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plumbago

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by plumbago

  1. plumbago
    Thanks for clarifying that, Trents. In my response, I misread the celiac panel results, totally! So I retract that first sentence which was based on the misread of the antibody tests. But @gameboy68, as Trents says, the endoscopy/biopsy results do likely point to (or align with) celiac disease.
  2. plumbago
    @gameboy68 First, it looks like you do indeed have celiac disease, and a follow up with a gastroenterologist would seem to be in order. Many on these boards will draw your attention to the B12 and D3 levels. While those are important (you may have macrocytic anemia, often caused by low B12), what strikes me is your low sodium level. Your...
  3. plumbago
    Yes, and when I say go for a second opinion, I mean, just bring your results to him/her. No need to repeat tests.
  4. plumbago
    Looks to me like this is celiac. Go for a second opinion. Preferably someone with experience dealing with celiac disease.
  5. plumbago
    So sorry you are going through this @Hannah24. You should try to get to the bottom (ie find out the exact cause) of the low iron (if low iron is the root of it). Do you also have low hemoglobin? What is/was it? It's great that you got your GI tract checked out. Why would your docs think you are crazy if you've had two iron transfusions? (BTW - did...
  6. plumbago
    I've never heard of gluten being in olive oil.
  7. plumbago
    Hi again @ALLAN HUGHES You should definitely ask your medical doctors exactly why you are taking this medication and what is the exact source of the anemia. That will be step one, and will help immensely. Have you had any labs for inflammation levels? If so, what did they show? Systemic inflammation that results in immune cell activation and...
  8. plumbago
    @ALLAN HUGHES For me, learning about iron in the body is difficult and complicated because it has different forms and purposes, binds to one protein for transport, and is stored bound to another. Also, there are different components involved in the measurement of iron in the body, which mean different things. Finally, anemia does not just mean iron-deficiency...
  9. plumbago
    Hello, My [insert cuss word here] diagnostic reference book does not mention celiac disease as a potential cause of elevated ALP! Grrr.... I am reading that, as you note, levels are higher for children than adults. Other pieces of information: "recent ingestion of a meal can increase levels;" certain drugs may increase levels - and it lists...
  10. plumbago
    A topic of endless discussion! I wish I had a clean answer to give you, but I don't.
  11. plumbago
    Good questions. For no. 1, did you mean months, there? People will tell you that different people react differently to gluten - some may be very sensitive, others less so. I asked the same question (no. 2) to a celiac expert I made sure to get an appt with before he left for Massachusetts, and was told something like an eighth of a teaspoon. I have no...
  12. plumbago
    Yes.
  13. plumbago
    -Plumbago
  14. plumbago
    Check with your doctor - sounds like your allergies are life-threatening and you should be prescribed an epi pen. (I didn't understand the sentence you wrote with "epi" in it, fyi.)
  15. plumbago
    What's the NIMA?
  16. plumbago
    @janeen McConniel Securing appointments with FM doctors would be ideal, if only insurance covered them, and/or we all could afford it!
  17. plumbago
    My goodness, that is quite an oversight! How did that happen? BTW, many with celiac often have elevated enzymes. Did your's normalize once you were on a gluten-free diet?
  18. plumbago
    I wish I had something constructive to tell you. The only other thing I can think of is that once people are gluten-free, often when they next get glutened, the reaction can be even worse than when they were regularly eating it.
  19. plumbago
    Anne, is the tablet itself gluten free? The rap on SSRIs is that they can often stimulate as opposed to depress one's nervous system. OTOH, maybe she's having some kind of paradoxical reaction. I can't write all that knowledgeably about it, other than to say, that when I take pseudoephedrine, I get very sleepy, whereas the rap on it, as a drug class, is that...
  20. plumbago
    Laura, I agree with trents, that blood in this instance is often attributed to a small cut in the anus / rectal area, and other things he noted. But you may at the same time want to ensure that you are not bleeding any further up your digestive tract, and for that, your doctor can order a FIT test or fecal occult blood. It's easy to do. Good luck.
  21. plumbago
    I know this is an old-ish post, but thought I would respond here for reasons that will become clear. Yes, when I was diagnosed with Celiac, the scopist also observed a hiatal hernia. It was of little interest to me at the time - roughly 13 years ago - because 1) I had no idea what a HH is/was, and 2) had no symptoms from it. I was told it is extremely common...
  22. plumbago
    The only way to reliably know if you have active disease is to go back to eating gluten, wait, and then repeat the comprehensive celiac panel. From NHS Inform: Before a blood test is taken, it's important that you eat gluten-containing foods in more than one meal every day for at least 6 weeks before the test. Remember to eat a normal gluten diet...
  23. plumbago
    What are they telling you is going on? Ie, diagnosis? Hope you get checked out by hematology and cardiology soon. Take care, and keep in touch.
  24. plumbago
    Anyway, I feel like maybe the forest is being missed, here, for the trees. There's a higher percentage of the stuff that's been added to foods, than occurs naturally in fruit. That's one. Two, and this was my main point - if people with celiac disease are still having issues, it is certainly worth considering that it could be these sugar alcohols. I...
  25. plumbago
    Here's what the FDA says - and again, please do watch the video. Food manufacturers may voluntarily list the amount in grams (g) per serving of sugar alcohols on the Nutrition Facts label (under Total Carbohydrate). They may also list the name of a specific sugar alcohol if only one is added to the food. But, food manufacturers are required to list...
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