not getting better because of my thyroid problem and sleep?
Anyone out there on Celiac-cyberspace have any answers I welcome them?
Thanx and sleep well my friends!
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judy04 - Thanx for the info about AMBIEN. My thyroid doc game me a Rx for it and I was unable to get it filled at $130.00 for 30 pill. The sticker shock got to me (Ooch! I have no health insurance). I went back and she game me somethng else the other day (I wish I wrote it down so I could share it with the group) it had dairy in it. I returned it and never took it either.
I have been taking LORAZEPAM, when I get stressed, my heart races, can't sleep or when I have one of my seizures. It does help take the edge off. But my face, eyes, and gands get puffy when I take them for a day or so following. I'm a real life DIVA and I am super VAIN. One of my girlfriends mentioned the other day how I had puffy eyes and circles. I had been taking the LORAZEPAN the days prior to her comment. I don't know what's in them that is causing it, I'll look it up. Does anyone else here take it and have any reaction to it?
Regarding taking magnesium and the thyorid medication I just started taking... the doc told me not to take magnesium. I have a feeling she is misleading me. How should I take it?
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Hi to all my celiac disease and thyroid cyberscpace friends!
I'm back again with more questions...
I had the radioactive iodine treatment to burn off the HOT NODUEL off my hyperactive thyroid about 3 months ago. Last monday the thyroid doc examined me and by feeling around said the noduel was gone and now I'm HYPO, not HYPER. MY T4 was 0.7 - T-Uptake was 23.4 - FT1 was 0.2 - THS was 72.11 she said no wonder you feel so bad! She said she wanted me to take 100 mcg of SYNTHROID. Not knowing anything or trusting the doc's here in Florida I questioned her and said. "I'm hypersenstive to everything I take, should I take that much?" She said, "...take 50 for a week the go up to 100."
She went to her medicine closet, instead she gave me LEVOXYL 50 mcg and some 100's of LEVOXYL. When I got home I noticed they were expired a month but took them anyway. She said take 50 for a week see how you do and increase it to 100. When I increased it from 50 to 75, I was okay and had a two very good days on the 75mcg. After a few days I bumped myself up to 100 I got sick again (diarrhea, feeling very irritated for no reason, weak like I was going to passout) so I have been taking 75 mcg for the last few days. I'm taking naps in the afternoon, migaine headaches, constipation then diarrhea. I'm hot when I sleep at night and when I wake up in the morning too. I don't have the heart palputation anymore like before < Thank God! My hands are burning, thingling, numb, like my diabetic 84-year old dad describes as his neouropthy.... Do I have that too now? Will it go away when I get better?
Can anyone tell me what is going on... What can I expect? How long will this take to feel better? I'm feeling depressed! All my life I've been an Up-Person! Is my body trying to balance itself out? Should I take 100 mcg? Or switch to a different thyroid med? Am I being impatient?
Oh, pleeeeeze help.
I have had the worst 9 months of my life lately. Since I got celiac disease in 2001 and put myself on a strick diet and lifestyle change I was okay for 4 years, (or so I thought), then major stress hit me and my thyroid grew this noduel and wham bam I've been blindsided with this and feel like I'm never gonna get better....
Please anyone have any answers I would welcome them.
Thanx < I feel like this!
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Thank you all my Celiac cyberspace friends!
I printed out your posting and dad and I read though them. Thanx! You have all made it easier for us to understand and cope...
And perhaps someday when I meet a nice guy and can travel again to europe or some far off fun spot like I use to do, I can use all this helpful information all of you have given me, and I can have FUN again.
My rock star brother has let [stardumb, fame and b*tch bridezilla] get to his head. They have NO compassion for my illness and could careless about the me traveling to a third-world country. After speaking with him I understand the REAL reason, I no longer have a brother...
I will do exactly what - ajlauer and Maggie1956 suggested. plantime I found comfort in knowing you have a SIL and brother that would do the same thing. I don't feel so alone.
I will plan something else that weekend. After all ~ it's my birthday that weekend too! ;-D
Thanx again!
PS - ajlauer - The band is in the top single didgets on the record charts.
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Thanks for the ideas...
Please keep in mind the WEEK-LONG wedding is in a tiny spot in CanCun on a beach. There will little for me to choose from on a menu. The B*tch Bridezilla has planned this wedding there because she HATES me and my dad, its a known fact. It's the real reason. She knows my health issues. My Rock Star brother has a problem with shyness (although can perform in front of thousands and thousands of fans) he lets Bridezilla control everything.
With my celiac I am hypersenstive to EVERYTHING -- My celiac friends, I have the ULTIMATE CHALLANGE!
I can NOT eat anything CORN, RICE, POTATOES, GLUTEN, DAIRY, CHEESE, BUTTER, SOY (it is a big no-no too) NO peanut butter, rice cakes, as well as limited types of NUTs also. Some VEGGIES ARE LIMITED too with my thyroid problem. No Onions, TOMATOES, Garlic, the list is too long to list... Veggies have to be steamed... FRUIT NO ORANGE, CRAPFRUIT, CRANBERRY, I can only tollerate only melons and some berries at this stage with my thyroid problem. BANANA are my best friend! I eat plenty each day 3 or 4...
Most of what I eat is like a cave man/woman CHICKEN, STEAK, BURGERS, TURKEY, all GRILLED- BAKED or BROILED. JUICE fresh sqeezed carrot celery, zuccini, juice. Or bottled grape juice... DISTILLED WATER, not spring or filtered tap (it maked me ill) I drink a lot of plain PEDIA LYTE baby electrolytes does wonders when I'm sick.
Mexico is a country they tell us DON'T DRINK THE WATER, remember? And if they wash the raw veggies I'm in big trouble. And to bring fresh fruit and most food in though MEXICAN customs creates another problem. You aren't allowed too.
So? What do you think now???
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Hi my celiac friends in cyberspace! I'm looking for some help with cross-contamination issues.
I have my 84-year old diabetic father that lives with me winters here in sunny south Florida. He eats everything, and anything he shouldn't, wheat, bran, flour, bread, oatmeal, cookies, dairy, ice cream everyday (he says "It says NO sugar added! It's okay!") faux sugar, and on and on. I keep telling him he has major food allergies he doesn't want to hear it. I believe it is causing his neuropathy in his feet. I might go with him to the doc next time and get him tested.
But, I'm really wondering about how all the crumbs, dairy and etc., he leaves behind are effecting me? The Windex and 409 bottles have become an appendage from my body cleaning the cooking surfaces and countertops. Everything goes in the dishwasher. We use the same sponges, I throw out every few days. I don't use teflon, although he has two pans he uses in the same cabinet -- I have stainless pots and pans and spatulas. Except one he uses that is in the same drawer. I don't use wooden or plastic spoons spatuars anymore either.
He keep all his cereals, breads, cookies, goodies on top of and in the fridge, and makes a couple of midnight kitchen raids in the middle of the night in the dark, then he's up before me and make breakfast, waffles, pancakes and etc. I wake up to a mess every a.m. I'm not complaining. I LOVE my daddyO and wouldn't trade him for anything.
But I'm wondering if tiny little particles are somehow getting into my system? My gluten and dairy free diet is very limited lately since my thyroid problem isn't under control yet. I just started thyroid meds a few days ago but they haven't taken effect yet. I stop my enzymes and immonogoblin (although they were helping me) because they were way too costly... When I can afford them I will go back to taking them soon.
What do you all think about cross contamination?
Please help!
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Hi all my celiac friends in cyberspace!
Please I welcome your thoughts and ideas. My brother (is with a famous Rock'N'Roll Band) and is getting married in December on my Birthday in CanCun, Mexico and he is flying in all the guests. (but not a private chef) I have been deathly ill with celiac and thyroid problem I still don't have under control. I just started thyroid meducation that hasn't started taking effect yet.
I know I can't travel to a third world country and eat the food, no less speak the language to ask them to prepare, gluten, dairy free diet. I'm hypersensitive to other food alergies with the thyroid too. I don't trust it... I'll be in hospital montazoomas revenge (giggle) with in hour... They won't know how to understand or treat me, I know.
I live by the lifestyle, play it safe, eat at home, and go to the event, have a wonderful time and pick on things that are 'safe', it has always worked for me in the past and I enjoyed myself... But under the circumstances, it's imposible.
But this is creating a huge riff in my family. The bride is a b*tch we all have asked them to please reconsider and have the wedding here in the US someplace -- she out-and-out refuses. My brother says, "It's the brides day!" and my father and I are at a point we don't want to go...
Any ideas? I welcome any and all in put...
Thanx
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mela14 -- I also had a total hysterectomy about 10 years ago at a very young age (30's) I took hormone replacement through a little patch I wore on my fanny or tummy. I also had many gyno surgeries and suffered my entire life with endometriosis too. My Gyno doc by accident gave me a double dose of patches I wore for about a month prior to >>> I peeled off the patch at the same time I came down with my very first violent attack of celiac sprue 4-year ago and at the same time was under the most unbelieveable stress a human being can endure.
I have done some research that women who are post total hysterectomy have a higher rate of thyroid problem then any other illness. My gyno doc (a lady) said it's my thyroid making me ill giving me sprue. My throid doc (a lady) doesn't agree. It can all be confusing. We have to some how tune in and listen to our bodies I guess?
Have you had your thyroid levels checked? What are your other symptons? I felt like a motor was running when I was horizontal, hot or cold hyper or slow at times...
I can't do Garlic supplement it sets me over the edge too. If you would like I will share with you some of my symtons too. Just let me know.
Sending you well wishes!
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mela14 -- Hi I suffer from the same thing. NO potatoes at all anymore!!!
I was told by a nurse that [some of us] can NOT process RICE, CORN & POTATOES. Because it's some sort of carb. I found this to be true following my last flare up.
If you notice my profile following understanding the celiac illness I was faced with - I instantly went on a strict GLUTEN FREE - DAIRY FREE strick diet. It only took me a few months to feel better, for 3 or 4 years and got healhty. It worked, however; I ate rice, corn and potatoes (+ rice cakes & gourmet veggie Tarra chips, yummy, Fredos corn chips too). Then following unbelieveable major stress I had a big bad fare up, but that is when I developed this thyroid problem that is now making me super ill.
A nurse turned me on to a great book -- "BREAKING THE VICIOUS CYCLE - Intestinal Health Though Diet - by ELAINE GOTTSCHALL B.A., M.Sc." You can find it in Amazon or online Barns & Noble. It was helpful for me to understand more about Celica Disease. It's worth reading, in addition she lists some really good yummy recipes.
NOTE: I'm dairy intolerent since birth. I can't do the dairy recipes. This encludes EGGS too! So I have the untimate challange with all of this, and now with my thyroid out of whack and NOT on thyroid meds (yet) I'm staying away from iodine producing foods as well. (I have an appointment with the thyroid doc next week.) I'm hyperthyroid one minute and hypo the next. I think my body is try to balance itself out but might have produced another nodule, or the treatment didn't burn it off?
mela14 - Try to stay away from the potatoes of all kind and see if that will help. Oh and get the book too. The nurse told me once I got better, after following the book direction, try to reintroduce these different foods and through process of elimination slowly.
Good Luck -- I hope this helps and God Bless you!
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Yes, I'm taking ENZYMES and having good results. I am unable to eat dairy products, so I haven't tried the acidophelus (how ever its spelled) type.
I'm taking INFLAM-A-WAY from the company PREMIER LABS. The label says "HI-Potency ENZYME Formula Clinically Tested." I get it from the doc it is very expensive $$$$ 40.00 a bottle of 180 tablets. The doc has me taking 18 pills, 6 pills - 3X times a day. It's about $130.00 a month? I did it for a couple of weeks now, I've cut myself back to about 6 a day. Only because I can't afford them. I was able to find them online a little cheaper.
I don't know if this is perfect for what we have, when I looked up on the labs web site it looks like this is for people with arthritis or physical swelling and pain. I don't have any of those things since I took myself off HRT 4-years ago. I called the doc back and quizzed him on it. He said it will work for Celiac but that the manufacturer labels for the top selling ailment. I HAVE noticed a difference.
The doc also gave me (oral) IMMUNOGLOBULIN THERAPY. It tastes like drinking soap, but if I feel better, I can get past the taste. He told me this is something that AIDS patients take and mix in their cocktails. I drink a tablespoon 6 times a day in any type of drink. I mix it with water. It costs $30.00 for a half a months supply.
I have been getting good results so far.
IF YOU WOULD LIKE THE SUPPLEMENT FACTS ON THE LABELS JUST E-MAIL ME AND I WILL SEND IT TO YOU OR POST IT ON THIS FORUM.
Good Luck and stay healthy!
Other Food Intolerances!
in Related Issues & Disorders
Posted
Wendy you said, "I am also intollerant of corn, and I have had wierd reations to pecans." WHAT IS YOUR REACTION TO PECANS? They say to stay way from Walnuts.
Wendy I'm new on thryroid med with compounding doc (3 months.) Not sure what thyroid drug company to choose from for those of us that are also corn and dairy intolerent.
I just read in the book "LIVING WELL WITH HYPOTHYROIDISM What your doctor doesn't tell you...that you need to know" by Mary J. Shomon. GREAT BOOK!
She said dont take generic, the batches are NOT stable.
The natural thyroid were:
ARMOUR THYROID
NATURETHROID - hypo allerginic - no corn
BIOTECH - non corn binders
CORNSTARCH BOUND > WESTHROID this one has corn in it beware!
Now, to confuse the issue the natural thyroid medication is from GRAIN-FED PIGS. So I wonder if we would have a reaction to it?
Anyone out there in cyberspace care to share with us the right combination for you?