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plumbago

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by plumbago

  1. plumbago
    This is good to know. My issue is that I was getting into a rut (as you do) and then I found the NYT cooking site for $5 a month, which I did for one month, and let me just say it is FANTASTIC. Easy recipes, not too exotic ingredients. DELICIOUS MEALS. Plumbago
  2. plumbago
    Yes, I know what you mean about being able to anticipate things like having a good skin day. As you note, it’s being very in tune with your body. Who knows why that is - some complex interplay between organ and brain facilitated by one receptor or another. It’s for others to figure out, not me! As to figuring out whether or not your rash is DH, has any...
  3. plumbago
    You can be alert and still have a seizure. There are different types of seizures. I agree that there is often a neurological component to celiac. I wish you all the best in pursuing causes. Please keep us updated! Plumbago
  4. plumbago
    This is great. I appreciate your updating your original post, too. Is this the site? https://www.trifectanutrition.com/ One thing that I do/did to stave off hunger was drink either coffee or green tea (unsweetened naturally). Seemed to work/give my mouth something to do/distraction. Plumbago
  5. plumbago
    What a horrible experience, and I am so sorry that you went through it. Regarding the advice to go to your PCP, not a GI, I remembered how cursorily I was treated (on the whole) at my GI. They were very much oriented, at that time, to the scopes and not much else, though at the same time, it was a few years ago, and my memory might not be putting all the...
  6. plumbago
    Dysphagia (difficulty swallowing) is serious and you should be attended to as soon as you can. I would first rule out that it's not something mechanical. There are congenital conditions that can cause a narrowing of the esophagus. And Celiac can too (esophageal web). Then, if that's not it, I would second the recommendation to see a neurologist. Additionally...
  7. plumbago
    I admit to not understanding the ins and outs of how this enzyme works and how its functioning gives meaning to a lab test, in this case a low reading, but I can type words out of a book. "Although ALP is found in many tissues, the highest concentrations are found in the liver, biliary tract epithelium, and bone. Detection of this enzyme is important...
  8. plumbago
    Hi Lilly, This is still confusing. Have you had two endoscopies? Your narrative about the second one is what's confusing. Perhaps if you could clear up the timeline we can respond better. Plumbago
  9. plumbago
    I love pharmacists!
  10. plumbago
    Hello, I have no idea what it could be, but I had joint pain at some point between 6 mos to two years after diagnosis with celiac disease. I got a battery of allergy tests (via blood) and nothing came back positive. Eventually the pain went away. Maybe get some inflammation markers tested? That would be my only thought. Since I've done a lot...
  11. plumbago
    Hi Katie, Question for you: What do you think is the source of your nausea? Two, that (to me) seems like a lot of medicine to be taking! Next: how high was your fever at its highest before you began Tylenol and ibuprofen? Is the blood in the stool totally new? You have never had it before? Is it possible it is from either a hemorrhoid, or a difficult...
  12. plumbago
    It would be important to know 1) how high is your BP (as someone mentioned above); 2) while it is high, are you having symptoms at the same time, and if so which ones? and 3) how fast is your heart rate? I recommend committing your BP meds (and dosages) to memory so you can tell anyone who needs to know just what you are taking, and to avoid “polypharmacy.”...
  13. plumbago
    Gluten free food is not regulated as it is a "specialty food." What this means is that unlike gluten-containing bread and other grains, gluten free bread has no required fortifications (iron, B vitamins, and folate). I'm almost positive that your doctor has recommended folate fortification to you and hopefully you are testing your vitamin levels. Plumbago
  14. plumbago
    Hello everyone, First of all, let me acknowledge that the start of this topic chain is a whopping 11 years old. I found it after getting home from perusing the mentos row in a grocery store about 30 minutes ago and really really wanting some. But, like everyone on this thread, I noticed the words wheat syrup. What the heck? Then I see all of the...
  15. plumbago
    I had never heard of cold urticaria before, though I should not be surprised that it exists. Afterall, my experience is that we produce mucus in reaction to very cold weather. This is a pretty neat site that talks about possible secondary causes (though you probably know most of this already): https://www.dermnetnz.org/topics/cold-urticaria/ Otherwise...
  16. plumbago
    Find another BMI chart because I'm not sure that is correct! I see the lowest normal being (maybe) 105-110, but it's kind of hard to tell. Anyway, isn't it possible that some people could easily be 5'2" and in the low normal range and be perfectly healthy, perhaps just not you? Agree with your other points, especially about muscularity.
  17. plumbago
    Ok then, you are doing the right things. Me in your place, just to experiment I’d give up all sugar and sweet things even the artificial stuff for 2-3 weeks just to see if it makes a difference. I went all summer 2017 without sugar and lots of little nagging things cleared up, I indulged from Sept through October but November again was sugar free and now a...
  18. plumbago
    So, no sugar then? If you are 5'2" and 137 lbs, your BMI is 25.1 which as you probably know is just slightly into the overweight category. What occurs to me so far is to suggest fasting to experiment and see what happens (ideally a two day fast, with water of course), but with 3 children that is probably not advisable. When I want to drop 3 or so pounds...
  19. plumbago
    I completely understand. The only other thing I wanted to add was that if you do decide to do shakes (aka smoothies) make sure you really let that blender roll! Meaning, keep it blending for a good long while. I put all my veggies and fruit in (and water), and blend it, then I add ice and just let it go while I am doing my morning thing (cleaning, cooking...
  20. plumbago
    Ok, but Miralax is just as much a medicine as senna is! Just cause senna comes in a pill form doesn't make it any more of a medicine than something you drink. My .02.
  21. plumbago
    At any one time in someone's life, especially a child's where change is constant/necessary, the body is busy with its assigned activities, including mobilizing against various antigens - might this temporarily raise counts of the various types of white blood cells? Although I probably should not speculate, the doctor may think that a case of an eosinophil...
  22. plumbago
    Sounds like you have a definite handle on the dietary aspect of constipation. Sometimes when children's routines change and there may be a different voiding pattern, children will withhold due to unfamiliar surroundings. There are other reasons to avoid going, such as pain. I remember I used to have pain as a child. There may be something that can be done...
  23. plumbago
    veggies veggies veggies and fruit. How, you ask? Shakes! Ice, ginger, yogurt (maybe even vanilla ice cream instead of yogurt), baby spinach and/or kale, beets (bit of sweet and will hide the green color), quarter of banana, carrot, blue berry, pineapple, orange - whatever! I recommend more veggies than fruit, but half and half should also be...
  24. plumbago
    I recommend getting labs drawn to know the various vitamin and mineral levels before you start supplementing. Eat gluten free food that agrees with you, initially. The advice to eat veggies and fruit and whole foods is of course good, but you also have to know what works for you and your stomach in general. Ask -- how damaged is my gut? Did you have...
  25. plumbago
    This is really a general post about alkalinity and being in the news these days. Alkalinity is totally trendy, but I encourage people to educate themselves about this and not rely on trends. I don’t mean to suggest that I know everything there is to know about this, but, for example this site (http://www.foodenzymeinstitute.com/articles/digestion-in-t...
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