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plumbago

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by plumbago

  1. plumbago
    I am not an expert at all on celiac disease, and know just enough to manage my own condition. According to my book Recognizing Celiac Disase: signs, symptoms, associated disorders and complications, refractory "sprue" (celiac disease) is not responsive to a gluten-free diet. But yours was, at least for a number of years, right? Just so I understand your...
  2. plumbago
    Maybe not. How well has your diabetes been controlled?
  3. plumbago
    Yes, EMA-IgA is highly specific to GI damage. EMA stands for antiendomysial antibodies, which are antibodies produced by the body that attack the body's own tissue. When the EMA-IgA is positive, the patient almost certainly has celiac disease. Second, it's quite likely I'm not understanding something. In your response to me (above), you said your...
  4. plumbago
    @Anonym I should have been more precise. What I should have said is that ttg-iga is often elevated in cases of diabetes, not (necessarily) refractory celiac disease. Apologies.
  5. plumbago
    Yes. Diabetes.
  6. plumbago
    Also, do you know about allergies? Could you have a wheat allergy? Celiac is an intolerance to gluten. At least it's some good news from the scope and biopsy, but yes, as advised previously, get that blood test (the order actually is, blood test first). Get the complete Celiac panel, not just one or two. Good luck. Let us know.
  7. plumbago
    Your doc may be thinking the bloated stomach is related to SIBO (small intestine bacterial overgrowth), I don't know. That is likely what the xifaxan was prescribed for. Looks like you've gotten some good feedback. Best of luck.
  8. plumbago
    I have heard of it for sure Colleen! I know someone who has it. For a while, she went on the low FODMAPS plan/diet.
  9. plumbago
    Yes, as I say (re: Trents' comment), there are arguments about how much emphasis to put on the scopist's eye. If biopsies are taken from healthy tissue, but the gastro saw damage, the report from pathology could result in a false negative. But a gastro who sees damage will be taking biopsies from the tissue he/she sees as damaged. IMO, you need both the gastroenterologist...
  10. plumbago
    Yes, I should think so. We've had arguments on this forum before about doctors being able to tell if there's celiac disease before getting the biopsy back, so yes, you are correct. Hang tight.
  11. plumbago
    I would think (but, again, don't know for certain) that you could have cured your celiac disease, already. There may be no way for a gastro to know if someone has celiac disease by looking at a healed gut. You see the point I'm trying to make? You may want to get the blood test now (especially when still eating gluten). Your doctor should have, without...
  12. plumbago
    I can't really comment on much, but I was struck that although you've been gluten-free for 5 years (except for the past 3 weeks, eating gluten), you are anemic. Do you know more about that, why that is? At any rate, it could be that if indeed you do have celiac disease, the 5 years was good enough to heal your gut, and it could be (see? lots of maybes...
  13. plumbago
    A while back, I posted something on this forum about a conversation I had with someone at the farmers' market about cows eating wheat and then me eating the meat of that cow, and how she said technically that meat is not gluten free. I was corrected on here. At the time of the conversation at the FM, it struck me as odd and not quite right. It still doesn...
  14. plumbago
    I started hearing about that about 6 or so years ago. I don't know what to make of it.
  15. plumbago
    I work in healthcare and I was one of the first to line up for a vaccine! We were strongly strongly encouraged to get it, and hopefully you can see the sense it makes for those providing care to get the shot(s). While I did not have to get it, I was strongly encourage to do so, and there emerged a feeling in the air that we should do this to protect each...
  16. plumbago
    Hi there, you are such a good grandmother, first of all. I just google-imaged the nutrition label for velveeta and didn't see any gluten ingredients. However, I do not know the ins and outs of the many additives it appears to have. Other regular users in this forum are far more dedicated and knowledgeable about those than I am - perhaps they will chime in...
  17. plumbago
    It is? How so? Never heard that.
  18. plumbago
    It is always best to get a professional opinion before taking medications and supplements recommended on the Internet. We should be mindful of the things we put into our mouths, realizing there may be a cost that the kidneys or liver may (may) have to pay. Sound thinking, @Placey.
  19. plumbago
    But that's not keto. ?
  20. plumbago
    Hi @yogajc I hope some regular commenters reply to you. Having been intrigued, impressed by and interested in the success of the ketogenic diet, particularly as it pertains to metabolic and blood vessel health, I have not ever attempted to seriously maintain myself on it, having been daunted by many of the same issues you are. However, in my many forays...
  21. plumbago
    I would love more specifics and details on all of this!
  22. plumbago
    Can you share the link that indicates the Dulcolax has gluten? I searched online and couldn't find it. I did see that the Australian site for Dulcolax says it's gluten free. But that doesn't mean the US version is. They may also have different definitions of gluten-free. https://dulcolax.com.au/products/tablets/
  23. plumbago
    You're welcome. Important that you do have a specialist who can monitor this, to rule out a bleeding ulcer. Good luck.
  24. plumbago
    Coughing or vomiting up blood can be caused by blood in the upper GI system, in particular the stomach. If it truly is "coffee ground emesis" (vomit), that generally means it's been in the stomach a while. I'm not sure about the gallbladder. Maybe. I'm obviously not a GI specialist! You said, though, that you are coughing up blood, that's why I asked...
  25. plumbago
    My first thought reading this is to ask if the cough is from the GI or respiratory tract? Which do you think? Otherwise, you are doing the right thing by pursuing blood tests, just make sure your doc is ordering the right panel of tests. You can develop active celiac after testing negative 10 years ago, I would think.
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