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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by plumbago
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One Dish Cuisine (restaurant in Ellicott City, Maryland)
plumbago replied to plumbago's topic in Gluten-Free Restaurants
Thanks! Yes, I just saw this myself, and o sure, I'll go plunk down a check tomorrow! But actually it's been a dream of mine to open a gluten-free restaurant in DC and call it Gluten Free, so there'd be no question. It's just strange because the rest of the web site is open. If it weren't for the sidebar twitter feed and the blog, you wouldn't know.... -
Hi everyone, If you live in the DC or Baltimore area, do you know the story about One Dish Cuisine? After nine years with my dx of celiac disease, I was finally preparing for a weekend trip/pilgrimage there, but saw on a sidebar twitter feed on their web site, that it's closed. Does anyone know the full story? Thanks! Plumbago
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Stress probably still can cause ulcers, as far as I understand, but from my reading online, the discussion so far is correct. H. Pylori is responsible (probably) for the majority of ulcers. However, I would keep my "no connection" (celiac disease and HP) powder dry until I do more investigating, but that's just me. However, it (no connection) is what is understood...
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Regarding the greens, I actually like them, and jam a lot in my smoothie in the morning. I almost always add ginger, which helps immensely. I have tried twice to eat organ meats, and I could not muster any enthusiasm, it felt like I was eating wrought iron. I am not precise on what I’m doing, so I probably should not even come close to saying I do anything l...
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Wow: more than what she calls for?! Incredible. How do you do it? I know you said lettuce, but that can take you only so far, I would think. Do you have anything to cite regarding food and eczema? I also have eczema but thought in my case it was triggered by an environmental allergen. But your arthritis, that's just great. My knees are starting to hurt, maybe...
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Misdiagnosis Six Years Later?
plumbago replied to Chuck1004's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I can imagine you may be tiring of our skepticism, but one more: are you curious what this was due to? CD3 immunostain demonstrates increased intraepithelial lymphocytes throughout most of the architecturally preserved villi. -
Misdiagnosis Six Years Later?
plumbago replied to Chuck1004's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Chuck, Was that a normal endoscopy you had in 2012? From another post you made at https://www.celiac.com/forums/topic/121153-six-years-after-diagnosis-2nd-endoscopy-results/?tab=comments#comment-990090 you mentioned the results which I've copied below: Duodenal mucosa with increased intraepithelial lymphocytes and normal villous architecture... -
Reason for delay in my responding is that I am just seeing this now. Terry Wahls, MD is a genius/fantastic person/insert own superlative - in my book. She actually recommends 9 cups of nonstarchy vegetables (last time I looked), and she herself does some kind of version of keto to overcome her MS successfully, but I do not have all the details on that, just...
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Misdiagnosis Six Years Later?
plumbago replied to Chuck1004's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
The liver is a blessedly regenerative organ (up to a point), but still listen to those doctors! Losing 7-10% of weight is said to improve things a lot (assuming you are overweight), as you seem to know already. There's the ALT which you've already given, but there's also AST, which I don't think you have listed. In any event, there is something you may... -
Misdiagnosis Six Years Later?
plumbago replied to Chuck1004's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I’m wondering if they are now wanting to work you up from a liver and pancreas angle. It struck me as a bit strange that you said you had fatty liver with enzymes just barely out of range. Did they say NAFLD or NASH? Although I did “walk through the front door” regarding a celiac disease dx, Dr Fasano meant from a labs and endoscopy point of view. I do... -
Misdiagnosis Six Years Later?
plumbago replied to Chuck1004's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
It must be maddening to have such vague responses. But regarding the lymphocytosis on your biopsy, according to a Grand Rounds lecture on the pathogenesis of celiac by Dr Hasan H. Hasan: “Gluten digests into gliadin. Gliadin gets into the epithelium and destroys the epithelial cells. It causes an overexpression of the cytokines, interleukin-15, and i... -
I find that responders often do not listen to what is said in responses or in original posts. My magnesium levels and other labs were posted and I know I don't have asthma. Neither of those things mattered. As long as something unexpected happened to someone then it has happened to me, and nothing I can say is anything other than meaningless noise until someone...
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For years, I've been using Kiss My Face olive oil soap (not for my face, but mostly hand washing). It is the best. It's got three ingredients (I think) and is mostly olive oil (over 80%). Now, it's no more, for one reason or another. Does anyone know of a suitable replacement? Preferably one with very very few ingredients. Thanks.
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Wierd pain/discomfort
plumbago replied to Joepilk's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Without a lot more information, no. Do you think it might be a hernia? What do you think it is? -
Exactly. Am I not making myself clear? I mentioned the obesity in relation to the previous posters' linkages to CRP and asthma.
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The study states, "In patients with OSAS, the primary factors influencing levels of CRP were severity of OSAS and body mass index and those influencing levels of IL-6 were body mass index and nocturnal hypoxia." (I did note that we don’t have the hard numbers from that abstract.) And did you notice it said severity of OSAS and BMI? My post from Nov 2...
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Wellllll, I think I would know if my bronchioles were malfunctioning and I was clogged with mucus! There are direct physical signs that can diagnose asthma (hyperexpansion of the chest, and expiratory wheezing heard on auscultation of the chest, and so on). And as I said, I did do some of my own PFTs. We know what the symptoms are of an acute asthma...
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Thanks. I did a home sleep study and was shown to have severe sleep apnea, pretty much just sleep apnea. No asthma. I've done my own PFTs and they're more or less ok, and feel that I'd probably know it if I had asthma. Thanks for weighing in!
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I was hoping by my posting my recent labs, I would help you! If you read the labs that I posted, you see that I am not mag deficient. I did the correct test (the RBC one), in case you are interested to read the labs again. Also the results of my methylmalonic acid combined with the homocysteine levels mean I’m not B12 deficient either (and I do supplement t...
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Thanks for the enthusiasm for magnesium and D3. I guess in my case ya gotta dance with the one that brung ya. Meaning, I was hoping to talk about sleep apnea. But most who responded (or, more) touted the wonders of D3 and magnesium. And so I will deal with that. It’s worth researching, for sure. And I am seriously considering everything, but I do wonder -...
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The Psychology Today article you quote says exactly the opposite of that, if I am reading it correctly: Vitamin D. Vitamin D may increase the amount of magnesium the body absorbs. This is more likely when taking high doses of Vitamin D. Plumbago
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"What I am trying to point out is that there is no known reason for sleep apnea." Are we sure about that? There are some well-established risk factors, such as overweight. And according to the Mayo Clinic, the following are also risk factors: Neck circumference. A narrowed airway. Being male. Being older. Family history...
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Thanks. You mentioned you were morbidly obese. Did your D levels improve before the weight loss? Is that how you know it was the D that did it? I ask because it’s often difficult to figure things out when two or more factors are changed at the same time. From my initial reading, I see that being overweight is perhaps the strongest risk factor for sleep a...
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Thanks you two. Those look like some good links, Kitty. Do you have sleep apnea? I get my D levels taken yearly. Last year it was way up (for me) in the upper 70s, this year a bit lower in the 40s or 50s if I recall. I am trying to be better about remembering to take my weekly 50,000 IU of D3. I tend to think my apnea is structural/anatomical but we...