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plumbago

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by plumbago

  1. plumbago
    The endoscopy you just had done - did it include biopsies? Or were the findings you cite what was observed by the person doing the scope? From the sounds of it, it seems like celiac is a likely possibility. Might as well get serology done. Which part of the GI tract was this? Small intestine? Something else? Plumbago
  2. plumbago
    Hello and welcome, Could you please publish the reference ranges for each test, including tTG-IgA and the endomysial antibodies? When your daughter had her endoscopy, was she eating gluten? I agree with your position, I would not want to subject her to another endoscopy and biopsy. It sounds like your doctor is saying that since her tiredness is...
  3. plumbago
    Hello @VioletM Has your boyfriend circled back to his doctor to work with him or her on managing the levels of valproic acid / Depakote (as we call it in the US)? This is a medication that has hand tremor as a side effect, in addition to other effects, including neurological, and it requires regular blood level monitoring to make sure he is in the therapeutic...
  4. plumbago
    @LookingForAnswers101 If you can tell by now, has cutting out gluten helped?
  5. plumbago
    Ok, thanks. I'm so glad to hear you are in the hands of a dermatologist. I hope he/she has given you 1) a diagnosis; and 2) a plan of care with a couple of options so that you have buy-in and comfort with it. I have some ideas, but not having seen the abscesses or you in person, it doesn't really make sense for me to kind of ... speculate further. But your...
  6. plumbago
    Hi there, Can you describe them a little more? Do they ooze? Do they itch? Do they spread like a rash or appear like a "boil?" Has a doctor / dermatologist looked at them? Are they big? Do they seem like they could get infected if not careful? Do they disappear? (You say you get them "2/3" months, assuming you meant "2 to 3" - so have the ones that came...
  7. plumbago
    A relative has opened another door for me on this issue -- the possibility of menopause raising HDL. Most studies suggest that menopause decreases HDL-C, however, one study found that often it's increased. "Surprisingly, HDL cholesterol was higher (p < 0.001) in postmenopausal women by 11%. Further, the number of women who had low HDL cholesterol...
  8. plumbago
    I have taken thiamine on and off (just not at this exact moment), and I’m not sure it's made any difference. Yes, I almost always “fast” (12 hours NPO) for blood tests, as do a great many other Americans, so I tend to think that’s not it. All I can say is that the mystery continues. I could do some speculating here…well, heck, let me go ahead and specu...
  9. plumbago
    The last time my vitamin D was very low, according to a lab test, was before I was diagnosed with celiac disease. I've been supplementing ever since, and now the numbers on the lab tests are within their normal ranges, oftentimes way above. I've also been supplementing with methylcobalamin (B12) since I was low before diagnosis in 2010, and now I'm fine....
  10. plumbago
    Yes, well, that's what we have been told, probably ever since the different types of cholesterol were identified. It's what most of our primary care providers are still telling us, it's what the commercials tell us. But researchers (up until now at any rate) have been learning a great deal about HDL. Nevertheless, the universe of what we still don't know...
  11. plumbago
    Since some time between 2010 and 2014, my HDL-C has been going up and you might even say elevated. The last time I could find in my records that my HDL was normal was in 2014 when it was 67. Last week, it was 101, and it’s been 88 and above since about 2015. A significant life event happened in 2010 when I was diagnosed with Celiac disease and in May of t...
  12. plumbago
    I was rather surprised to go back and look at my blood test results because none of them included a total IgA. But then, looking at the lab results from my original celiac disease diagnosis over 10 years ago, I see the reason for that. Part of the standard verbiage in that report says: "Between 2-3% of Celiac patients have selective IgA deficiency. If the...
  13. plumbago
    Boar's Head is good when I occasionally buy it. But right now - Sept 2024 - I would be extra careful since they found listeria in their meat plants. Check to see if the packages in your area are affected.
  14. plumbago
    There were a lot of things left out, necessarily, of a one hour discussion. I bet he'd have addressed it had one of their participants asked. It was still a worthwhile discussion. Plumbago
  15. plumbago
    What I really liked about this video - and thank you so much for posting it - is that he/they talked about what happens to someone vis a vis their celiac disease who is on a gluten-free diet, also active vs inactive celiac disease, and potential celiac disease. These are things that I've been very much wanting to discuss forever. I have many other questions...
  16. plumbago
    That is the goal of a gluten-free diet, @SunshineFace. But there is another possibility that you did not list, which is that no damage has occurred yet, and it may be a matter of time. However, if in your scenario, the EGD you reference occurred in someone previously diagnosed with celiac disease who had been eating gluten-free for some time, then...
  17. plumbago
    I was drafting a reply when trents' reply came in, and I concur with everything he says. I was going to say, @jayjays that, based on what you wrote, it seems that the sequence of testing events was not correct. You need to still be eating gluten even for the blood tests. If your goal is to find out if you have Celiac, then that is what you need to do...
  18. plumbago
    I had to get revaccinated after hep b labs drawn showed no immunity. Plumbago
  19. plumbago
    Hi @KsBlonde, Honestly, I've never even thought about gluten in IV medications (if your concern is indeed that). I seriously doubt is something to be concerned about. I am a nurse who regularly receives vaccines and occasionally IV anesthesia - ie, recently for an EGD/colo. I didn't even think to ask about it! And not that you asked, but I'm not...
  20. plumbago
    @Boolka, Nothing attached, btw.
  21. plumbago
    Thanks Scott. I was a little confused about what's going on in the EU. It does seem like they're gonna be revisiting some part of that in the Fall, but then it says they've renewed it 10 years. I think we probably need someone close to the situation to clarify that.
  22. plumbago
    Thanks Gail! It's great to know about this, but it will be important to verify that they are effective and accurate, so please do check back in with any updated info you have. I'm not surprised about the GI staff. There's a lot of money in our colons, and they need to be scoped to get it out. IOW, I don't think there's much real curiosity about the conditions...
  23. plumbago
    Is food science babe any better? I see that many Jovial products claim they're organic. Is having glyphosate still ok if a product is to be called organic?
  24. plumbago
    It's too bad that MAA has an anti-vax somewhat conspiratorial nature background. This makes me think twice. However, if you look at the study, it does break down the amount of glycophate found in the foods and compares them with foods that had none or little.
  25. plumbago
    I google-news'ed the two brands and found nothing. Good to hear there's a lawsuit. About the FDA and whether or not they know, I went to the web site of Moms Across America and found this: "Moms Across America has reported these violations to the FDA and we will report back on the steps that will be taken."
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