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plumbago

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by plumbago

  1. plumbago
    Can you put the reference ranges for the three tests? Was ttg igA positive or negative?
  2. plumbago
    Are you sure? The study he cites (at least at the beginning) is one that associates increased bone mineral density with a vegan diet. Maybe he later refers to the one mentioned on the article we are both commenting on, but at one hour plus, I won't be watching it to find out!
  3. plumbago
    Annual? No! But you ask a good question. You can do regular antibody tests to gauge if you've "been glutened," which can over time damage the lining of the small intestine, as I'm sure you know by now. I repeated an endoscopy last year (my second one in 10 years just so you know). I did have symptoms on diagnosis and biopsy so I was able to tell that...
  4. plumbago
    In my experience, doctors are very good at noting damage to the crypts and it usually aligns to what is found at biopsy. But users coming after me will tell you the opposite, most likely. And technically, they are correct. Your case may also be a bit different. In any case, please do keep us updated and thanks for coming back and posting.
  5. plumbago
    I had second Moderna shot in mid-January. I had nausea, headache, fatigue and myalgia at 18 hours in. Then like a miracle it went away. Thank you vaccine makers.
  6. plumbago
    Hi, Hopefully you will be talking to the medical professional who ordered these tests! But my notes say, "If both DGP are high, celiac disease almost certain." Your doctor - or maybe others on here - may be able to tell you why the Ttg was neg but the DGP positive and what all that means. Good luck!
  7. plumbago
    Thanks. I am reading now, but can't get past the first sentence! While oats have attractive nutritional properties that can improve the quality and palatability of the restrictive, low fiber gluten-free diet, gluten-free diets are not low fiber. What's up with that?! I will keep reading....
  8. plumbago
    Thanks. Do you have evidence that you can post that oats throws the antibody levels off?
  9. plumbago
    It is not. It's good that your other bloodwork came back fine.
  10. plumbago
    Would normal antibodies, then, exclude oats as a potential problem?
  11. plumbago
    Ok, thanks. I think it's standard practice that if any one of the tests on a celiac disease panel are positive, it's considered celiac, but check with your doctor. More than one test on my panel was positive, but before going gluten-free, I insisted on a repeat test a month later which showed more or less the same thing. Then I got the biopsy, which was positive...
  12. plumbago
    Do you know if there is a way to test for this?
  13. plumbago
    Renee, According to the notes I have taken since my diagnosis over 10 years ago, "if both DGP (IgA and IgG) are high, celiac disease is almost certain." In your case, only deamidated gliadin IgA was high. Your other tests were negative. Hopefully, others will weigh in with their good perspectives. Did you at any point, start going gluten free? How...
  14. plumbago
    Great, please do let us know. And yes, you certainly sound more diligent than I was, at your age. Last (ish) question - are your total IGA levels normal? Apologies if this has already been addressed.
  15. plumbago
    I am not an expert at all on celiac disease, and know just enough to manage my own condition. According to my book Recognizing Celiac Disase: signs, symptoms, associated disorders and complications, refractory "sprue" (celiac disease) is not responsive to a gluten-free diet. But yours was, at least for a number of years, right? Just so I understand your...
  16. plumbago
    Maybe not. How well has your diabetes been controlled?
  17. plumbago
    Yes, EMA-IgA is highly specific to GI damage. EMA stands for antiendomysial antibodies, which are antibodies produced by the body that attack the body's own tissue. When the EMA-IgA is positive, the patient almost certainly has celiac disease. Second, it's quite likely I'm not understanding something. In your response to me (above), you said your...
  18. plumbago
    @Anonym I should have been more precise. What I should have said is that ttg-iga is often elevated in cases of diabetes, not (necessarily) refractory celiac disease. Apologies.
  19. plumbago
    Yes. Diabetes.
  20. plumbago
    Also, do you know about allergies? Could you have a wheat allergy? Celiac is an intolerance to gluten. At least it's some good news from the scope and biopsy, but yes, as advised previously, get that blood test (the order actually is, blood test first). Get the complete Celiac panel, not just one or two. Good luck. Let us know.
  21. plumbago
    Your doc may be thinking the bloated stomach is related to SIBO (small intestine bacterial overgrowth), I don't know. That is likely what the xifaxan was prescribed for. Looks like you've gotten some good feedback. Best of luck.
  22. plumbago
    I have heard of it for sure Colleen! I know someone who has it. For a while, she went on the low FODMAPS plan/diet.
  23. plumbago
    Yes, as I say (re: Trents' comment), there are arguments about how much emphasis to put on the scopist's eye. If biopsies are taken from healthy tissue, but the gastro saw damage, the report from pathology could result in a false negative. But a gastro who sees damage will be taking biopsies from the tissue he/she sees as damaged. IMO, you need both the gastroenterologist...
  24. plumbago
    Yes, I should think so. We've had arguments on this forum before about doctors being able to tell if there's celiac disease before getting the biopsy back, so yes, you are correct. Hang tight.
  25. plumbago
    I would think (but, again, don't know for certain) that you could have cured your celiac disease, already. There may be no way for a gastro to know if someone has celiac disease by looking at a healed gut. You see the point I'm trying to make? You may want to get the blood test now (especially when still eating gluten). Your doctor should have, without...
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