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plumbago

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by plumbago

  1. plumbago
    Laura, I agree with trents, that blood in this instance is often attributed to a small cut in the anus / rectal area, and other things he noted. But you may at the same time want to ensure that you are not bleeding any further up your digestive tract, and for that, your doctor can order a FIT test or fecal occult blood. It's easy to do. Good luck.
  2. plumbago
    I know this is an old-ish post, but thought I would respond here for reasons that will become clear. Yes, when I was diagnosed with Celiac, the scopist also observed a hiatal hernia. It was of little interest to me at the time - roughly 13 years ago - because 1) I had no idea what a HH is/was, and 2) had no symptoms from it. I was told it is extremely common...
  3. plumbago
    The only way to reliably know if you have active disease is to go back to eating gluten, wait, and then repeat the comprehensive celiac panel. From NHS Inform: Before a blood test is taken, it's important that you eat gluten-containing foods in more than one meal every day for at least 6 weeks before the test. Remember to eat a normal gluten diet...
  4. plumbago
    What are they telling you is going on? Ie, diagnosis? Hope you get checked out by hematology and cardiology soon. Take care, and keep in touch.
  5. plumbago
    Anyway, I feel like maybe the forest is being missed, here, for the trees. There's a higher percentage of the stuff that's been added to foods, than occurs naturally in fruit. That's one. Two, and this was my main point - if people with celiac disease are still having issues, it is certainly worth considering that it could be these sugar alcohols. I...
  6. plumbago
    Here's what the FDA says - and again, please do watch the video. Food manufacturers may voluntarily list the amount in grams (g) per serving of sugar alcohols on the Nutrition Facts label (under Total Carbohydrate). They may also list the name of a specific sugar alcohol if only one is added to the food. But, food manufacturers are required to list...
  7. plumbago
    Very much so. Two things can be true at once - sugar can lead to chronic disease (including cancer BTW), and sugar alcohols (again, technically not an artificial sweetener, according to the video), can lead to intolerance, causing bloating, gas, and pain. If you ask me, and you didn't, we should be regulating sugar, high fructose corn syrup, and I guess...
  8. plumbago
    They may be listed, but that doesn't mean they are required to be listed. (Again, I encourage people to watch the video) So - again, in the video - she says she's 95% better, and that 5% is from the sugar alcohols found in fruits. Her point is that it is now added in more and more things, and we are getting overexposed.
  9. plumbago
    According to the video @RMJ -- They are not technically artificial sweeteners so they do not have to be disclosed. Labels often just say "less sugar" or "sugar substitute." I encourage folks to watch it.
  10. plumbago
    Yeah, but the point of the video was that sugar alcohols are often hidden. I know little about erythriol, and as far as I can tell, that's not what the video was talking about - ie, two different things? Editing to add to my reply here...So erythritol is actually a polyol, which is a sugar alcohol, the topic of her video, though she does not specifically...
  11. plumbago
    Sabine Hassenfelder is a German science writer who has worked in the US and Sweden, among other places. She posts entertaining, funny videos about science, but recently did one on sugar alcohols, which I think is worth viewing. In it, she talks some about autoimmunity in general, and why symptoms often show up later in life (30s -40s, eg). ("I've probably...
  12. plumbago
    I'm so sorry you are going through this @Dave Neff. Do you think it has anything to do with Celiac? You deserve answers, that is for sure! Insist upon a conversation with a vascular specialist, and perhaps suggest an abdominal scan. I do not have any personal experience with this, but yes, I have cared for patients who have needed transfusions for various...
  13. plumbago
    There are other causes of a positive test, including diabetes, heart failure, Crohn’s and others.
  14. plumbago
    I'm confused about what exactly the topic is. Slightly above or below normal is usually nothing to be concerned about. The hematocrit (percentage by volume of red blood cells in your blood) range for males is 42-52% (generally) and 37-47% for females. Hemoglobin 14-18 g/dL males and 12-16 g/dL for females (generally speaking). One or two percentage points...
  15. plumbago
    Hi again, the source of the blood is different in your case with that point of care test (capillary vs venous), but I'm not sure that makes that much of a difference. I think what you need to find out is the specificity and sensitivity of that brand of test. I got on the actual test site, not just the amazon site (which is loaded with messages for me to accept...
  16. plumbago
    Help us know more about your at home test kit with either a link or in depth description. Personally, I'd want a lab test. To buy on your own they are at least $150, maybe more. But if you have insurance and your doctor orders it, obviously it would be free. Depending where you are, you might be able to have a case manager get you signed up for a cheap or...
  17. plumbago
    @HilaryM No, you likely don't need a colo. I was the exact same way about wanting a positive biopsy result. As for vitamins, for B12, I don't take cyanocobalimine, but rather methylcobalamin because it's more bioavailable. You will learn a lot about what works as you start trying different things. Just keep us posted on what you're doing, what's working...
  18. plumbago
    First of all, your tests indicate positivity for Celiac. Second, you should know that you need to keep eating gluten before the EGD (are you also getting a colonoscopy?). Third, may as well as for a B12 test just to see if you are absorbing that vitamin and to establish a baseline. You may also ask for a test of Vitamin D, again to establish baseline. Four...
  19. plumbago
    The child needs to be continuing to consume gluten at least 4-6 weeks prior to the test. USA-based information here, but should be helpful, generally.
  20. plumbago
    That's not good!
  21. plumbago
    If a hospital has coke machines/fountains or the cafeteria has a ton of processed carbohydrates, you can be fairly certain they don't care about nutrition. I would be satisfied if they first started to cut down on the amount of nutrition-poor food, and then moved on to gluten.
  22. plumbago
    You posted results of two blood tests for Celiac disease. One is negative and one is positive. Generally, it only takes one positive result to diagnose Celiac. It is highly likely that you have Celiac disease. The two tests you posted measure the amounts of immunoglobulin A and not the more numerous immunoglobulin G. It's complicated, but generally,...
  23. plumbago
    @Always-Hungry-Kate For me, it took maybe a year or so to feel somewhat normalized in terms of my particular symptoms. In general, I did feel better going without gluten (socially, it's still not fun). For me, it was good not to have D every morning. Where I work (in healthcare) we've stopped the protein shakes as they are simply loaded with sugar. I wish...
  24. plumbago
    Yes, that was what I was trying to get at, partially, with my questioning: what has changed in terms of what the OP is eating. I agree that maybe eating more protein could help. Also, others have pointed out that oftentimes people with celiac disease also cross-react with dairy. No idea if that's happening in this case though.
  25. plumbago
    Sorry @Always-Hungry-Kate to hear this. Tell us how it goes: do you eat a lot, then feel nauseous and then you are hungry? When you are nauseous, do you ever vomit? Did you have these same issues before you went gluten-free? Do you think you are eating less now than you were before because of the restrictions? IOW, is it a matter of learning to substitute...
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