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plumbago

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by plumbago

  1. plumbago
    Talk to your doctor Tiny Red! Good luck.
  2. plumbago
    I sometimes shop at a market called Streets, which sells Katz gluten free pies. Usually I buy cherry or blueberry, but they also have apple, though I've never tried it. These are frozen pies that need to be heated, and the blueberry and cherry ones are very very good. I will add that they are hardly a "free" food - they have 18 whopping grams of sugar. So...
  3. plumbago
    Today I was at the farmers' market and a nice vendor asked me, after I inquired about the sausage's gluten free-ness, how sensitive I am. Generally, I'm not someone who uses this terminology. Little background - I once saw Alessio Fasano - just because if I was going to have to give up cupcakes and beer I wanted to hear it from an expert! - and after telling...
  4. plumbago
    I think you mean meditation, and if you are talking about doing as much good as a hot tub in relation to eating gluten, I likely agree with you. If you are talking about in general - I do not.
  5. plumbago
    Something is definitely going on, and that's why it's good you're getting both the EGD and the colonoscopy. Your liver enzymes are normal, a good thing. Before diagnosis, my alkaline phosphatase (ALK) would sometimes come back low, which is consistent with celiac disease, I've learned. (All liver enzymes have since normalized for me.) It's interesting that...
  6. plumbago
    Adding the message below today (Nov 8, 2020), after receiving Peter Attia's weekly email. Peter is a physician focusing on the applied science of longevity. His practice deals extensively with nutritional interventions, exercise physiology, sleep physiology, emotional and mental health, and pharmacology to increase lifespan (delay the onset of chronic disease...
  7. plumbago
    Sure, and to clarify my sentence, "What I wonder, given your symptoms, is if there is not another component," I mean, in addition to celiac disease.
  8. plumbago
    The two test results you posted are for exposure to gluten in the short term. One seems to have been positive, but not the other. Nevertheless, it does kind of seem like you had improvement on a gluten-free diet. What I wonder, given your symptoms, is if there is not another component, such as SIBO or maybe a colitis. It may be worth investigating. Good that...
  9. plumbago
    I just ate some marinara sauce and could feel the beginnings of some activity inside my mouth, so for me, it's very likely acidic foods (and the SLS in toothpaste), and not any vitamin deficiency and for sure not anemia. Good luck Rory.
  10. plumbago
    I am gluten free and still occasionally get aphthous ulcers, which I wrote about here: I think it might be stress, acidic foods, and/or the toothpaste I used to use.
  11. plumbago
    It was 10 years ago that I was initially tested. Of those tests (ttg-IgA; gliadin peptide IgG; and gliadin peptide IgA) none had a range of 0. At the time, for the tests I had, you should aim for less than 7 (I did not meet that mark). In addition, my D3 and B12 were low, so too ferritin (though that continues to be low now and again).
  12. plumbago
    I agree. Unless your use of definite gluten-containing products is excessive, I tend not to assign much blame to cosmetic products. What makes you think you are continuing to have exposures? Have you been eating out much? How do you respond to milk products?
  13. plumbago
    The second of your tests, (TTG IgA) is not 100% specific: there are other causes of a positive test, including diabetes, heart failure, Crohn’s and others. (Also, people who have celiac disease can get a negative result with this test.) This test is machine-read. (Background: The enzyme TTG deamidates gliadin (a broken-down component of gluten). In reaction t...
  14. plumbago
    Exactly.
  15. plumbago
    Olmesartan is not an ACE inhibitor. It's an ARB (angiotension receptor blocker).
  16. plumbago
    In January 2018, there was a discussion on this site of the ARB class of medications and villi blunting. Lisinopril is an ACE inhibitor, not an ARB. I haven't heard about a linkage between lisinopril and Celiac or between lisinopril and villi blunting, but that doesn't mean much! Here's something I cited in Jan. 2018: Small Bowel Histopathologic...
  17. plumbago
    I've had gluten-free bread before that I just know was meant to taste like rye. I did not like it though. I think the main herb they used was either anise or something like anise. They went overboard. I was diagnosed as an adult and well remember the deliciousness of rye bread.
  18. plumbago
    Hi, it may help others if they know what type diabetes you have. Plumbago
  19. plumbago
    @docaz Just to be clear, the part you quoted from me says damage done likely as a result of villi blunting. This was the doc said to me at the endoscopy center right after my EGD (ie, before biopsy results): "Good chance of having Celiac. Lining looks a little atrophic. Will have to wait until bx comes back." The report's finding (under "Findings") has: ...
  20. plumbago
    FWIW, my GI met with me minutes after my 'scope and said he could tell there was damage, which was likely a result of villi blunting.
  21. plumbago
    "Did you see anything on endoscopy that could explain my symptoms?" "How did my esophagus look?" Also there's something called the Marsh scale which you may want to familiarize yourself with to see if where the results fall on that scale (if they do). Generally I would surmise that because it's a phone appt that does mean your results are likely...
  22. plumbago
    Thanks for posting the pics. Is that your finger in the second photo? I sometimes have atopic dermatitis (aka eczema) and it occasionally has those things that look like blistery vesicules, like that. I think biopsy is the only way to know for sure that it is DH. My biopsy was negative for DH. As for your scalp, also thanks for posting that photo and...
  23. plumbago
    Hopefully you have more choices than that. DH (if it was DH, which it sounds like it probably was) and the folliculitis may not be related. Or, you could be right, and it just takes more time. Check back in with the doctor. Let her/him know exactly which medications you are on, some can induce folliculitis. Let the doc know if it runs in your family...
  24. plumbago
    Ok, good luck, and please SD and wear a mask! I still don't have a good sense of the total time on and off gluten your son has experienced. Not that having that info will be determinative, as I've said, but I can possibly offer an education guess. This is a very common question on this site. The standard advice (granted, advice given to adults...
  25. plumbago
    My question would be for how long your son has been back on gluten? But even knowing the answer to that question, it may still be difficult for us to know or say whether (resumption of) villi damage would occur in time to be detected upon re-scoping. I'm so sorry you're going through this, gosh, I can't imagine the anguish. These are tough questions...
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