ms-sillyak-screwed

Open Original Shared Link

This is why....Open Original Shared Link

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.... We own a vacant building on main street across from our current store. So I am thinking about opening a store to sell foods I can eat as well as the half a dozen or so people in our town. We live in a tiny town and I know there are others with special dietary needs other than just celiac. My question is how do I get it started?....

I love the idea!

eKatherine -- Is right make a good solid plan first...

Where are you located? Are you going to do a web site too? Like some one suggested you can cater to more people that way.

If your name begins with the letter "A" it will apprear in all your yellow page or other listings first. Follow me?

What is CSA Gluten-Free product listing?

A nurse practitioner suggested seeing a Functional Medicine M.D.

Anyone know anything about them? Do they take a holistic approach? Have any luck?

What is CSA Gluten-Free product listing?

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What is CSA Gluten-Free product listing?

Sounds like it was written by a few too many beer drinking guys, or perhaps they were drunk when they wrote it? HA! It's all about the almighty dollar.

Perhaps I've become skeptical -- well I'm more cynical -- I was NEVER like that until I came down with celiac disease. I don't believe anyone for their word anymore. History has proven almost everyone lies and gets away with it. This is a prefect case in point.

The sound track to the Sopranos

And the latest C D (they are out on a USA tour, just back from Europe) of my brothers rock'n'roll band.

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WoW!

I'm even more confused.

As I read down this thread...Many of you are still using products with gluten... or maybe you just don't know it? Or this isn't a gluten free list?

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MAC and Almay are NOT GLUTEN FREE. I'll check on cover girl product.

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Anyone use KIEHL'S products? Last year some of these products, and other goodies too, were in a "Hollywood Goodie Bag" I was given. What a treat! I've uses them and none have cause me a reaction and I'm hyper sensitive to everything.

But I feel I must use a bit of caution buying beauty supplies when they also manufacture other items with gluten, and some of the Big 8 Food Allergens. This company use wheat germ in some of their items and I'm so affraid of cross contamination (CC) issues. I do plan an eMail asking several questions... I'll post it on my blog where ther others are.

I use this Open Original Shared Link it looks free of Gluten. But has sweet almond and avocado, I can't eat either without becoming reactive. I like this product a lot.

But at this stage - if I can't have nuts, dairy, gluten, soy, avocado... what's left?

Perhaps I need to pick the worst to eliminate and go in lesser order?

The other one I like is Open Original Shared Link As I look it up here. This one has soy, corn and almonds. Too bad because it has some other good ingredients.

Oh and before I forget my understanding is M.A.C. is [not] gluten free. It's a no no. Or just CC?

Miss SS--Thank you so much for contacting all of these companies! I am happy to know about Smashbox! I had some of their lip glosses, and their eyeshadow and liner. I got rid of them months ago to be safe. Now, I wish I hadn't. At least I will feel free to order if I see something I want to try. I use Bare Escentuals foundations and face colors, but am not crazy about their eye and lip products--but I love Smashbox. Thanks again!

We need to touch base this weekend coming up--the last episode for a while Have a good day!

Sorry ladies -- Patti -- My PM box is jammed and can't figure out how to use it. eMail me anytime. I think we should start a Sopranos thread here David Case wrote in bowel problems again, this time for Ro in Italy.

Okay back on topic. The Bare Escentuals face power doesn't give you extra coverage like a fondation does, or does it? I'm going to look at the SMASHBOX and see what they have.

Next I'm writing to hair care companies...

NSG -- Thats great news!

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We ended up with Neutrogena products - not very "cool" - but gluten-free. She checked her nail polish and thinks that NYC is okay. We'll see. All the CoverGirl is in the trash!

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Looks like PHILOSOPHY is cross contaminated. REVLON is too.

SmashBox is safe. Or so the email says. I was very suprised. It's at the very bottom of the list so far on my blogg, I'll post more as I go.

I noticed many of us have secondary ingredient issues with beauty products as well. Some of the companies might not have gluten, but they can have soy, nuts, oats, or corn. So the more information we can get the better we are armed with knowlege.

We ended up with Neutrogena products - not very "cool" - but gluten-free. She checked her nail polish and thinks that NYC is okay. We'll see. All the CoverGirl is in the trash!

Who said Neutrogena doesn't make cool stuff? Oh I get it now -- you have a teen whispering in your ear... [giggle] I'll post the stuff from SMASH BOX...

I have searched beauty products (I'm a Diva) and expensive isn't best! Neutrogena is the best I have found todate that does what it claims. They make a anti wrinkle cream that REALLY works and is safe for us. HEALTHY SKIN ANTI-WRINKLE CREMAM SPF 15. You will see a difference after a week. I wish they made a liquid foundation. They make an anti wrinkle hand cream too. All sorts of very cool stuff for my make-up bag. [giggle]

NYC is cheap and I really like those 99 cent eye liners, they work better then the Chanel at $50 each.

Beth and I went through the personal care products yesterday and then went shopping. Finding gluten-free makeup for a 17 year old is NOT fun!!! But, I survived... and she will live without the "cool" stuff...

NSG -- Share what your bought...what's in the make up bag?

I'm still on a search to find a 'safe' liquid foundation. It's the only gluten and soy I come in contact with.

When I was trying different thyroid medications (the last few months) I seem to develop what appeared to be DH. Oh God NO! It iched really bad and got red spots athat would bleed when I scratched it, all over my torso, upper legs and upper back.

I got my magnifying glass out and started reading ingredients in [everything] bar soap, body creams and etc. I have become reactive to coconut since getting these secondary allergies. Do you have any idea how hard it is to find a bar soap that doesn't have some form of coconut? I found two bar and two that were liquid. I feel the bar soaps don't clean my body as well. But I also switched to things with coco butter or shea butter or olive butter cream. It's much better. But I change back to the other thyroid medication along with the switch and the different soap the DH rash went away.

The liquid shower soap I found was by the Sommerset Toiletry Company.

They are safe and they clean well - or what I could understand from the label no gluten, soy, coconut.

1.) Coco Butter Moisturising Shower Creme

2.) Shea Butter Moisturising Shower Creme

thanks...

and now today I heard that Heather O'Rourke (the child star in Poltergeist) also died from complications from Celiac. That she had been misdiagnosed with Chron's and then died from a septic infection from a bowel blockage caused by a genetic defect and aggravated by undiagnosed Celiac. Has anyone else heard this? She died at 13.

I often wondered what really happened to that little girl. Not to change the subject but -- Didn't a few people died on that movie? Open Original Shared Link Here is info.

In my study of celiac disease they say many unexplained deaths (on the operating table) like my grandmother having a rountine gall bladder operation die because of unDX'ed celiac disease.

Please note that although these products do not contain any gluten, they are not manufactured in a gluten-free facility.

Can the company 'guarantee' these products you listed are NOT cross contaminated with gluten?

First and foremost understand CELIAC KILLS!

I have watched several family member die from this disease in disguise. What I'm learning after my journey and discovery, reading some of the latest books out since 2004 that with celiac disease, autoimmune diseases, some-of-us commonly over time develop secondary food intolerances and even allergies. Doctors are re·al·iz·ing it's an even bigger problem. Things they told us were good for us; (like soy) now is bad. And other issues factor into getting better like our mainstream drugs are cross contaminated from many of the dyes used in pills.

It, celiac disease and going on the gluten free dairy free diet was a-cake-walk for about 4 or 5 years. Then all of a sudden It grabbled ahold of me. It gives you a false sence of hope, now I'm fightening again.

Everyone is different in where they are at in the process of the disease. Joe C struggled with it. And yes, living like a rock-star isn't easy. What they make look so easy and cool.... is very hard on their bodies livin on the road touring. Most of the bands; KID ROCK does, they have managers and staff (w/a doctor) that travels and cares for the stars every needs while on tour. But forget that, it doesn't mean a thing, most docs still don't get celiac disease, or really know how to treat it beyond handing us a few pages about avoidance. Or treating the symptoms.

Here are a couple links

Open Original Shared Link Open Original Shared Link and Open Original Shared Link

nini -- And you're so right about being thrilled celiac disease is on VH-1. Me too! People are getting educated about celiac disease and that's great. It gets people talking about it from the TV show "House" and articles in the NY Times to its in granny's "Readers Digest". Hope they re-run the show, I'd like to see it.

I posted a thread a week or so ago about the sign at the fish counter their stuff being CC. Well, the otherday I called the store manager over and showed him the fresh herb's that were in really bad shape. I asked him if he would eat them? He was very nice. I went it to my celiac soap box. He knew all about it and he said we have a few gluten free items. He told me if I gave him a list of the foods we want to buy to stop by and drop it off and he will order these items.

So, my thought is -- make a list, make a few copies Open Original Shared Link And maybe, just maybe, they will stock items that celiac's can eat.

I myself now have secondary food allergies so anything in a package I can't eat. But some of you that haven't developed these secondary intolerance, yet, this might help you.

Give it a try nothing to loose but your gluten free food wish list...

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