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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by plumbago
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Stouffer's Chicken Broth
plumbago replied to plumbago's topic in Gluten-Free Foods, Products, Shopping & Medications
Note to self: post during the DAY. Too tired at night! Swanson's!!!! I mean. And it does appear to be gluten-free. -
Foods labeled as allergen free
plumbago replied to lilo's topic in Gluten-Free Foods, Products, Shopping & Medications
This seems like a good time to ask what happened with the 2014 FDA regulation on the labeling of gluten free foods. First, has it gone into effect? Second, am I correct in reading that it is voluntary? Really?? What good is that? Anyway, does anyone have any news or experience with this? Plumbago -
Hello, I’m not capable of explaining exactly what’s going on with the left-sided only symptoms, beyond suggesting a possible association with nerve damage, but really a doctor should be the one to weigh in. The advice to continue eating gluten (and there are guidelines as to how much) before a celiac test is good, and worth following. If you are con...
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Scared of drinking contrast?
plumbago replied to HaleyMoon's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi everyone, I recently listened to a medical podcast (The Curbsiders Internal Medicine podcast) during which the docs said that it is impossible to be allergic to an essential element the body has and needs (iodine) and just because one is allergic to shellfish (which has iodine) does not mean one will be allergic to contrast dye (that also has iodine... -
Has anyone been had their Hep B titers taken? I got the whole series (three Hep B vaccines), and then had to submit proof of responsiveness (or immunity, though I'm not sure that is the correct word, exactly), and my blood draw indicated I was not immune. So I got a booster, which seemed to satisfy everyone at the time. However, yesterday I saw on this site...
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Mysterious me!
plumbago replied to Kennyholtsie's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi, When you went gluten free did any symptoms improve (and then return)? If they did improve, for how long? Have you been to an ophthalmologist? A quick google turned up the possibility of TMJ "Inflammation and irritation caused by friction in the temporomandibular joint can irritate and cause dysfunction in the trigeminal nerve which in... -
Peripheral neuropathy
plumbago replied to artistsl's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi, I belong to a diabetes forum (I don’t have diabetes, I just like to learn) and came across this recent post on the four kinds of neuropathy. The poster says you can get a nerve conduction test, EMG. http://www.tudiabetes.org/forum/t/four-kinds-of-neuropathy/64211/10 Yes, I’ve heard gluten can damage nerves, but I don’t know much else about... -
Endoscopy deicphering
plumbago replied to Bigchan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
"I will be working closely with a Functional medicine practitioner in the near future" Excellent! I was going to suggest that. Do as much research on yourself and your issues as you can. Learn as much as possible before the appointment, which will make it so much more worthwhile. Ah, now I see why you were wanting to know about hypothyroidism and... -
Endoscopy deicphering
plumbago replied to Bigchan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
A. Duodenum Biopsy; Mature benign small bowel mucosa with a normal villous architecture. Abdominal pain/bowel issues/Wt loss. R/O Celiac. Findings: Mild gastritis. EGD. ___________________________ It looks like you have "normal villous architecture," in other words, no damage to your villi. It would be good to know how many samples for the... -
How much gluten is in a communion wafer
plumbago replied to Deades's topic in Coping with Celiac Disease
But does he put it in your mouth after putting all the gluten-containing wafers in other parishioners mouths? Anyway, nice that he lets you do it considering that the church decided against gluten-free wafers recently. Plumbago -
Update on testing
plumbago replied to Jctb's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I looked at your past posts, but I’m not sure i know what you were eating then and what you’ve stopped eating now. Also what sort of medical workups you’ve had and what were the results. I understand your biopsy was negative - but I also saw on one post that you were worried they only took one biopsy. Do you have the analyst’s result report there with yo... -
I’m so sorry you feel you must steal, that must be awful. The only thing I might consider is that it can become a habit, especially the self-justification part. Not that I'm recommending it right now for you , but with a ketogenic diet, the body goes into ketosis, not ketoacidosis, which is something that people with Type I diabetes can go into: in a...
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Night Sweats, Gluten Ataxia, and Autonomic neuropathy
plumbago replied to Ennis-TX's topic in Related Issues & Disorders
I don’t know a lot about this, except to say something similar happens to me. I’m a woman. And in my case, a full bladder (especially at rest, when asleep) seems to cause a flop sweat and I will have to get up, go to the bathroom. No more heat and sweating after that. I also find that if I drink less fluid in the late afternoon and early evening hours, it... -
Most physicians follow the joint commission’s guidelines on prescribing HTN medications which usually begin with a diuretic and calcium channel blocker (the amlodipine) - see below. Is it possible that your bp was still not controlled on the CCB (amlodipine)? So the ARB was added? Again, I’d just like to say that just bc a drug does have certain adverse eff...
- 11 replies
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- celiac patient
- losartan
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(and 3 more)
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Hi Lindsey Anne -- This summer, I had sores on my tongue which were horrible. I wrote about it here: I haven't had any since July. Since June of this year, I haven't really had added sugar, and that has probably helped. I also changed toothpastes to ones that do not have SLS. Plumbago Cycling lady, do you mean a gluten containing diet...
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Hello, Often drugs that end in –artan are ARBs, and they work by blocking the angiotensin receptors. I’m not sure what the exact difference is between the two medications you mention, though. Have you called the manufacturer of losartan to see if any of the fillers contain gluten? It might be a good idea to know what those fillers are. In my dru...
- 11 replies
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- celiac patient
- losartan
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(and 3 more)
Tagged with:
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Help! Still sick
plumbago replied to Jherm21's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I suggested a urinalysis to see if you had proteinuria, which is something that can happen with certain rheumatoid conditions. But you say you’ve had two ANAs - assuming those came back normal? I really like the suggestion of a food diary and going low carb, especially as raised glucose consumption can lead to a positive methane breath test. You may have a... -
Oh how awful, and it sounds like there may be a CQ deficit among your medical helpers!, CQ being curiosity quotient. But maybe they’re researching it. It’s very difficult for me, too, to understand when I’ve been glutened – to narrow down the culprit, or even if there is a culprit. I haven’t heard of rectal pain, but that shouldn’t mean too much, as I ...
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What was your gluten free diet like? I wonder if, when you were gluten-free, you went more whole food, less processed food? Or did you continue to eat processed food that was just gluten free? One reason I ask is that I have cut way back on grains and processed foods like gluten-free bread, but occasionally allow myself a treat which is a gluten-free biscuit...
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Help! Still sick
plumbago replied to Jherm21's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi, I’m sorry you’re not feeling well and sympathize with the lack of answers. It’s not usually normal to have reduced WBC, no. If I had reduced WBC I would want to make sure it’s not a rheumatoid autoimmune condition, so I might get an ANA and a urinalysis. Are you taking any medications? Do you have a rash? Family history of autoimmunity? O... -
Yes, elevated intra-epithelial lymphocytosis is a possible indication of Celiac disease. That’s what my biopsy said. “Moderate to marked villous blunting with moderate to marked intra-epithelial lymphocytosis and marked chronic inflammation of lamina propia….characteristic for untreated celiac…” What we are finding out about these medicines is incred...
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Hi GF2011, Do you know if you have hypertension? Or diabetes? “Normal male sexual function requires a complex interaction of vascular, neurological, hormonal, and psychological systems…Nitric oxide plays a significant role, and … loss of erection … occurs when nitric oxide-induced vasodilation ceases….Low NO levels are found in people with diab...
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No Boil Lasagna Noodles
plumbago replied to plumbago's topic in Gluten-Free Foods, Products, Shopping & Medications
Ok, thanks. I suppose those are available in the grocery stores, but it's been harder and harder to find lasagna noodles, no boil or not...