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plumbago

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by plumbago

  1. plumbago
    Fortunately the liver is a forgiving organ, as organs go.
  2. plumbago
    Sort of a disappointing article.
  3. plumbago
    Hello, I can tell you a couple of things, the first of which is based on personal experience. I sometimes have an unsightly rough patch on my nose that I have been struggling with for a number of years. If I bring up the topic at the dermatologist, they tend to put me on either an anti-fungal or a steroid cream, both of which after a while I stop using...
  4. plumbago
    Having the endoscopy is the "gold standard" for Celiac diagnosis. If it shows villous damage, that means you have celiac disease. I had this done, and I'm glad I did because I'm the kind of person who needs that extra proof. Can you call your insurance to make extra sure that it is indeed not covered? If that is difficult, sometimes doctor's offices or clinics...
  5. plumbago
    Just a suggestion, not an answer, but I have heard that the body's difficulty breaking down certain proteins may contribute to a different sort of body odor. I'm surprised your doctor would not have suggested that (assuming he/she agreed it was a problem). Plumbago
  6. plumbago
    What an incredibly newsy and good article that is from NPR! A lot of useful things in there, including the urine and stool tests.
  7. plumbago
    I read that thread too and it struck me as a blanket assertion that was maybe wise to be skeptical about. Thank you for this post. "Advil. This ibuprofen-containing pain reliever comes in four varieties: Advil, Advil Film-Coated, Advil Liqui-Gels and Advil Migraine. According to the company, "Advil Liqui-Gels and Advil Migraine contain a wheat derivative...
  8. plumbago
    Before I started taking anything, such as lysine, I would want to know for sure that I had the condition (in this case, herpes) and that I was not pregnant. Medscape has lysine in the avoid category for pregnancy or lactation. But it does say -- "Possibly effective for herpes simplex labialis treatment" Medscape lists adverse effects of lysine as...
  9. plumbago
    I would not say to never take Tylenol, but I would recommend stopping by a pharmacy and speaking to the pharmacist about what you plan on taking. This is a most underutilized resource! And, they are most willing to help. Absent from the WJLA story - aside from the date! (Fox had it) - was the amount she was taking daily (even an estimate) and if she...
  10. plumbago
    Hi Cathy, Yes, I had aphthous ulcers in the summer of 2017. I wrote about it here: https://www.celiac.com/forums/topic/118602-aphthous-ulcers/?tab=comments#comment-977823 I did numerous things - mostly I gave up sugar, drank only water, stopped using toothpaste with SLS in it, I used listerine, and took a bit more B12. They went away and haven...
  11. plumbago
    If you do end up getting an endoscopy, since you are now gluten free, there is a good chance that a diagnosis of celiac disease will not be made based on the procedure. If they won't do an endoscopy, there's probably less of a chance they'd do a hepatobiliary (HIDA) scan, which I have just heard about. It is an imaging procedure used to diagnose problems...
  12. plumbago
    This is good to know. My issue is that I was getting into a rut (as you do) and then I found the NYT cooking site for $5 a month, which I did for one month, and let me just say it is FANTASTIC. Easy recipes, not too exotic ingredients. DELICIOUS MEALS. Plumbago
  13. plumbago
    Yes, I know what you mean about being able to anticipate things like having a good skin day. As you note, it’s being very in tune with your body. Who knows why that is - some complex interplay between organ and brain facilitated by one receptor or another. It’s for others to figure out, not me! As to figuring out whether or not your rash is DH, has any...
  14. plumbago
    You can be alert and still have a seizure. There are different types of seizures. I agree that there is often a neurological component to celiac. I wish you all the best in pursuing causes. Please keep us updated! Plumbago
  15. plumbago
    This is great. I appreciate your updating your original post, too. Is this the site? https://www.trifectanutrition.com/ One thing that I do/did to stave off hunger was drink either coffee or green tea (unsweetened naturally). Seemed to work/give my mouth something to do/distraction. Plumbago
  16. plumbago
    What a horrible experience, and I am so sorry that you went through it. Regarding the advice to go to your PCP, not a GI, I remembered how cursorily I was treated (on the whole) at my GI. They were very much oriented, at that time, to the scopes and not much else, though at the same time, it was a few years ago, and my memory might not be putting all the...
  17. plumbago
    Dysphagia (difficulty swallowing) is serious and you should be attended to as soon as you can. I would first rule out that it's not something mechanical. There are congenital conditions that can cause a narrowing of the esophagus. And Celiac can too (esophageal web). Then, if that's not it, I would second the recommendation to see a neurologist. Additionally...
  18. plumbago
    I admit to not understanding the ins and outs of how this enzyme works and how its functioning gives meaning to a lab test, in this case a low reading, but I can type words out of a book. "Although ALP is found in many tissues, the highest concentrations are found in the liver, biliary tract epithelium, and bone. Detection of this enzyme is important...
  19. plumbago
    Hi Lilly, This is still confusing. Have you had two endoscopies? Your narrative about the second one is what's confusing. Perhaps if you could clear up the timeline we can respond better. Plumbago
  20. plumbago
    I love pharmacists!
  21. plumbago
    Hello, I have no idea what it could be, but I had joint pain at some point between 6 mos to two years after diagnosis with celiac disease. I got a battery of allergy tests (via blood) and nothing came back positive. Eventually the pain went away. Maybe get some inflammation markers tested? That would be my only thought. Since I've done a lot...
  22. plumbago
    Hi Katie, Question for you: What do you think is the source of your nausea? Two, that (to me) seems like a lot of medicine to be taking! Next: how high was your fever at its highest before you began Tylenol and ibuprofen? Is the blood in the stool totally new? You have never had it before? Is it possible it is from either a hemorrhoid, or a difficult...
  23. plumbago
    It would be important to know 1) how high is your BP (as someone mentioned above); 2) while it is high, are you having symptoms at the same time, and if so which ones? and 3) how fast is your heart rate? I recommend committing your BP meds (and dosages) to memory so you can tell anyone who needs to know just what you are taking, and to avoid “polypharmacy.”...
  24. plumbago
    Gluten free food is not regulated as it is a "specialty food." What this means is that unlike gluten-containing bread and other grains, gluten free bread has no required fortifications (iron, B vitamins, and folate). I'm almost positive that your doctor has recommended folate fortification to you and hopefully you are testing your vitamin levels. Plumbago
  25. plumbago
    Hello everyone, First of all, let me acknowledge that the start of this topic chain is a whopping 11 years old. I found it after getting home from perusing the mentos row in a grocery store about 30 minutes ago and really really wanting some. But, like everyone on this thread, I noticed the words wheat syrup. What the heck? Then I see all of the...
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