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plumbago

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by plumbago

  1. plumbago
    "The chills and general aches, and generally feel bad, like the flu.. for two days only." Two days is a long time to be feeling bad! I have only been able to link a flu-like/inflammatory reaction to something I ate that likely had gluten in it a couple of times. But yes, the reaction was a warm feeling like you have when just getting sick, general malaise...
  2. plumbago
    In my experience, costochondritis refers to inflammation of the cartilage attaching the ribs to the sternum. I haven't heard of itchiness as a symptom. (Costochondritis seems often to be a catchall for I don't know what you have but it's not a heart attack!) Anyway, have you talked to your doctor about vaccines? Once any lesions dry up, it may still be worth...
  3. plumbago
    Again, I recommend a hands on assessment to locate the exact source of the pain. It's impossible to know what's going on without it.
  4. plumbago
    Do you suspect it is something psychological? Pediatricians are trained and taught to stop look and listen to a parent who says the child is not her usual self. I'm not as sure about that with GIs, but the doctors should listen if you say, look this is definitely not normal. Ask for a full hands on gastro assessment, if you need to. The days of doctors touching...
  5. plumbago
    Hello everyone, Episode 95 of the online general practitioner podcast of the Curbsiders is Food allergy, food intolerance and celiac disease. Give it a listen! Here is the blurb: Separate the wheat from the chaff when it comes to food allergy, food intolerance, and celiac disease. Featuring renowned gastroenterologist and current president of...
  6. plumbago
    I'm confused: is this an “open letter” that was penned in 2012? I wonder why it is being datelined this month? “I've already introduced the undernutrition topic, so let's throw in a few million people who are undernourished, and therefore may be immunocompromised but are not at the extremes of the age spectrum.” There are very few people, I woul...
  7. plumbago
    Here are my answers to your questions, based on my experience. YES Frequent diarrhoea (every 2-3 days) NOT REALLY Urgency to have a BM YES, somewhat frequently - abdominal pain and cramping frequently – my cramping occurred just before a BM. Relieved with BM. Happens less now, but still does occasionally and when it does, I tend to think this may b...
  8. plumbago
    It sounds like you do have it, but that you’ll just need to wait a little longer to get confirmation. Something similar happened to me - the gastro said that upon visualization it seemed that the diagnosis would come back as celiac disease, but that they’d wait for the biopsy for confirmation. As for why the GI didn’t reach out to dermatology, a couple of re...
  9. plumbago
    OMG. Just OMG.
  10. plumbago
    My guess is that there are precious few tests eligible on the formulary for Medicaid based insurances, unfortunately. Public health clinics don't have their own formularies, as far as I know, but deliver care based (usually) on what the patients' insurance covers. (Public health clinics do eat a large amount of costs not paid by either patient or insurance...
  11. plumbago
    Yes, I would appeal. I am trying to gauge how often those on Medicaid (and Medicare for that matter) are ordered Celiac tests, because my fear is, it's not often at all. I started a separate thread on the topic, but so far, no replies. I wonder if it's even covered. At any rate, I think it would be a great idea to get some kind of campaign started for...
  12. plumbago
    While I don't personally recognize your story, from what I understand about allergies, it usually takes a second exposure to an allergen to trigger a reaction such as anaphylaxis. I’m so sorry to hear of the recent news you are receiving. It’s likely that it’s beyond most of us on these boards to be able to contribute in a super meaningful way, but ...
  13. plumbago
    Hello, Do you know what the cause is of hyperparathyroidism? And, is your blood glucose ok?
  14. plumbago
    Does anyone have any experience with or knowledge of how frequently/routinely/easily Medicaid patients (public health clinic patients) are tested for celiac disease? My suspicion is that this is a very rare event, but I just wanted to ask. Thanks. Plumbago
  15. plumbago
    Fortunately the liver is a forgiving organ, as organs go.
  16. plumbago
    Sort of a disappointing article.
  17. plumbago
    Hello, I can tell you a couple of things, the first of which is based on personal experience. I sometimes have an unsightly rough patch on my nose that I have been struggling with for a number of years. If I bring up the topic at the dermatologist, they tend to put me on either an anti-fungal or a steroid cream, both of which after a while I stop using...
  18. plumbago
    Having the endoscopy is the "gold standard" for Celiac diagnosis. If it shows villous damage, that means you have celiac disease. I had this done, and I'm glad I did because I'm the kind of person who needs that extra proof. Can you call your insurance to make extra sure that it is indeed not covered? If that is difficult, sometimes doctor's offices or clinics...
  19. plumbago
    Just a suggestion, not an answer, but I have heard that the body's difficulty breaking down certain proteins may contribute to a different sort of body odor. I'm surprised your doctor would not have suggested that (assuming he/she agreed it was a problem). Plumbago
  20. plumbago
    What an incredibly newsy and good article that is from NPR! A lot of useful things in there, including the urine and stool tests.
  21. plumbago
    I read that thread too and it struck me as a blanket assertion that was maybe wise to be skeptical about. Thank you for this post. "Advil. This ibuprofen-containing pain reliever comes in four varieties: Advil, Advil Film-Coated, Advil Liqui-Gels and Advil Migraine. According to the company, "Advil Liqui-Gels and Advil Migraine contain a wheat derivative...
  22. plumbago
    Before I started taking anything, such as lysine, I would want to know for sure that I had the condition (in this case, herpes) and that I was not pregnant. Medscape has lysine in the avoid category for pregnancy or lactation. But it does say -- "Possibly effective for herpes simplex labialis treatment" Medscape lists adverse effects of lysine as...
  23. plumbago
    I would not say to never take Tylenol, but I would recommend stopping by a pharmacy and speaking to the pharmacist about what you plan on taking. This is a most underutilized resource! And, they are most willing to help. Absent from the WJLA story - aside from the date! (Fox had it) - was the amount she was taking daily (even an estimate) and if she...
  24. plumbago
    Hi Cathy, Yes, I had aphthous ulcers in the summer of 2017. I wrote about it here: https://www.celiac.com/forums/topic/118602-aphthous-ulcers/?tab=comments#comment-977823 I did numerous things - mostly I gave up sugar, drank only water, stopped using toothpaste with SLS in it, I used listerine, and took a bit more B12. They went away and haven...
  25. plumbago
    If you do end up getting an endoscopy, since you are now gluten free, there is a good chance that a diagnosis of celiac disease will not be made based on the procedure. If they won't do an endoscopy, there's probably less of a chance they'd do a hepatobiliary (HIDA) scan, which I have just heard about. It is an imaging procedure used to diagnose problems...
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