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plumbago

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by plumbago

  1. plumbago
    That wouldn't sit right with me either. I'm wondering if you can get a second opinion? Meaning - I guess - you'd need to call the doctor's office very quickly to tell them not to dispose of the specimens (they would have to call the pathologist, I'd guess) and to have them read by another pathologist. I'm just tossing that out as a possible idea, I don't...
  2. plumbago
    I hear your frustration, but just so you know, Scott Adams is actually one of the founders of this site and is instrumental to say the least in its continuation. I appreciate your giving us a heads up on the food in question, but I also really appreciated what Scott had to say, as I did not really know that. Plumbago
  3. plumbago
    Did you look on the ingredients list? Maybe there's something there that you react to besides gluten.
  4. plumbago
    This is not my experience at all. I refrigerate or freeze all my gluten free breads. Is that what you are doing? Also, yes a diet full of processed gluten free foods (especially ultra processed) is not good for anyone. That's why it's best to emphasize whole vegetables, fruits, and meats, and limit breads, crackers, chips, etc. There's a gluten free...
  5. plumbago
    i thought i was the only one who noticed this!
  6. plumbago
    Of course. According to a previous post on this same topic: You can search for your medication at this site, and see the ingredients section: https://dailymed.nlm.nih.gov/dailymed/ Part of what I do for my job is dispense medications. The medications patients receive may often have different manufacturers (for the same medication), so...
  7. plumbago
    Sorry to hear that. Sounds like you are having a bad reaction to this medication and need to return to your primary care doctor and get a recommendation from him or her (not us...:)) Typically, doctors and other practitioners use an algorithm to determine an appropriate therapy for bringing BP back under control and maintaining it. Amlodipine is a commonly...
  8. plumbago
    what is your a1c?
  9. plumbago
    @KaysMomma Anecdotally, I have a friend who used to black out after eating and the doctor did diagnose vasovagal as well. How does your daughter do at blood draws? Does she pass out then?
  10. plumbago
    Ok, so in your first post, you say you've gone off gluten. But in your most recent post, you say you are awaiting blood test results. If the blood was drawn after you stopped eating gluten, it will not be possible to get a good sense of if you have celiac disease or not. You need to be eating gluten for a certain amount of time before you get blood tests...
  11. plumbago
    I'm also a nurse, but one who has worked in chronic care, and to some extent, it is more satisfying to see patients through to a diagnosis (as opposed to working in the ED), but an accurate diagnosis does not occur not as often as it should! Your posting presents a lot of information. But a couple of things I can respond to. One, celiac disease is diagnosed...
  12. plumbago
    Could it be something (some additive or other) they added to the rice flour to make it easier to work with or cook?
  13. plumbago
    @gurgi I would look at the ingredients and go through that list to see if an allergic reaction is possible. Regarding m and s soft rolls: I did a search on the ingredients of the gluten free version. It has added B vitamins (b2, b5, and b6). I also see that niacin (b3) was added. Sometimes when people take b3 or, really, too much of it, they get a flush...
  14. plumbago
    Yes, that's probably best. (Honestly, that is an extraordinarily high number, I've never seen anything like that. I repeated my blood tests (not taken while pregnant BTW); before giving up cake, pizza, and beer, I wanted to know for sure! You don't wanna mess around with anything while pregnant. Congratulations and best of luck!
  15. plumbago
    If you tested positive for celiac on labwork, I would definitely give up gluten.
  16. plumbago
    The supplements should work with time on a gluten free diet. I would be concerned about that sodium level. From the other results you posted, the trend seems to be downward. Please do follow up about that. It's not normal to walk around constantly with a sodium of 130. As for diagnosis, you could go back on a full gluten containing diet and blood...
  17. plumbago
    Just to understand the timeline here. You say you cut out the wheat, dairy, and high FODMAP foods for two weeks, but you "just" got your lab results back? So you were not eating the aforementioned foods at the time of the blood draw? It's confusing because you also say that after the negative tests you stopped eating those foods. Let's first clarify the timeline...
  18. plumbago
    Thanks for clarifying that, Trents. In my response, I misread the celiac panel results, totally! So I retract that first sentence which was based on the misread of the antibody tests. But @gameboy68, as Trents says, the endoscopy/biopsy results do likely point to (or align with) celiac disease.
  19. plumbago
    @gameboy68 First, it looks like you do indeed have celiac disease, and a follow up with a gastroenterologist would seem to be in order. Many on these boards will draw your attention to the B12 and D3 levels. While those are important (you may have macrocytic anemia, often caused by low B12), what strikes me is your low sodium level. Your...
  20. plumbago
    Yes, and when I say go for a second opinion, I mean, just bring your results to him/her. No need to repeat tests.
  21. plumbago
    Looks to me like this is celiac. Go for a second opinion. Preferably someone with experience dealing with celiac disease.
  22. plumbago
    So sorry you are going through this @Hannah24. You should try to get to the bottom (ie find out the exact cause) of the low iron (if low iron is the root of it). Do you also have low hemoglobin? What is/was it? It's great that you got your GI tract checked out. Why would your docs think you are crazy if you've had two iron transfusions? (BTW - did...
  23. plumbago
    I've never heard of gluten being in olive oil.
  24. plumbago
    Hi again @ALLAN HUGHES You should definitely ask your medical doctors exactly why you are taking this medication and what is the exact source of the anemia. That will be step one, and will help immensely. Have you had any labs for inflammation levels? If so, what did they show? Systemic inflammation that results in immune cell activation and...
  25. plumbago
    @ALLAN HUGHES For me, learning about iron in the body is difficult and complicated because it has different forms and purposes, binds to one protein for transport, and is stored bound to another. Also, there are different components involved in the measurement of iron in the body, which mean different things. Finally, anemia does not just mean iron-deficiency...
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