ms-sillyak-screwed

WALMART BRAND IS NOT CORN FREE.

I found out the hard way.

The Arm & Hammer label read 100% of what it's made of when I last looked.

We might need to call the company and ask about CC if you have become reactive?

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THIS IS A BOOK I STUMBLED UPON.

Open Original Shared Link

ANYONE READ IT?

The book addresses celiac disease.

YOUR REVIEW...

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You won't be going back there again, anytime soon I bet.

Sorry to hear you are so sick.

I for one, am going to try acupuncture in combination w/other things. I'm going to go to one last mainstream doctor at Harvard in Boston and then thats it! I feel the same way Fiddle-Faddle feels. I first have to find an acupuncturist I trust. You see, I live in the land of scams (south Florida) so I have to investigate to be sure.

In my post earlier I mentioned things are pointing me in the direction of acupuncture.

The TV show about food allergies in general, suggested acupuncture as a form of treatment.

Then I meet a nurse practitioner with 30-years experience told me to get off coffee (oh, yeah right!) and she talked about something the western world is different Open Original Shared Link she also talked to me about acupuncture. And stressed it to me.

They the other day I was reading a book called Open Original Shared Link An interesting book, not the end all be all, but good useful information. Nothing about celiac disease, it was written in 2000 I think. He goes into Colitus, IBS, Digestive Disorders, and he recommended many helpful things I've be implementing in, but most of all he said acupunture. Also for thyroid he suggests acupuncture too. If you noticed in my profile I developed a problem with mine about several years DF & gluten-free.

Not to get too far off topic, but -- Katie O'Rourke -- asked about "other types of alternaive therpay"...

On that natural TV show they were profiling several other cleansing and healing treatments.

1.) The HYPERBARIC CHAMBER. Open Original Shared Link

2.) CHELATION THERAPY - the use of a chelating agent to bind with a metal in the body to form a chelate so that the metal loses its toxic effect or physiological activity

3.) IONIC CLEANSING FOOT BATH

4.) REI·KI - a system of hands-on touching based on the belief that such touching by an experienced practitioner produces beneficial effects by strengthening and normalizing certain vital energy fields held to exist within the body.

Anyone try any of these things yet?

Was he just a random doctor? I'm thinking of going to Boston also but at the Celiac research center. Here's the website. I've heard good things about the doctors there.

Open Original Shared Link

francelajoie -- That is where I'm going. I am flying up from Florida the summer to see "THE MAN" there.

I must say just my experience on the phone with them was very professional, it wasn't like I'm treatewd and disrespected here in Florida.

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I stll wonder who poeticjul25 went to?

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Hi sillyak screwed, What's in your makeup bag? I am going shopping today. Do you use smashbox? I would appreciate any suggestions, Thanks, LindaLee

Open Original Shared Link

Thanks for thinking of me... I have a little confession to make.

Years ago before I became disabled with celiac disease or before I was married -- I was a celebrity hair & make up artist. You know beauty for the stars. I had my own line and was a platform artist teaching 1000s in the beauty industry at hair shows. I know a little more about make up and hair care then the average diva. [giggle]

I have started to put together a list good and bad of beauty supplies on my blogg. I have sent hundreds of eMail to companies. It is not finished yet. I will work more on it this weekend and then link it here to my blogg.

Estee Lauder and Clinique are my least favorite. Honestly, I don't like expensive department store make up.

Hey all--I just went to a gastroenterologist in Boston, Ma., and he is supposedly a celiac disease specialist. Well, let's just say that my experience was not at all positive, and I am frustrated to high heaven with all of these doctors who assume they know everything.

Who did you go to?

I just came back from my visit with my primary care doctor, because that is what the specialist in celiac disease in Boston told me to do, and yeah, he was a lot of help...not really. He said to me: "Are you sure you're not depressed?"

Julie - who was the doctor?

Interesting thread. Thanks for posting it.

In the last few days everything I read or see is pointing me in the direction of acupuncturist and celiac disease. There was a TV show on last night (I never watch TV the chiropractor told me to go home and get mindless in front of a TV. And I did.) It kinda helps...Surfing I found something and it was about acupuncture. They spoke of it for a form of treatment for food alergies. They didn't name celiac disease or anything, it was more general. My Chiropractor is helping me a great deal, but it think with these diseases we need several methods of treatment together in combinations to be effective. Acupuncture sound interesting...

I know that there are doctors in Boston, I just don't want to take that route if I can avoid it. I'd be driving in alone ... and it's at least an hour.

Here are the names from the Clan Thompson list: Open Original Shared Link

Catherine Petruff Cheney, MD

Beth Israel Deaconess Medical Center

330 Brookline Avenue

Boston, MA 02215

Telephone: 617-667-1846

Div. of Gastroenterology and Hepatology Instructor of Medicine, Harvard Med. School

email: cpetruff@bidmc.harvard.edu

Richard J. Grand, M.D.

New England Medical Center.

Ciaran Kelly, MD: Gastroenterologist

Beth Israel Hospital

Boston, MA

Open Original Shared Link

I can't take it any longer with these clueless Florida doctors. Boston has some of the best doctors in the world. You know what they tell you to do when you get sick in Florida? --- Go to the airport. HA! And that is what I've made up my mind to do. They have a Celiac Center and connected with Harvard Medical School. From what I have read it is where they came up with the digestive enzyme research to help us.

The Medical Director is Ciaran Kelly, MD -- I called today and got an appointment. I'm coming up this summer to find out more why I have developed all these secondary food allergies they say we end up getting. Now, I'm at a point what's left to eat? And maybe the can better understand why I get seizure from certain foods.

Anyone out there in Celiac cyberspace go to any of these doctors at Beth Israel Deaconess Hospital?

This is what I could find. Open Original Shared Link

Can anyone recommend some books to help me expand my limited gluten-free diet?

The only cookbook for us CELIAC's (many of us have secondary food intolerence/allergies) I would trust is "Open Original Shared Link"

Another link here... Open Original Shared Link

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